I started Abraxane December 2018. I lost my hair three weeks later. It took a while longer, but also lost eyelashes and eyebrows. The side effects were minimal other than the hair loss. About three months ago the neuropathy started. PA said to take Vit B6. I am currently on a chemo break and the hair has started to come back.

MO has done scans every three months since the diagnosis. The only bad one was the very first PET scan. I asked him to treat me with curative intent. He thinks we “may” have “got it.” I am taking a break to see what happens and to get all my counts back to the more normal range. There will be yet another set of scans the end of this month to see how things are going. Fingers crossed! I feel great and believe things worked for me. It may come back, but I refuse to spend much of my time worrying about it.

I did the three weeks on/one week off with Abraxane for slightly over a year. I was more tired than usual during treatment, but no other QOL side effects. I did start neuropathy in my feet about four months ago. My MO said that having metastasis to the bones was very doable long term. He is more concerned about organ involvement. Thetnbc part does worry me some.

You must be somewhat younger than me as my kids are in their 30’s. So unfair to have to deal with this while so young. I do hope your treatment goes well and you stay healthy as can be expected with this diagnosis for years to come. Let’s stay in touch.

Take care!

Dlittkemann. I hope your treatment today went well. I was on the tecentriq and abraxane for six months and tolerated this combo well I hope the treatment works for you. I wish I could have stayed on it for a while longer I did lose my hair but of course everyone is different. I would ask you oncologist.

Jcslibrarian. Did I read your post correctly. That you are taking a break and that you think you might have “got it" with abraxane. That is so exciting! I am So happy for you I am grateful My cancer has been holding in my mediastinal nodes with only slight growth (mm)with each scan for about 16 months now. you are my new inspiration! Good luck on your scans! I will keep my fingers crossed.

Hi Ladies,

I am new to this group. I will be starting the Abraxane starting next week. According to doctor, this should be tolerable than the AC,Taxol and Carboplatin. I was on oral chemo Xeloda but looks like it did not help much and my cancer is back again. So this time my ONC is using the Abraxane, once in 3rd week. So I asked for the prevention of hair loss and cold cap was suggested. Has anyone used cold cap to prevent hair loss. I lost all my hair during AC and Taxol. I think i do not want to go through the same hell. Thanks god i did my microblading after the treatment so i am less worried on eyebrows. But hair loss is something that plays a big role for me to get easily demotivated and lost my track.

Can any one of you share the exp.

Thank you

Hey ladies. Im starting too. Failed Xeloda and will start Abraxane and Tecentriq bext week. Getting port tomorrow. Praying we all get no side effects and great results