Anyone else had a port put in?

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dlittkemann
dlittkemann Member Posts: 234

I have the procedure tues and I’m so scared it’s going to hurt. Any advice or good stories pls. Thanks :-

Comments

  • alissat
    alissat Member Posts: 26
    edited March 2020

    I’ve had one put in & removed. Neither hurt during the process. They numb you up really well. You’ll have soreness once the numbing agent wears off. OTC pain reliever was sufficient. Good luck

  • dlittkemann
    dlittkemann Member Posts: 234
    edited March 2020

    Thank you for that. Appreciate it. Worried I will feel it going in.

  • NancyHB
    NancyHB Member Posts: 1,512
    edited March 2020

    I’ve had a port twice now, I was worried about the same thing. Never felt it going in or being removed. I also never felt anything when it was accessed (never used a numbing cream). It was so easy and convenient, I was very glad I had it.

  • smc123
    smc123 Member Posts: 71
    edited March 2020

    I was knocked out when my port was put in and taken out. I always used my numbing cream because I didn’t want to risk feeling any pain...which, thankfully I never experienced. I would recommend wearing v-neck t-shirts when going to treatment. This made it easier for the nurses to access my port for blood draws and chemo. Hang in there...take things one day at a time and you will get through this

  • dlittkemann
    dlittkemann Member Posts: 234
    edited March 2020

    Thank you so so much. Makes me feel less worried. Helps so much

  • dlittkemann
    dlittkemann Member Posts: 234
    edited March 2020

    cannot thank you enough for taking the time to reply. I feel so relieved. I’ve been so nervous about this!!

  • Sweettalker52
    Sweettalker52 Member Posts: 64
    edited March 2020

    dlittkemann : I am so thankful that I got the port. Placement procedure was a breeze, although they only gave me sedation, did not knock me out, so that was different. But no pain whatsoever. Healed fast. There will be two incisions, one under your collarbone and one lower on your chest, if it's like mine.

    Getting an IV into my arms or hands is very difficult for every nurse and technician that has tried it. Most of the time it is an ordeal. The port is so easy that there is no pain and no anxiety about whether or not they will find a vein that will work, or if they find one, if it will cooperate.

    I agree about wearing a V-neck top to treatment, or layering a tank top under a covering shirt or sweater with buttons. Then they can keep you modest when it's time to access the port.

    Best Wishes to everyone. I'm on Day 3 of my 3rd cycle of TC + Neulasta. Side effects manageable so far. Hopeful.

  • dlittkemann
    dlittkemann Member Posts: 234
    edited March 2020

    @sweettalker thank you so much. I’m much less scared now. Appreciate it. I am afraid of being awake while they put it in. I have small veins and it’s a struggle to find one now so it’s a must but definitely afraid it will hurt. Glad to know it’s not bad!!! Thank you all (((hugs))

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited March 2020

    My port was put in 8 years ago, under sedation. No pain afterward. A/c is hard on veins, I don’t like getting stuck multiple times. One and done. The nurses use a freeze spray on me.

    I still have it, don’t want it out.

    As for a/c itself, it was pretty hard on me. Nothing, even water, tasted good. I tried to eat what I could. Stayed in touch with MOs office for help. Drink lots of fluids. Gatorade or similar is good.

    The Nulasta shot the next day didn’t bother me much. But I had an hour to do anything because I needed a nap!!! Now I’ve heard they’re using a preprogrammed device so you don’t have to drag your tired self in for the shot. Some take NON drowsy Claritin to help with bone pain from the stuff.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    Yes it's easy. Take a "sharpie" and draw where your bra strap goes so you don't end up with the port right under that & rubbing. If you're going to start chemo shortly thereafter, ask them to leave the "dangles" so they won't have to access the new port a day or two after installation. Get some EMLA cream - basically a prescription Lidocane - and smear it on before you go for chemo each time. But smear it with a Q-tip or your finger will be numb.

    I LOVED my port. Kept it for 5 years.

  • AuthorSpot
    AuthorSpot Member Posts: 21
    edited March 2020

    I just got my port put in on the 10th. I was sedated (so I remember nothing). It did hurt a bit when I first woke up, but the nurse gave me a shot and nothing hurt after that. I slept most of the day. It was a tad sore to sleep on the next two nights, but other than that not bad. They tried to use it two days later when I had an MRI, but it was too swollen and they couldn't find the bumps. That was mostly because I'm allergic to everything and reacted to the adhesive on the bandage they'd covered it with. Story of my life. Lol. I'm excited for them to use it and save my poor bruised arm.

  • dlittkemann
    dlittkemann Member Posts: 234
    edited March 2020

    UPDATE. my hospital has said no more ports until virus has passed so pic line for now. Which does makes sense. Less invasive. So will do my port later on for sure. I don’t like idea of this in the nicer weather. Can’t hide it w sweaters ;-)

  • BJI
    BJI Member Posts: 154
    edited March 2020

    I was sedated for the insertion, done on a Monday. Tuesday was first infusion. Went great, never had any discomfort with it. I got prescription for Emla creme to put on prior to infusion. I finished my infusions May 2018, still have my port. Doesn't bother, most of the time forget i have it. I go in every 4-6 weeks and have it flushed. MO said I can have it removed anytime..

  • helenlouise
    helenlouise Member Posts: 420
    edited March 2020

    upside Dlittkemann, covid19 doesn’t like the warmer weather either! Good luck to you x

  • dlittkemann
    dlittkemann Member Posts: 234
    edited April 2020

    Hi all!

    So I got a call today to go Monday for the port to be out in. I’m a bit worried w covid. That’s why they delayed it and did pic line. They said too risky yet w virus. But I’m afraid it’s still risky? I guess they would not do it if wasn’t safe. Just any extra hosp trips make me nervous. Again thanks for all the posts. Very nervous about procedure. Glad to know most didn’t mind it being inserted.

  • UnrealTarHeel
    UnrealTarHeel Member Posts: 85
    edited April 2020

    @dlittkemann: No advice for you, but wanted to wish you well and hope you will report back. I am scheduled for port placement May 8, with first chemo May 12. They are doing the placement at an outpatient center, not the hospital, but I know what you mean about this being an anxious time--for so many reasons. Good luck on Monday!

  • dlittkemann
    dlittkemann Member Posts: 234
    edited April 2020

    Hi there

    Had port put in yesterday. Process was easy. Only part tiny sting when they do freezing. That night started get sore I take Advil. Takes the edge off. Not severe pain more tender and sore. Inserting though was easy. Hope that help

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