All about hand foot syndrome

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AngeliqueZ
AngeliqueZ Member Posts: 6

Hello, my friend is waiting for the diagnosis. She heard of chemotherapy and radiation therapy and has been very worried about side effects like hand foot syndrome and radiation dermtitits. I really hope to help her out and collect some information for her. So if some of you guys could share your experience, it would be very very helpful. I suppose she would like to know (me, too):

What will be the most tough waiting for her? like what kind of symptoms...

and will both 2 hands and both 2 feet be impacted? or not such severe?

Usually, she sleeps well at night and she really looks very bad if have a bad sleep, she would like know whether the severity will be the same at night as during the day..

what kind of effective products have you used?

One more question from her, if she has hand foot syndrome, which healthcare will she contact? dermatologist?


Thank you very much in advance. You guys are very informative!! Best wished for all of you!!!

Comments

  • Kamboka
    Kamboka Member Posts: 975
    edited February 2020

    AngeliqueZ: I'm not an expert but I did get hand/foot syndrome last year. I got it with taxotere. It usually only occurs with the taxane drugs and I don't think it's very common. Both my hands and feet were affected. All the skin peeled off of both. My joints were affected in the fingers which called lots of pain. I used ice a lot to try to help with the pain. I eventually went to the ER and they gave me pain meds and cortisone to reduce the swelling. My MO was not very helpful but I was not referred to a dermatologist. Eventually, the peeling was over in a few weeks and the pain got better with time as well. Weirdly, I lost my finger prints and had to sign into my phone with the code for a while until the new skin came in. One good aftereffect is that now my skin on my feet are not rough and scaly-even without lotion. All the many years of old skin was gone and replaced. It's like a painful derma peel.

    Good luck and hope that your friend does not get it.

  • AngeliqueZ
    AngeliqueZ Member Posts: 6
    edited February 2020

    Kamboka, thanks a lot for your sharing. Have your hands been more affected than your feet? You know, generally hands are not protected by gloves but feet have socks...I really don't understand why the MO did not refer you to a dermatologist if he cannot help you. Did you use some moisturizing cream?

    Good luck to you, too!!

  • GraceB1
    GraceB1 Member Posts: 213
    edited February 2020

    I also had hand/foot syndrome from taxotere. A dermatologist can't really do anything to prevent or help this SE. You lose the top layer of skin and it peals off. You're a bit raw underneath until the skin matures much like under a blister. i tried to keep it well moisturized. Really annoying but not every one gets it. Side effects fall on a bell curve with some people getting few and the others the full gauntlet. Try not to worry too much over things you have have no control over and haven't happened yet.

  • AngeliqueZ
    AngeliqueZ Member Posts: 6
    edited February 2020

    Thanks for sharing!! Which moisturizer is more effective than others? A professor on medicine told me that maybe oral Celecoxib or vitamin B6 or VE would be helpful. I know I cannot rely on only ONE oncologist, so I hope to know how your guys' MO help you...

  • Kamboka
    Kamboka Member Posts: 975
    edited February 2020

    My MO was not very helpful. I think I was using Udderly smooth or something like that on my hands and feet. As GraceB1 mentioned, it's like the raw skin under a blister after it peels off. I had one or two toes and one finger tip that didn't peels as well as the inner most part of my feet and hands. My only problem now is not hand/foot but neuropathy from the taxanes on both feet. It's a weird kind of burning/pain that I hope will go away or at least get better.

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