Preparing for mastectomy

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daenerys30
daenerys30 Member Posts: 30

I haven't scheduled it yet but will be have a unilateral mastectomy in the coming weeks. I have read a lot of articles of things to have at the hospital and at home but wanted to get some additional advice. What clothes should I bring? I saw a mastectomy pillow on Etsy and it looks nice but does it work? Should I get a body pillow to help me sleep comfortably? What about pain control, showering, every day tasks? Any advice would help.

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  • farmerlucy
    farmerlucy Member Posts: 3,985
    edited March 2020

    I highly recommend reading, then joining, the surgery sisters threads. That was the single most important thing I did back then. You learn all the tricks and tips, and you gain support from folks like you who know exactly what you're going. There are also chemo groups and radiation groups and probably others.

    Welcome!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    daerneys - below is a link to a surgery thread I just bumped to the top. Hope you find it useful.

    https://community.breastcancer.org/forum/91/topics...

    And I agree with Lucy. FInd the thread for "surgery in March" or february if you want to read a bit ahead. It helps to go through it with others in the same boat.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited March 2020

    As an example, here is the January surgery group link.

    https://community.breastcancer.org/forum/91/topics...


  • Dgregory
    Dgregory Member Posts: 1
    edited March 2020

    Hello I'm new on here . I'm Scheduled For a double mastectomy after finding out I'm positive for the brac 1 gene. My parents had 5 girls with me being the youngest. I recently turned 40!!! Anyways so my Second sister was diagnosed at age 28 with breast cancer in 2003 and passed away in 2005 . At the age of 30 :( We also lost my 1st sister to cancer not sure where it started due to her being misdiagnosed for over a year....:( this past Aug. my Great grandmother died of breast cancer .My dr was telling me about this test and how important it was that not just me but my two other living sisters be tested! I deal with TERRIBLE ANXIETY.... have for years .... but I was the brave one that took the test first .... I had tried to prepare myself .... well 2 weeks later I get the call and it's Positive for the Brac 1 gene and high risk also for both breast and ovarian cancer!:( So after loosing two sisters so young I did my research and found one of the top oncology surgeons in the county. And a wonderful Plastic surgeon ! Now the weeks have became days and I'm a complete mess!!!! I'm truly terrified to have this surgery with the Coronavirus Getting so bad! I do live in Tn . And where I live theres only been 1 confirmed case.... But many are in quarantine! Im also having reconstruction after and their putting in extenders .... which I have to go once a week to my Plastic Surgeon to get them injected then after about a month I’ll go back into surgery and have them removed and the implants will be put in ! Then I have to wait another 4 weeks for my nipple reconstruction.... I just don't know how bad it's going to get here with this virus while going through all this ?! Should I reschedule for a later time and see how things go ?! I mean I'm stuck !? Please help ?! Any advise would be WONDERFUL!!!! Thanks


  • HeartShapedBox
    HeartShapedBox Member Posts: 172
    edited March 2020

    i had a unilateral mastectomy and 8 nodes out in late Dec, but I didn't stay in the hospital so I can't comment on what to have with you there (other than a shirt that's loose and easy to put on for the trip home). I didn't have a recliner to sleep in, so I got a U shaped "pregnancy body pillow and it was great! You can combine it with a couple regular pillows to prop yourself up more, it supports you on every side and really helps with comfort!

    https://www.amazon.com/dp/B07Z1Q1Z4Y?ref=ppx_pop_m...

    I also found a smaller "hugger" pillow to be super useful and comforting, I used it for car rides, sleeping, and just holding as I recovered on the couch, and i got a cute sherpa "decorative" one from Target that was less cumbersome more useful afterwards than a specialized expensive "mastectomy pillow". I was in quite a bit of pain in my armpit from the node removal, but I was surprised at how little pain my actual chest had (I didn't get tissue expanders or reconstruction). I did need opiates on top of advil for pain, but many people don't.

    For bathing, I wasn't allowed to get my bamdages wet until my drain was removed, so for my upper body I did washcloth baths with a basin of water and gentle castile soap, and i bathed every day and felt clean the whole time. I got cheap lanyards online and clipped my drain to that while i bathed myself. I had lost my hair from neoadjuvant chemo, so that part was easy for me, but you could also hang your head over the tub and use a shower wand.

    I got lanyards and a waist pouch to hold my drain, but I actually preferred just tucking it into the pocket of a hoodie the whole time, or sometimes just into my sweatpants pockets (it was cozy clothes only for my recovery!) Make sure you follow directions to "strip" your drain tube at least twice a day. I didn't use enough pressure to squeeze the fluids out completely (I couldn't use my "bad" hand to help very well) and my line got clogged with coagulated blood and I had to go in to have a nurse fix it.

    For everyday tasks, I was fortunate to have a partner who cooked for me and did enough cleaning that I didn't feel totally crazy (lol). You don't want to lift too much even with your "good" side, as it strains the incision and chest muscles. Have easy meal options (no lifting heavy pots and pans). Get smaller containers of beverages (not gallons) and place things at counter height for easy access, so you don't have to reach up high or low. And let yourself rest the first few weeks!! I pushed myself too early and regretted it- even something like vacuuming can set your healing back if your body isn't ready. But DO use your "bad" side as your surgeon recommends- to hold a cup of coffee, wash your face, etc, as not using it at all can cause frozen shoulder ans make recovery harder. Do gentle physical therapy stretches as your Dr allows them.

    Good luck!


  • HeartShapedBox
    HeartShapedBox Member Posts: 172
    edited March 2020

    Dgregory I would wait, since you don't actually have cancer now, and pushing it back 6 months or something won't do any harm. There's no need to amp up your stress by worrying about exposure to something else (or commit to being in the hospital during an uncertain time when we really don't know how this will all play out).

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