Anyone else have just one small bone mestasis

dlittkemann
dlittkemann Member Posts: 234
edited February 2020 in Stage IV/Metastatic Breast Cancer ONLY

Hi

I posted before because this is new for me and was needing encouragement badly, some happy stories, and so many helped me out w kind words. Curious if anyone else just had one small bone met and if able get it w radiation? I have a 5 year old. Need be here for him for many more years yet🙏🙏🙏🙏🙏 thanks in advanc

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  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited January 2020

    Hello,

    That would be me! I had a biopsy confirmed 2 cm bone met to my upper femur. I had rads to the area which rendered it necrotic. I have been NEAD ever since and that was 8 1/2 years ago, my only tx has been the AI's. I am not a doctor nor do I have a crystal ball, but I think you have lots of reason to be hopeful. Please feel free to ask me anything!

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  • dlittkemann
    dlittkemann Member Posts: 234
    edited January 2020

    happy for you and so glad to hear that!!!!! Praying I have same outcome as you. Thanks for the encouragement xox

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  • Glenna56
    Glenna56 Member Posts: 25
    edited January 2020

    hi,

    I was just dx with Mets to bone. Hip, pelvis and spine. I’m about to start treatment but is undecided which to take. I was offered Faslodex with Ibrance, or entering a trial in phase 2. I can take the trial drug by itself or with Ibrance. Any advice?

    Glenna

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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited January 2020

    dittke- MD Anderson reported about 25% of their single bone met patients ended up cured, and that was years ago, before Ibrance came out, etc. There will be micromets that are too small for the scans to pick up, so as exbrn sez, get a good doc to radiate and kill the visible met, keep taking your meds (!!) and you have every reason to anticipate a great outcome



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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited January 2020

    Glenna- Were you still taking femara (or anything) when the mets were discovered? We can't really comment without knowing what is the other drug in the trial (or post a link to the trial)

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  • dlittkemann
    dlittkemann Member Posts: 234
    edited January 2020

    Thanks for info. Sadly being TNBC no drugs that I can take, that I know of for now. Just hope they get it w radiation and no more for a while 🙏🙏🙏🙏🙏

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  • Wishwishbone
    Wishwishbone Member Posts: 3
    edited January 2020

    Ask your doctor about Xeloda, which I have seen people with Triple Negative take. Wishing you the best possible outcome!

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  • raraJ75
    raraJ75 Member Posts: 14
    edited January 2020

    I have one bone met in my spine. I have had surgery and radiation. I am about to start Ribociclib. I have turned my brain to mush trying to think about my treatment plan!

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  • Glenna56
    Glenna56 Member Posts: 25
    edited February 2020

    I was on arimidex for 8 years. Also the trial drug does not have a name as yet. It is protocol No. ZN-c5-001. I’m taking it with Ibrance

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  • Glenna56
    Glenna56 Member Posts: 25
    edited February 2020

    https://clinicaltrials.gov/ct2/show/NCT03560531

    Here is the link to the clinical trial.

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