Totally lost

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ipenelope
ipenelope Member Posts: 301
edited April 2020 in Not Diagnosed With a Recurrence or Metastases but Concerned

Hello again everyone. Ive been here on the periphery given I thought I was done with my battle. Just found out I have a tumor in my left lung that it's believed to be metastatic from my breast cancer. The oncologist thinks that even though my breast tumor was very minimally estrogen positive that it was a triple negative though it was treated as a hormone positive. ACT chemo likely did nothing other then put me through hell.

Im so lost right now and don't know what to think. I want to be angry, I want to ball my eyes out but I feel numb.

~Katie💗

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  • moth
    moth Member Posts: 4,800
    edited March 2020

    Hi Katie, sorry you find yourself here again. Fwiw, I was being treated as triple neg when Stage 1 and ACT is pretty much the standard of care for it so that was a good hard attack on it. But cancer is wiley bastard.


    There's a lung mets thread on the Stage IV forums. I'm only a bit ahead of you - found out about my lung met on Feb 10. If you're exp is like mine, get ready for many scans and biopsies. This is hard, not gonna lie, but we can hold each other's hands & pass the kleenex & stomp & punch & yell, and others asssure me that it does get a bit better so I guess we cling to that.

    hugs

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  • DogMomRunner
    DogMomRunner Member Posts: 616
    edited March 2020

    ipenelope- I am so sorry to hear this. I remember your posts from this past summer (as I was going through chemo) as being so positive and uplifting. I know that you will use that wonderful attitude to deal with whatever this is.

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  • KBeee
    KBeee Member Posts: 5,109
    edited March 2020

    ((((HUGS)))) I hate cancer. I hate that you are dealing with this. Praying you have a treatment plan in place soon to deal with this. Do keep us posted. I am sorry you have to deal with this.

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  • nonomimi5
    nonomimi5 Member Posts: 434
    edited March 2020

    Ipenelope and Moth - I am so sorry for everything you are going through. It really sucks. Sending you prayers

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  • dysonsphere
    dysonsphere Member Posts: 204
    edited March 2020

    I'm still going through my first cancer step, ACT chemo, but I'm sorry that you are going through this and you are in my prayers!

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  • Anx789
    Anx789 Member Posts: 168
    edited March 2020

    Katie and Moth, I am really sorry to hear this. Sending you hugs and prayers. How did you find out, do you have any symptoms?

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  • ipenelope
    ipenelope Member Posts: 301
    edited April 2020

    Anxious,

    I was having pain to middle left side of my sternum and had a really bad episode so requested a ct scan to make sure nothing was there and sadly the ct scan showed 2 areas in my left lung. I ended up having a wedge resection to left upper lobe and then had my left lower lobe completely removed 2 weeks ago Wed.

    I was told my cancer changed to triple negative and I will be doing oral chemo and immunotherapy to treat it.

    I hope everyone is doing good and staying safe and as healthy as possible!!

    ~Katie 💗

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  • Bright55
    Bright55 Member Posts: 176
    edited April 2020

    Hi IP sorry you have progressed

    Its good that your treatment has started .Hoping that post surgery you are managing.

    I have been checking usual posts but no recent activity for met..I am in nsw australia

    I have asymptomatic estrogen postive lung mets some changes over four years but still in lungs

    Yes there is a lung mets thread but we seem to post infrequently...so maybe check out the other different mets posts ..past content can be both uplifting and informative

    All the best with therapy

    Bright in hope


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