Anyone decide on prophylactic Mx after having UMX?
Comments
-
Hello there. As you can see in my signature I had an UMX in October 2018. They were able to do direct to implant over the muscle. I went in August 2019 for my first yearly mammo of my remaining breast. They found two areas of calcifications and they biopsied one area. That came back as a sclerotic fibroadenoma. The anxiety was crushing and then waiting for the 6 months follow up on the other calcs was rough. I considered a prophylactic Mx of the left after the biopsy in August. I just wanted to wait and see if my anxiety calmed after my follow up. That was February 14 and they said the calcs are stable. My BS wants every 6 months imaging alternating MRI with mammo. I just don’t think I can handle it emotionally. I am not much of a “warrior” when it comes to the mental side of survivorship.
I just wanted to see if anyone else chose to go back later and really just talk about it with people that truly understand. My surgeon was clear that it is not medically necessary but she said it is a reasonable decision and she supports it. Thank you.
-
Yes, I did that, and I think it is not uncommon.
When I had the initial mastectomy I was not given the option of a double mastectomy, and didn't even cross my mind. However, months after getting the first one removed, I realized that I didn't trust screening (very dense breasts and my cancer didn't show anywhere including MRI), and didn't want 20 more years of breast screening. My MO and BS and PS were very supportive. Easy surgery compared to the initial mastectomy, because the prophylactic one didn't involve axillary node dissection. Never regretted it. I feel very sorry when I read cancer veterans suffering through the anxiety of mammograms and calls back and I am glad I won't have to do that ever again.
-
I stomped my feet and demanded a double up front. I'm so glad I did because they found all sorts of things in the "good" breast. I agree with laughing gull. How do people stand the anxiety? That said, you are under 50 and I was over 60. That likely makes you think harder.
-
Hi, I was suggested for lumpectomy and I asked for double mastectomy 4 months ago. Yesterday I had oophorectomy since I didn't want Lupron shots anymore and because of my type of cancer, ILC, it tends to spread in ovaries. I have asked for both surgeries in order to reduce amount of worries, tests, etc. I was only recommended for Lumpectomy and Letrozole that I am currently taking it.
Categories
- All Categories
- 679 Advocacy and Fund-Raising
- 289 Advocacy
- 68 I've Donated to Breastcancer.org in honor of....
- Test
- 322 Walks, Runs and Fundraising Events for Breastcancer.org
- 5.6K Community Connections
- 282 Middle Age 40-60(ish) Years Old With Breast Cancer
- 53 Australians and New Zealanders Affected by Breast Cancer
- 208 Black Women or Men With Breast Cancer
- 684 Canadians Affected by Breast Cancer
- 1.5K Caring for Someone with Breast cancer
- 455 Caring for Someone with Stage IV or Mets
- 260 High Risk of Recurrence or Second Breast Cancer
- 22 International, Non-English Speakers With Breast Cancer
- 16 Latinas/Hispanics With Breast Cancer
- 189 LGBTQA+ With Breast Cancer
- 152 May Their Memory Live On
- 85 Member Matchup & Virtual Support Meetups
- 375 Members by Location
- 291 Older Than 60 Years Old With Breast Cancer
- 177 Singles With Breast Cancer
- 869 Young With Breast Cancer
- 50.4K Connecting With Others Who Have a Similar Diagnosis
- 204 Breast Cancer with Another Diagnosis or Comorbidity
- 4K DCIS (Ductal Carcinoma In Situ)
- 79 DCIS plus HER2-positive Microinvasion
- 529 Genetic Testing
- 2.2K HER2+ (Positive) Breast Cancer
- 1.5K IBC (Inflammatory Breast Cancer)
- 3.4K IDC (Invasive Ductal Carcinoma)
- 1.5K ILC (Invasive Lobular Carcinoma)
- 999 Just Diagnosed With a Recurrence or Metastasis
- 652 LCIS (Lobular Carcinoma In Situ)
- 193 Less Common Types of Breast Cancer
- 252 Male Breast Cancer
- 86 Mixed Type Breast Cancer
- 3.1K Not Diagnosed With a Recurrence or Metastases but Concerned
- 189 Palliative Therapy/Hospice Care
- 488 Second or Third Breast Cancer
- 1.2K Stage I Breast Cancer
- 313 Stage II Breast Cancer
- 3.8K Stage III Breast Cancer
- 2.5K Triple-Negative Breast Cancer
- 13.1K Day-to-Day Matters
- 132 All things COVID-19 or coronavirus
- 87 BCO Free-Cycle: Give or Trade Items Related to Breast Cancer
- 5.9K Clinical Trials, Research News, Podcasts, and Study Results
- 86 Coping with Holidays, Special Days and Anniversaries
- 828 Employment, Insurance, and Other Financial Issues
- 101 Family and Family Planning Matters
- Family Issues for Those Who Have Breast Cancer
- 26 Furry friends
- 1.8K Humor and Games
- 1.6K Mental Health: Because Cancer Doesn't Just Affect Your Breasts
- 706 Recipe Swap for Healthy Living
- 704 Recommend Your Resources
- 171 Sex & Relationship Matters
- 9 The Political Corner
- 874 Working on Your Fitness
- 4.5K Moving On & Finding Inspiration After Breast Cancer
- 394 Bonded by Breast Cancer
- 3.1K Life After Breast Cancer
- 806 Prayers and Spiritual Support
- 285 Who or What Inspires You?
- 28.7K Not Diagnosed But Concerned
- 1K Benign Breast Conditions
- 2.3K High Risk for Breast Cancer
- 18K Not Diagnosed But Worried
- 7.4K Waiting for Test Results
- 603 Site News and Announcements
- 560 Comments, Suggestions, Feature Requests
- 39 Mod Announcements, Breastcancer.org News, Blog Entries, Podcasts
- 4 Survey, Interview and Participant Requests: Need your Help!
- 61.9K Tests, Treatments & Side Effects
- 586 Alternative Medicine
- 255 Bone Health and Bone Loss
- 11.4K Breast Reconstruction
- 7.9K Chemotherapy - Before, During, and After
- 2.7K Complementary and Holistic Medicine and Treatment
- 775 Diagnosed and Waiting for Test Results
- 7.8K Hormonal Therapy - Before, During, and After
- 50 Immunotherapy - Before, During, and After
- 7.4K Just Diagnosed
- 1.4K Living Without Reconstruction After a Mastectomy
- 5.2K Lymphedema
- 3.6K Managing Side Effects of Breast Cancer and Its Treatment
- 591 Pain
- 3.9K Radiation Therapy - Before, During, and After
- 8.4K Surgery - Before, During, and After
- 109 Welcome to Breastcancer.org
- 98 Acknowledging and honoring our Community
- 11 Info & Resources for New Patients & Members From the Team