Not sure what to think
Hello. I was diagnosed in Dec 2017 with left side IDC with Micropapillary features. I had BMX, no reconstruction. Two lymph nodes were taken and were clear. I was on Tamoxifen for a year but taken off of it due to my cancer being so small, margins clear, and clear nodes. I have done well since my cancer surgery with the exception of some lymphedema. I have also had some pain in my chest area while wearing my bra and prosthesis but have been able to deal with it by taking a pain reliever. About a week or so ago my right ankle was hurting like I had sprained it however I had no recollection of injuring it. I did notice that I have a knot on my leg right above where my ankle was hurting. No bruising just a knot. I’ve also been having some dizziness and headaches at night. And my affected side (my left side) has been hurting more and even my shoulder is hurting now. I’ve noticed some soreness in my side (up under my arm) and it seems as if my side stays swollen the majority of the time. I know it seems like a lot of random things happening here but I really do not know what to think. I did go ahead and schedule an appointment with my oncologist for this Friday to get her opinion on all this. I try not to worry about recurrence but I think I am starting to wonder if this may be something. Anyone out there with similarities? Thanks for taking the time
Comments
-
Hi Mimi,
I was diagnosed in 7/17 and had surgery 8/17 with ILC. I had a bmx with direct implants. I had sentinel nodes one each side removed and was clear. NO chemo or rads. Still taking tamoxifen. I have noticed on and off sometimes weird sensation in my right nipple(I had a nipple sparing mastectomy) on the affected side and sometimes i feel that my armpit is slightly swollen compared to the left. I get random pains which I have been wondering if its just me noticing or if it is side effect of the tamox. I had an onco appt. in Dec and all was good and just had a physical with reg dr and all is good. I have dizziness lately but then again I have allergies Idk, I feel like I am going nuts sometimes with these feelings and when I start to focus on them forget it!
I'm not any help with giving you an answer, but wanted to know you are not alone and I will be following your post to see how your appt. goes.
-
It's much more likely to be random body aches than anything to do with cancer. Just because you once had cancer, doesn't mean you won't get other totally unrelated weird stuff going on.
-
Mimi,
I too have been having some strange things going on: aching joints, carpal tunnel symptoms in both hands, but at the beginning of the year, I had what looked like frozen shoulder, but in both shoulders and just for a few days. Frozen meant that I could not lift, type, shower, etc. for a good two days, had pain so bad in the shoulders that I couldn't sleep and finally tried Tylenol Arthritis (Aleve and XS Tylenol didn't do diddly). The symptoms/pain got better day by day and I was able to go back to work.
Long story short, my MO isn't taking any chances and I'm having a full body bone scan this week. (Not a dexa). They'll be able to see if there's an infection, damage, more cancer, etc. My new reumatologist thinks it may have been a virus or infection and not a SE of hormonal med or frozen shoulder, for that matter.
Oh, P.S. Do you sleep on a regular bed? I haven't been able to do so for ages since my hysterectomy (which came before BC). I now sleep in a recliner. Otherwise, my arm would go "dead" and then hurt like a dickens once circulation resumed.
-
I'd definitely get your symptoms examined so you can get to the bottom of them. They sound frustrating!
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team