Did you tell family members :Breast cancer
Hi there
I recently been diagnosed with breast cancer last January 2020 and still waiting for some testing before chemotherapy start,.anyway I would like to ask ,did you guys tell family members after you been diagnosed with Breast cancer? I would prefer to keep secrets as per now, since I don't want them to feel sad about me then I will be sad too if I see them crying on me. I would prefer they don't know anything and treat me like a healthy person. Did anyone of you keep secrets ? Thanks
Comments
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Hi Sharifah ~
We (hubby and I) originally only told our kids and siblings before I had my lumpectomy. We did not, and still have not, told our parents who are older and a bit frail. I am waiting for my Oncotype results and thoughts on chemo (radiation is a yes, we already know). If we decide to do chemo, then I plan to tell them.
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I told people that I see in person, but didn't make a big Facebook post about like some people do. So a lot of people know, but not acquaintances I never see.
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Hi Sharifah,
First, no. I never seriously thought I'd keep the news a secret from everyone although that was an appealing thought right at the beginning for just the reason you say: I didn't want to be treated like a sick person. Plus, I'm a very private person and rarely told anyone anything really personal about myself. But I did take a lot of time to decide how to tell the different groups of people in my life, some who really had to know at least something about it like people at work.
I got my diagnosis right before Thanksgiving last year, and my husband, sister and I were going to be traveling to my other sister's for the holiday where most of the rest of the family was going to be. I told my husband immediately - never had any thought of keeping it from him, but did keep it from my sister (very hard to do on a 10 hour road trip on either side of a four day holiday) and the rest of the family until I had seen the breast surgeon and found out the details of tumor type and treatment plan. I knew that my parents would want to know that I had "a plan" and I didn't want to try to respond to questions I didn't have the answers to. So although it was a really hard visit with no one knowing and everyone acting or trying to act "normally," I know I did the right thing. The only part that I wish I could have done differently is to have told them in person, because by the time I had the information I wanted in order to tell them, we were all back home in different states, and I had to tell my parents and other siblings over the phone. Luckily, I'm very close to the sister who lives near me, so I told her first, then had her with me on the phone when I told our parents. It was hard, but we made it through OK.
Besides family, I told the people I see everyday as it came up or became obvious, but didn't make any kind of Facebook announcement, like gb2115 said. Over the past year, as I've gotten more comfortable with everything, I've told more people, still not a whole lot, but word gets around. Obviously, chemo made its own announcement, so there was that.
Anyway, it's different for everyone, but it seems to me that keeping something as big as this is going to be in your life completely secret will cause you stress in and of itself, I have to believe. If that's your choice, then of course, do it. But give yourself room to change your mind. You may find like I did that sadness is not the first emotion that other people feel for you, it's more like "Wow, I'm so sorry. What can I do to help?"
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I told only a small number of friends and family I see regularly and who I wanted for support. That did not include many family members. Eventually, as in a couple of years later, I did tell more family members but that was so that we all have a complete family health history. My parents lived 1500 miles away and I never told them. They were in their 80s and I knew that they would worry - and they had enough of their own health issues to worry about. It might have been different if they lived nearby and could see that I was okay, but being so far away, they wouldn't have that reassurance. So it seemed kinder to them, and it certainly was easier for me, to say nothing.
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I mentioned it on FB the day before my lumpectomy - but my FB friends are only family and real-life friends. Then I went out to lunch with some of those friends two days after surgery. It was my attempt to kind of normalize cancer and show that it's not always so scary.
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I don't think "secret's" is a term that applies here. You have the absolute right to move forward with treatment and tell ONLY those who you would like to have for support. Like Bessie - I told very few people. My grown son, my ex-husband and my BFF. I didn't want well meaning friends & neighbor showing up and ringing the bell with food I couldn't eat and waking me up if I just got to sleep. Once I lost my hair, I told a few more people that I saw on a regular basis.
Do what feels best for you. lt is YOUR cancer - not anyone else. Put yourself in FIRST PLACE - something most women don't do very well.
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I did an update on FB after the surgery to let everyone know I was fine. I may have been TOO chipper (or I have crappy family and friends) because the only person who brought anything by was my sister - and it was weird food that SHE eats on her self-diagnosed restrictive diet-of-the-month! 😁
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I did not announce it publicly but told my immediate family, and my cousins so they could have a better idea of their own risk. I also told two close friends, and my boss. Others eventually found out on account of thin walls and the fact that I dropped a lot of weight and lost a lot of hair.
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The only person who knows my full, true diagnosis is my partner because a) he was in the room and b) why wouldnt I tell him. Everyone else, which only includes my parents, siblings, and immediate line manager at work only know I have breast cancer but am undergoing treatment. That's it. Like you I didn't want to have to manage people's reaction, treat me differently, or give me the pity look like I am going to drop dead tomorrow.
I echo what someone else said above - its YOUR cancer and its up to YOU and ONLY YOU how you want to share the information or, what level you want to share the information. You don't have to share all the details if you don't want to or you can simply say its being managed and you have a wonderful team and support.
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I tried to wait till I had complete information to share (stage, grade, size, lymph node status, treatment plan as well as my own ability to explain it all). I never considered my dx to be "secret", but instead it was personal information that I chose to share as I felt was necessary, depending on who I felt needed to know and who didn't really need to know at all.
I'm not a person to share personal information on FB since anything posted on FB has a way of getting away from us in so many iterations, so I never felt that was appropriate for me. Instead I had my own personal blog on CaringBridge.org and updated a few select people that way.
Claire in AZ
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I waited until I had my plan in place and then told my family. I also told the members of two clubs I belong to and word quickly got out in the community. That was OK as I needed some support and then I was able to provide some as other were diagnosed.
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You know your family. Only you can decide if it would be more of a problem to tell them or not.
I have been very open with everyone from family members to colleagues at work. This allowed me to control the narrative and put a swift stop to any rumors and speculation. It also gave me the opportunity to educate people about stage IV and to bring the “monster” out into the light. However, as we are all different only you can decide what works best for you. Take good care.
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I did not share my diagnosis with anyone except my husband's close family, my parents/siblings and close friends, as well as my cousin who is a breast surgeon - she was very helpful in the early days and continues to be a source of support. I come from a very big family so keeping this private has been hard, but very important for my healing and having a "non-cancery life"
I agree that this is NOT a secret -- you should not feel bad for wanting privacy and I continue to tell myself that.
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I'm glad I don't do Facebook. I too, agree with it's YOUR cancer and up to YOU the who, when, what, where you disclose to family and friends.
My sister was diagnosed at age 50 in 2014. I was oblivious to BC and didn't know many particulars at the time. We knew when she was having surgery (BMX) who her surgeon was etc. and afterwards I clearly remember the words metastatic in an updated text a couple of months later when they discovered mets to her spine. To this day, she doesn't know where they are because she knew she would obsess over them (they found 2)-and her MO agreed to her request. Her current treatment is the Anastrozole and Xgeva shots. Our mother was in assisted living at the time, we had just lost our father earlier that year so all sibs agreed to not tell Mom. I covered for her whenever Mom asked where she was, but she did visit when she could. We hated the year 2014!!!! Mom passed in Feb. 2015.
I am glad my parents were gone by the time I was diagnosed in 2017. I had a brief panic attack going for the 1st biopsy. I felt like I couldn't breathe and couldn't get out of the car into the building. I texted my sister, she got me thru the door. She helped me a lot in the beginning and over these last few years I have learned a lot more about her journey, and she knows mine. I never thought about not telling anyone, since my husband, kids and my siblings are my world. I am glad to have many friends and relatives that care but I do not share as much information with them.
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Beesie:
I had some imaging a while back that I didn't tell my mother about until I had the results, which were negative, because I did not want her to worry. When I finally told her, her reply was "Honey! You should have told me sooner so I could worry with you!"
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I have a large family and what seems like thousands of aunts, uncles and cousins.
I was diagnosed in Dec 2015 and had to go through the whole shebang, chemo, surgery, and radiation. I chose to tell just one of my sisters (the strongest one). I still remember her reaction. She screamed the F word then said "right so what do we do to fix this". Very pragmatic is my big Sis which is what i needed. As other said i wanted to control the narrative so i did not tell other family members or friends. Do whatever will get you through this.
I did tell my line manager but no-one else at work. I organised my Chemo for Fridays and i was back in work most Mondays. The only extended time i took off work was to have the surgery. I just told work colleagues i was having a operation. Most were respectful enough not to ask for details. One that did i more or less told her to mind her own bloody business.
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hello all yes I told all family and friends so they could all pray for me to get thru this. Praise God I am this yr a 26 yr Survivor. msphil idc stage2 0/3 nodes 3mo chemo before and after Lmast wit reconstruction then got married was planning at time of diagnosis. Then 7wks rads and 5yrs on Tamoxifen.
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Thank you everyone to give me some opinions , really appreciated ❤️
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I did not tell my parents and family who live in another country. Did not want them to worry about me and my parents are old. I have told my friends
And my husband’s family members
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I m going to have chemo soon, but I can't tell them 😓 my dad technically not feeling well..so I am so worried if this could break his heart and my mom heart too..They live far away..
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Most of the time I believe I was right to tell my parents despite their age (late 70s at the time) and the fact they lived far away. They had both been in the medical field - my dad an OB/GYN and my mom a RN - so I knew they'd be pretty clear-eyed about it all but still fearful and worried. However, rather than overwhelming me with concern and offers to come visit, they have basically expressed the most interest in my hair or lack thereof. I'm pretty sure this is not the extent of their concern and is rather the only thing they can wrap their minds around enough to talk about, but I have to say I have been disappointed and a little hurt by this relative lack of outward care for my well being. Yes, I'm an adult married woman and I have a wonderful sister here who with my husband has been a rock for me, but they are my parents, and I guess I expected a little more from them. On the bright side, I can get away with responding to their "how are you feeling?" questions quite easily by just answering generically, "feeling fine!" or "doing great!" They never inquire further, never dig deeper. Again, I know intellectually that they are probably suffering with me and just can't express it, but that's not what I remember of how they used to take care of me when I was little.
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I told no one except my husband, kids, and sister. (And I wouldn't have even told them if I didn't have to!) I'm almost two years out, and still no one else knows. Just wanted to keep my normal lifestyle. Didn't want pity, tears, shock, meal trains, blah blah blah. Did it all myself, and would do it exactly this way again. ; )
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I just got diagnosed today and I am going to wait at least until after my first visit with the surgeon. If I told them now I would get endless questions and my sister would be freaking out and hovering over me and she has her own crisis to deal with. I'm not really close to them and would prefer to keep them at arms length. I will tell close friends and co-workers know; I had to call in yesterday for my biopsy and I'm a nurse in an outpatient specialty clinic. But I will wait until I have more info to tell my family.
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It took me a few weeks to come to terms with my diagnosis. I told people close to me first, then coworkers, then FB.
I felt secretive about it at first, and then I got more comfortable. It was easier for me to be very open about it. No weird interactions- just lay it out, make a joke. My friends and coworkers became comfortable talking about it and asking questions.
I had an incredible support group, and because I shared it on FB, I've been able to support 4 friends my age (!) who were diagnosed late 2019/early 2020.
Each of us will figure out our own best path. For me, not being embarrassed or ashamed has helped. I try to treat it like a knee injury or something- it happened to me, it wasn't my fault- could of happened to anyone.
My friends, family, and coworkers all treat me normally and I don't feel like anyone feels pity for me. They have shown me support and concern, but it doesn't color all of our interactions. I just feel that they care.
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told my children, siblings and two or three friends. Had to tell a cousin and her sisters after she was diagnosed. Never told my mom despite the fact that she was a nurse. Was at peace once she passed knowing I spared her the heartache. It’s been over ten years since my diagnosis and I have no regrets about how I approached whomI chose to tell. Added relief...not on Facebook. Never had to deal with that! Amen!
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It seems a lot of people here are saying wait until you know more, and I think that makes sense - it allows you to control the narrative.
My own personal experience was that telling people was a godsend. The fact is treatment will likely make you tired, and not your normal self. But your true friends and family will rally to your side.
I was happy to do chemo by myself, with a bunch of movies on my computer. But I knew I always had someone willing to sit with me. And I had a blast shopping for a wig with a friend - made an emotionally draining task actually fun.
If I didn't feel like going out, friends understood. They would just come over for tea, or bring food and just sit and talk. They knew not to be insulted if I was looking disinterested - understood I had just hit my limit for that day. The mothers of my son's friends (some of whom I barely knew) took him under their wings like doting hens. Fed him wonderful meals, took him on trips, brought him into their families and gave him a sense of normalcy when he most needed it. And my co-workers were amazing. Taking on extra responsibilities gave my staff a sense of accomplishment, and a concrete way of helping me get through it. It helped us all bond as a team, and three years later we still all have each others' backs.
I know I was incredibly lucky, especially at work. And some people will inevitably disappoint. Everyone is different in their need for privacy, so tell people only when and if you're ready, and only as much as you want. You can see how different people react, and edit your message accordingly.
I think many here would say waiting to start treatment is the toughest time. Sending you only the best wishes!
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