Not sure what to think

Hi Mimi,

I was diagnosed in 7/17 and had surgery 8/17 with ILC. I had a bmx with direct implants. I had sentinel nodes one each side removed and was clear. NO chemo or rads. Still taking tamoxifen. I have noticed on and off sometimes weird sensation in my right nipple(I had a nipple sparing mastectomy) on the affected side and sometimes i feel that my armpit is slightly swollen compared to the left. I get random pains which I have been wondering if its just me noticing or if it is side effect of the tamox. I had an onco appt. in Dec and all was good and just had a physical with reg dr and all is good. I have dizziness lately but then again I have allergies Idk, I feel like I am going nuts sometimes with these feelings and when I start to focus on them forget it!

I'm not any help with giving you an answer, but wanted to know you are not alone and I will be following your post to see how your appt. goes.

Mimi,

I too have been having some strange things going on: aching joints, carpal tunnel symptoms in both hands, but at the beginning of the year, I had what looked like frozen shoulder, but in both shoulders and just for a few days. Frozen meant that I could not lift, type, shower, etc. for a good two days, had pain so bad in the shoulders that I couldn't sleep and finally tried Tylenol Arthritis (Aleve and XS Tylenol didn't do diddly). The symptoms/pain got better day by day and I was able to go back to work.

Long story short, my MO isn't taking any chances and I'm having a full body bone scan this week. (Not a dexa). They'll be able to see if there's an infection, damage, more cancer, etc. My new reumatologist thinks it may have been a virus or infection and not a SE of hormonal med or frozen shoulder, for that matter.

Oh, P.S. Do you sleep on a regular bed? I haven't been able to do so for ages since my hysterectomy (which came before BC). I now sleep in a recliner. Otherwise, my arm would go "dead" and then hurt like a dickens once circulation resumed.