My Husband, My Life, My Love, My Family, My Cancer

I had a lot of walking today, over a couple of hours worth with bus and getting home. Then found out shelves are emptying so went back out for a few more things. I was able to walk with heavy knapsack twice all that distance. That is great but somehow manage to trip and fall forward on a stupid half step up in my apartment. What the actual fuck. I pitched forward and landed on my stomach, skinned elbow, not sure if anything else is hurt. Scooched on my bum to the living room to get my yoga mat to get up. Obviously I need hyper vigilance on lifting feet not only outside but inside now.

On the plus side, I did not pass out and only cried for about 5 minutes.

Mara sorry to hear you fell. I think a 5 minute cry was about right. Really you walked and back packed supplies home, all things considered you’re extremely strong and motivated!

Tanya

Karen, no, I am not worried. I walk with what feels like a march outside so I will just do that inside too. I was just careless and did not life my food as I do normally.

Morning all.

Mara- Oh my !!! Glad to read you are ok but the elbow. Take care.

Well I am venturing out today--- groceries and pharmacy. Paring down my activities with all this COVID-19 stuff. No confirmed cases in our town, but I don't even know if we have test kits available (haven't got to ask anyone). I will wear my mask (have a stash from before the coronavirus scare), will wash down cart handles (have a stash of wipes too), and will scrub hands when get home. Doing the best I can. Have to continue doing some things. Then no plans for weekend. Staying home from church service. Next week I have MO appt for Lupron injection and port flush---have to do that.

In pocket for any with scans or treatments. Karen- today scan? Divine- scans soon? Mel- report of results?

I will be checking in here this weekend since home and will be lonely. Anyone around, say Hi.

Thanks everyone for the concern. I did not seriously hurt myself (lucky) and the step bench in front of the half step is working to make me step up. I always use right leg as never tripped with left leg. I do like the term aware walking because that is what I do outside all the time now. I do think overuse yesterday may have played a factor with a tired leg not lifting as high as I do not really do the almost march when just walking around the apartment but I will be more aware. May set up obstacle courses with things on the floor and force myself to step over obstacles.

I will not stop walking but obviously need to be vigilant with the right leg when walking anywhere. This will not stop me, I just need to factor in my walking issues when going out. I am strong, just need to be cautious. I also don't think it is cancer related as I have always been a trip and faller. Nowadays I just have more time to try and find solutions for problems.

Edited to add, yes the john travolta bubble would be perfect for me. I could shuffle all I want in that and still roll to my destination. Glad though that the falls are teaching me coping skills before it gets worse. Also glad that I was not more seriously hurt. Funny that tripping gets me yet I can walk easily through snow and ice.

Hello Ladies~I just got back from my Oncology appointment and my scan came back stable with some areas shrinking. I’ll be staying on Ibrance for more time. Going on round #42 now. He told Me I am the longest patient he has on it and he’s thrilled. He was smiling ear to ear and he was so happy that I was stable. He reminded me to be careful with this sickness, but he said I’m Pretty strong and all my Blood work is all normal so I am still in the very limited disease category. I hope I can stay there forever. I’ll cope with Ibrance. Don’t want to change that. love to all that are scanning. Make room In your pocket for me! Love to all!

Awesome Mel!!! I wanna be like you!

I am so happy to hear this for you. Hooray!

GREAT news!! You go girl!

Oh my god, the panic from COVID 19 is getting crazy. You cannot buy toilet paper from any grocerry store here, the crowds are crazy and even amazon in canada is sold out of most. I am really glad handkerchiefs are my choice. I will start bringing them with me when I go out in case people steal them from stalls.

As a cancer patient I would understand some caution in crowds and small public spaces but the people here are going nuts. Does not help it is march break and all publicly funded schools will be closed 2 weeks after they are supposed to go back. I think it is a good idea in case people travel but our Health and even government is advising not to travel unless it is essential.

thank you all! It feels like an elephant off my shoulders.

I agree with Mara. People are acting. Nuts, I specifically asked my doctor about the risks. To me in particular. He said. You’re fine. You’re treatment isn’t as immunosuppressive as some of the heavy heavy chemos. He wasn’t even worried about it. He said take. Normal precaution, and don’t be an idiot. cough in public, or anything like that without our covering your cough or sneeze..if you know you’re sick stay home. He was not worried. It made me feel a little Better about this virus thing. Problem Is , it’s viral , which means not only can it live a long time outside a host, it just takes time to run its course. This could last for months. They say... scary shit. But doctors didn’t seem worried

Mel, Congrats on the good news on your scan!

Evening all.

Mel- Woohoo !!!! Stable for 42 cycles !!!!! Happy, happy for ya. Interesting how different MO's feel about Ibrance low counts. Good that your MO was calm and not too concerned. I see my MO March 30 for a check-in appointment. I will ask how she feels about COVID-19 and Ibrance, but, if she acts like she has been with the influenza concerns, she will probably be freaked out. She brings up my counts every time I see her. And she always says I need to be careful.

Well, I went shopping today. No biggie. Enough TP. Milk ok. Bread a little low, but I got my 1 loaf. Bottled water gone, but I drink tap water. Limited to 4 cans of each variety of canned goods, but that was ok by me. I got everything on my list. Wore my mask, like always. Wiped down cart, like always. And scrubbed hands as soon as walking in my door at home. Hopefully all will be ok.

Heard that our President called for declaration of National Disaster to free up Federal funds to help fight this. And my Governor is closing all state public schools K-12 for 2 weeks. Kinda freaky. I do think there are more positive cases than we think since we don't have enough test kits to test people. If we get more kits, I think we will see the numbers rise a lot. Freaky.

I will be checking in this weekend- staying home.

Virtual Hugs (cannot infect that way, hahaha)

thank you Tanya!!!!!!😃

congratulations Mel!!!!! 🤗🤗🌸🌸🌸🤗🤗🌸🌸🤗🌸🌸🤗🤗🤗🌸🌸🤗🤗🌸🌸🌸🤗🤗🌸

Such beautiful news to receive!!! I’m dancing around my apartment for ya!! 💃🏿 💃🏿!!

I can’t tell if doctors are being too blasé about all this COVID19 stuff or not????

I have very intelligent people with masters, PhDs and MDs and all types of education telling me (outside from my doctors) that this is very very serious and begging me to stop working for at least two weeks. Freaking me out so much!

Okay I am going to hopefully fall asleep soon. I am clearly in a heightened alert mode here. Time to meditate!

Love,

Philly