2017 Diagnosed-- A Place To Share "What's Next"

DodgersGirl — I'm well, thank you for asking.
Pain manageable with medication.

Several doctor's appointments first week of March. Orthopedic follow up for acetabulum fracture/radiation AND medical oncologist Treatment Plan. I'm struggling with decisions about what to do. Before radiation, MO said he probably would recommend Tamoxifen, Herceptin, and iBrance. Also have a consult scheduled with a cardiac oncologist to evaluate the Treatment Plan. When BC was diagnosed, it was discovered my pulmonary arteries were enlarged. In the last three years, they have tripled in size. No one can determine the cause

Hope all is good news at your MO visit today. Does the XGEVA shot hurt?

Ladies, I have been down and out for over a week with a sinus infection and work piling on. I've been trying to follow the thread, but just now able to hop on before I head out to teach a night class.

DodgersGirl--stable is good and hoping for continued success with the treatment (and that the the remaining pain goes away).

Pink_ as for mammos, I get the diagnostic every time now, since diagnosis. It seems like maybe that one should become standard, given how many women have dense breasts and the rate of breast cancer. I know itis more expensive, but still cheaper than breast cancer treatment. I feel like I get better exams now that I've had cancer.

Moth, glad that you have folks that are helping you these days. I don't know whether I've seen another posting since my last one. Hope you are doing okay.

Cheering for you, Dodgers. Nuke those veggies! Go girl! (hugging you)

Scrafgal - hope your sinuses are being kinder to you.

DodgersGirl - it doesn’t matter what you cooked, your DH is thrilled you felt up to doing it. Hope you’re continuing to build strength.

moth - thinking of you.

I'm hoping the same for you DG! Nausea just makes you feel miserable though. Hope that subsides soon. Could it be triggered from your pain meds? Kudos for walking around the house cane free. It may seem slow but you do seem to be improving let's keep that rilling

Fingers crossed for you DG. Hi to all.

Will be thinking of you DodgersGirl! And isn't it nice to feel Spring coming? We had zero snow but man has it been gray. A little sun really lightens my mood.

Positive news DG! Praying for good bloodwork tomorrow too! It does seem like you have a lot going on but your team sounds good and treatment plan seems to be falling into place. Stay strong. (Insert strong arm emoji)

Hoping for good outcomes for you, Dodge. Big hug. 

DodgersGirl — Happy Anniversary and Best Wishes for many, many more! I’m 3 years and 4 months from initial Dx and 4 months from MBC Dx, same date just three years apart. Next November I get to celebrate twice as much.

I had bloodwork last Weds when I saw onc and a CA 27-29 test was done. The result was 13. I looked back and it had been done twice before. My first visit to onc in 2017 and at one year follow up visit. Both times it was 15. I’m thinking it is a good sign as post surgery I hope I didn’t have any cancer left and now post rad I hope I don’t have any left. Will find out more after tomorrow’s PET.

Onc treatment plan is Tamoxifen and Herceptin. I go to cardio oncologist on Thursday for consult for my ever increasingly dilating pulmonary arteries. They’ve tripled in size since initial Dx workup discovered the right main pulmonary artery problem. Since then the left and the main have enlarged also

Well Damn

Friday the 13th brought news from Wednesday’s PET. Good news — nothing from the melanoma excised in December and no trace of metastasis in left acetabulum after radiation. Bad news — new mets at top of left iliac crest and L-2.

Not coping well with these new developments, especially with doctors cancelling appointments because of Coronavirus. Could y’all please share your experiences about ports, Herceptin and lumbar radiation Thank you.

Sorry to hear of the progression ByHisGraceTwice. Good news on the other two though. I can only comment on the port as well but I was very happy with mine. It seemed to make things easier for me as I have tiny veins. I had twilight sedation to put it in. It was not painful; a bit achy the first day. After that, although I could see it because I'm really thin, I never really knew it was there. It made the chemo infusion pretty easy. I had mine removed afterwards but could have kept it in and flushed every 6 weeks if I chose. I would have it reinstalled if I were to go through chemo again.