Just had a biopsy of large tumor, worried.

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erayachi
erayachi Member Posts: 11
edited March 2020 in Waiting for Test Results

I'm 32, by the way. I know, but hey, my mother's cousins were diagnosed and died of breast cancer in their 30's, so that's life.

I didn't even know this tumor was there until January this year. It's like, 3cm, maybe bigger. Like the size of a large walnut. How did I miss it? I'm 32. I didn't know until this actual year that looking out for breast lumps was necessary for someone my age.

Anyway.

On March 3rd I had a biopsy (core needle thing) of it, and the radiologist who did so confirmed that it is, in fact, very much a tumor (so they've ruled out it being a cyst. Too solid, or something). I know most breast tumors are found to be benign, but the size of this thing, combined with my vastly pre-menopausal age (not really, actually, women in my family hit menopause in their late 30's. My mother was 36. Yay) and family history, so yeah. I'm worried.

I have severe chronic back pain and increasingly difficult times moving every month it seems, as I get winded and short of breath awfully quick. So I'm even more worried. I've never been pregnant and there's 0 chance of that now.

Mr. Walnut is really disrupting my already pretty awful state of health, and I'm up at night unable to stop thinking about this. And the thing is, if this thing ends up being cancer after all, I might die of not being in shock, and I'm somehow...indifferent about the idea of the cancer itself.

It's the waiting that blows. Really much. Somehow waiting for results feels worse than the idea of having bad news. Weird, right? I guess when you've lived with the pain I have for several years, you become desensitized to increasingly terrible news. I'm not saying that for a pity party, by the way--I'm sure many of you have been through something like this, and you know that early on something like third-party pity feels like chewing tasteless gum after a while.

I guess I'm just looking for a place to vent. And for advice. The ultrasonologist who helped with the biopsy said it could take 4-7 days to hear about results, and if I didn't hear in 2 weeks (2 WEEKS!), to all my GP. Like....really? Reeeeally?

Ladies, if you're under the age of 45, remember to grope yourself on a frequent basis. Turns out youth doesn't protect you from boobtumors...


Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited March 2020

    erayachi, we hear you and we are sorry for these terrible moments you're going through, but wanted to send you a warm welcome to the BC.org forums. The waiting is certainly difficult, and it's truly hard not to imagine the worst case scenario, but there's still hope as only the biopsy results can tell for sure what's going on.

    Please keep us posted and try to keep calm and keep yourself distracted these days. We are sure others will be by shortly to weigh in with their thoughts and advice too.

    Good luck with biopsy results! Please keep us posted!

    The Mods

  • erayachi
    erayachi Member Posts: 11
    edited March 2020

    Thank you. Your kind words are helpful, and I'm happy to be part of the community.

    Earlier this morning, my best friend (who is a night owl anyway) came over to play some video games and just talk in general. It was 2am, but I couldn't sleep, and she's a really good friend. I couldn't sleep because I had a brain filled of 'what ifs'.

    I just dunno what to think. I've got this massive chicken-nugget shaped solid lump in the exact place the most common invasive cancer is found. Dunno how I managed to miss it, you'd think I'd find it before it got big enough to choke a donkey.

    Really, feels like all I can manage is to keep my sense of humor on it, like a cold compress.

  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited March 2020

    Hi!

    When I was diagnosed my lump was 5 cm (and scans revealed it had a lovely little satellite friend). So, you're not alone! Many of us are just busy living and not thinking about the possibility of cancer.

    As you can see from my stats, I've made it past 5 years with no recurrence. You, too, can survive a big tumor!

    Yep, the waiting blows. Don't be afraid to ask your doctor for something to help you sleep. I had a small supply of Ativan at the beginning of my cancer journey that I used on the worst nights.

    Sounds like you have an awesome friend!

    Take care of yourself and keep busy!

    ((Hugs))

  • ebnbsmith
    ebnbsmith Member Posts: 2
    edited March 2020

    I am going for my biopsy today and they said it would take 3 days for them to get back to me.

    Two weeks is an absurd time to wait for results.

    I am a little bit nervous. I think I am working myself up because when I did the mammo and us - the radiologist tech said i think the dr would like to ultrasound this himself? Have any of you had that occur?


  • erayachi
    erayachi Member Posts: 11
    edited March 2020

    Thanks, Elaine. I'm on 3 meds daily already, and I don't see why not 4-10 more (jokes, jokes). A sleeping aid might not be necessary, Gravol is likely cheaper and it doubles as a soothing element to the stomach cramps that are side effect of my original 3. Downside being, my body isn't tricked easily and it stops working after a few weeks.

    I tried calling the doc's office today to get some kinda instruction, and I was told to call again tomorrow, and again, Monday, etc, if the results arent' there yet. Seems they don't wanna schedule anything until they have something from the pathologist. Which isn't new--this particular doctor of mine doesn't schedule anything more than 2 days out and only works 4 days of the week. And she's young. I don't think she has many patients who've gone through this process before.


    As for ebnbsmith, 2 weeks is absurd. I think however, that she only meant if my doc's office just got so busy they didn't call me, to get in touch with them. I'm hoping I don't have to wait further than tomorrow or Monday. As for the radiologist tech and ultrasound, sometimes a tumor is just so irregular, or too small, or hard to see clearly and they want the actual radiologist (the doctor) to perform the test, since they're more experienced and might see things in action better than the ultrasonologist tech. It happened with me the first time I did the ultrasound, the tech left, and I had a radiologist come back with her to finish the ultrasound. The techs themselves aren't doctors per se, they're health care specialists who just operate the machinery and provide results to radiologists. The latter has the PhD.

    Don't believe it means anything bad is to be expected. Likely they're being thorough, because if the tech misses something whilst taking the ultra, then they can't provide accurate results to the doc.


    I hope your biopsy goes well! There's no reason it shouldn't. Other than being manhandled a lot whilst half-naked, it's not as scary as it seemed to me before I went in.

  • Salamandra
    Salamandra Member Posts: 1,444
    edited March 2020

    So sorry you're dealing with this. The waiting does indeed blow.


  • Rrobin0200
    Rrobin0200 Member Posts: 433
    edited March 2020

    Eray,

    What was your birad score?

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2020

    Lots of benign breast tumors are big too

  • erayachi
    erayachi Member Posts: 11
    edited March 2020

    Rrobin,

    Don't know what that means. The extent of my knowledge extends to what I was told during the biopsy (unrelated: seriously, this bandage won't even come off in the shower, what is it made of). That it's a tumor, could be benign, pathology report within 4-7 days. Damn right I'll be calling my Dr's office each day they're open.

    Edit: Wait, there's a score that determines the probability/susceptibility of a tumor being malignant based on imaging results!? Why the hell don't the doctors tell me anything. Is it 'cause the results are pretty freakin' bad and they don't want to worry me or break the news?

    Seriously, though. They shunted me through to a biopsy pretty dang fast after the mammo/ultra. Here in Ontario, with our health care system bogged as it is, 2 weeks for an appointment with a radiologist is like winning the Super Ball in a lottery. I thought that was suspicious.

    Eh, oh well. Not gonna change the results. Wish I'd be braver and ask for information when I see doctors, but I'm at my core, pretty cowardly.

    ---

    @Melissa, that's good to hear, actually. I can't find static evidence online about what the size of a tumor means in general, only what it means for cancerous ones. Wish I'd thought to ask the radiologist when she was there at the biopsy.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited March 2020

    This cancer thing is such a crap shoot anyway. Somewhere on this site is a thread for really big tumors, like the 7cm+ range and lots of those ladies were successfully treated. And there have been instances where a 1cm Stage 1 tumor goes to mets in like 3 years. So I wouldn't worry too much about size.

    And don't beat yourself up either about not feeling it. I swim several times a week and have the opportunity to feel myself up a bunch when stuffing the girls into the suit, or after in the shower and I never felt mine either, because of where it was positioned directly under the nipple. I had a reduction some 20 years ago so lost almost all sensation in my breasts anyway and assumed the slight changes in shape were due to needing a lift or something that they had warned me I would be needing about now. Surprise! Oh and that tumor? The radiologist shot the clip straight through it so its a pretty pathetic excuse for a lump. No family history of any cancer and I'm 42.

    Whatever it is, lots of ladies here will be able to help you deal with the outcome!

  • erayachi
    erayachi Member Posts: 11
    edited March 2020

    OUCH. Shot right through it? That must have left some damage. My tumor is so tough (another reason I refer to it as Mr. Walnut, this damn thing deserves the ridicule of a dumb nickname) that the radiologist had a hard time getting the needle into it. There was much pressure. Some bruising. And in relation to your swimming story, the only reason I discovered this lump?

    I had emergency surgery to remove my gallbladder. 6 days in the hospital and surgery on Christmas morning. I became very self conscious about my health then. I did a random breast exam whilst treating my surgical scars and WHAM! Bigarse lump in left breast. Thank you, broken gallbladder?

    I told doctors about my second cousins. All I know about them is that they died of BC in the 80s, not long before I was born. My mother's aunt lost 3 daughters in total. Since the cancer is in my mother's generation but twice removed from me, the doctors didn't seem all that concerned. At first. No idea if it genetically skips generations, but BC in women my age is rare enough that it cant be coincidence...

  • windingshores
    windingshores Member Posts: 704
    edited March 2020

    Ativan and Netflix got me through the waiting. And don't research specifics until you have them :) I did buy the Mayo Clinic book which has a nice overview so I could understand the results, but this forum can do that too.

    Not to get off subject, but you need to write a book or do stand up or be my friend. I love your writing and I love your humor. Even reading about your cancer angst.

    Mr. Walnut will be gone soon. Many with large tumors are fine. So if you are, please use your talents.

  • ebnbsmith
    ebnbsmith Member Posts: 2
    edited March 2020

    Erayachi, you were right. When the rad tech cant see something or its very small then they call the radiologist. Thats what happened in my case.

    I found out yesterday during my biopsy that they couldn't find it on the US. The biopsy went well but they had to look hard to it as it looks similar to others

    in my breast? I did have a fibroadenoma years ago and the radiologist said it looked like that. Anyway, they put the titanium clip in but when they did the follow up

    mammo images it had move away from the area they biopsied. Have any of you had that happened?


  • prayingHard
    prayingHard Member Posts: 15
    edited March 2020

    Hi

    I am sorry for what you are going through.

    I had my biopsy on 4th March and I am still awaiting results. they told 3-5 days, so 2 weeks is too long for sure. I would nudge the people who did it and not wait.

    I am on the same boat, waiting is the worst than the worse news. I am freaking out too. But meditation and keeping busy helping me.

    You have history so I can understand worry.

    For us no history in family for BC but..

    I just turned 45...

    Yes around the manopause age

    and obese

    and have high sugar...

    all adds up... :(


    But I have found good peace in the group here with just one question similar to yours.

    And like I said meditation helps.

    When I pray for myself, I will pray for you too.

  • erayachi
    erayachi Member Posts: 11
    edited March 2020

    Welp.

    Results are in. And it can't be a clear 'benign' or 'non-cancer' response. Oh, no. It's gotta be the 1% chance one.

    It's a phylloids tumor. OR phyllodes. Not sure which is correct. The woman on the phone actually said 'fee-loid', which I took to mean either keloid, or phyllodes (she was a medical secretary, I think she pronounced it wrong...yeah...), and since a keloid is a dermal abnormal growth tumor common in those of African descent or other pigmented skintypes...y';know, not tumor inside of a breast...inside of a very white woman with mostly Irish genetics......then it made most sense she meant PHILL-oid.

    I digress. I've got what is considered to be a benign tumor...just, one in the connective breast tissue that grows ridiculously fast. And has to get removed via surgery, unlike other benign tumors. And also has a chance of being cancerous. Whether it's benign for sure, or malignant, that can't be discovered until after surgery when the entire tumor can be examined under a microscope.

    So now it's down to waiting again. This time, I'm waiting for a surgeon's office to call me to schedule a lumpectomy to remove this gremlin from my bosom area. Then it'll be waiting again, for the pathology report for the entire tumor.

    Oh and this thing, which was 2.2cm back at the start of February, has very much definitely grown in size since then. I'm not sure what they're planning on, but it'd better be soon, or there won't be much breast left to recover and I might as well go full monty--I mean, mastectomy. Or at least removal of Breast A.

    1% of all breast tumors. Ya kidding me. And boy, they do grow fast. I was worried before that I'd missed it somehow for months...but more likely, it grew there in the matter of weeks.

    One. Percent.


  • Beesie
    Beesie Member Posts: 12,240
    edited March 2020

    Not that this will make you feel better, but while phyllodes tumors only make up around 1% of biopsy results, there are actually much more common breast biopsy findings such as ADH and ALH and LCIS that are benign but also mean that an excisional (surgical) biopsy is necessary. For all of these conditions there is approx. a 20% risk that something more serious (i.e. invasive cancer or DCIS) will be found in the surgery. With the phyllodes tumor, if it is found to be benign, then the good news is that it does not increase your breast cancer risk. Unfortunately for those with ADH and ALH and LCIS, even if the excisional biopsy finds nothing more than these benign conditions, the fact that these conditions developed does increase future breast cancer risk - these are considered to be 'high risk' conditions, whereas a phyllodes tumor is not.

    Sorry that you have to go through the surgery, but it's not as unusual a result as you would think, after an inconclusive or discordant needle biopsy. There are a number of benign findings that require surgical removal and/or further investigation.

    Good luck with the surgery. Hopefully your phyllodes tumor is one of the 80% that is totally benign.


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