Is anyone else avoiding soy (and another stupid question)?

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JACK5IE
JACK5IE Member Posts: 760

My doctor told me to avoid all soy products, so that's what I have been doing. Does anyone else avoid soy? If so (and here is the stupid question), do you also avoid burning soy candles? I love burning candles all year long. Having a candle lit in the house brings me some comfort and peace. Recently I've been reading into how bad paraffin wax candles are for you because of the chemicals they emit. So I'm looking into healthier options, which there aren't many, but one is soy candles. Do you think they would emit 'soy' or something that could be harmful for someone trying to avoid soy? As I type this it sounds even dumber. 😕

Comments

  • BevJen
    BevJen Member Posts: 2,523
    edited February 2020

    Unfortunately, this is where our mind goes.... sad but true. I do not ingest any soy products. But I like soy candles because they seem to burn longer. I guess technically you could absorb some soy by burning the candles, but I really don't know. It's not the same, it would seem to me, as drinking soy milk or something? Maybe a more scientific mind can reply.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2020

    Yes, I avoid eating soy. Interesting thought about the candles. Never heard or read if they would increase estrogen production. I have heard the bad things about paraffin....I've switched to using essential oil diffusers.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2020

    Beeswax candles!

    Yes, i avoid soy because I think it may be good for some and bad for others. One of the big studies saying soy is ok is from China, and I am not of Chinese decent. Might there be genetically-based differences in metabolism? Or differences due to childhood consumption or other elements in the diet? Also, whole soy foods are probably different from soybean oil or soy protein isolate (in energy bars etc).

    https://foodforbreastcancer.com/amp/food-list.php

  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2020

    Hell, I was avoiding soy for YEARS before dx, and that didn't seem to make a difference. But I keep it up, and avoid obvious soy (milk, tofu, isolate, sauce) and soy additives where possible. It really IS in everything though these days. I do like roasted edamame on occasion, but figure that is more vegetable form and not super concentrated like a pressed bit of milk would be.

    A few weekends ago I was at brunch and ended up having scrambled tofu because the other options had egg preparations I don't like and they wouldn't amend. I figured a very rare bit of tofu wasn't going to hasten my demise. MOs didn't say anything about avoiding soy to me.

    I think Shetland Pony is on to something about the beeswax candles. Never thought about soy being released by a candle, however I can't imagine it would be a lot and if it was then you would have to inhale quite a bit for it to matter.

  • JACK5IE
    JACK5IE Member Posts: 760
    edited February 2020

    Thanks for your responses everyone. I hope we get more.

    ShetlandPony...I was looking into beeswax as well but the same problem is there for that too. Propolis is something breast cancer patients should avoid and that is in beeswax. Ugh...I just want to light a stupid candle and even that is a problem.

    Also, I use https://foodforbreastcancer.com/amp/food-list.php all the time. Very informative site.

  • T-Dahl
    T-Dahl Member Posts: 20
    edited February 2020

    The whole soy thing has me going crazy. I have heard that if you are hormone + to stay away from soy products. Okay. What about soy lecithin? I don’t even know what it is but it is listed on A LOT of high protein foods? Anyone have any suggestions about consuming that?
    Thank you.

  • JACK5IE
    JACK5IE Member Posts: 760
    edited February 2020

    T-Dahl...I've been avoiding all soy the majority of the time (sometimes it can't be avoided). Here are a couple of the pages from the above mentioned website regarding soy consumption.

    https://foodforbreastcancer.com/foods/soy-protein-isolate

    https://foodforbreastcancer.com/foods/soybean-oil

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2020

    I suspect we inhale a lot more carcinogens driving down the road than we do burning a candle. My inclination is to avoid petroleum-based candles and just enjoy the soy or beeswax ones. Relaxation and happiness are good for us. Not to complicate things, but I do think it is good to use candles with lead-free wicks.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited February 2020

    When I had a hysterectomy years ago due to estrogen-fueled endometrial cancer, I was told to avoid soy protein, but other soy was okay within reason.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2020

    I don't even know what foods contain soy. I eat an average diet with minor changes since bc. It includes meat and desserts. I’ve been living with mbc since December of 2010. I burn Yankee candles. I don't mean any disrespect, but I would cry if I had to eat tofu in place of eggs. My son's girlfriend and several of my younger relatives love the vegan diet, so I've tasted some of the foods from that eating lifestyle and it is definitely not for me.

    Shetland Pony makes a good point about every day carcinogens in our environment being more harmful than candles and how relaxation and enjoyment are good for us.

    I was recently on Verzenio six months. It affected my appetite and taste more than anything ever in my life including iv chemo. Lost 15 lbs in 6 months. Due to severe side effects, my onc told me this week to stop the drug. The not being able to enjoy food was a big sacrifice for me while I took Verzenio to see if it helped. But I look forward to the return of the normalcy of eating.

    Sometimes I feel we bargain with ourselves “If I stick to this strict diet, bc will not progress."

    Society also wants to victim blame women for getting bc. “You're not eating right, thats why you got sick." I choose not to buy into certain trains of thought. Life is too brief.


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2020

    I'm assuming soy is thought to fuel estrogen fed bc which would be the reason to not eat it.

    The other side of that coin, and one not nearly discussed as often as diet,is the proliferation of products we apply to our bodies on the outside, and their effects, being absorbed into the skin, they might have on us. These products contain so many chemicals, with parabens being one of the more prominent ones that supposedly mimics estrogen and should be avoided. How many oncologists promote this kind of scrutiny? Think of all the things applied to the body, many on a daily basis:

    Hand soap, body wash, shampoo, conditioner, hair color, hair styling products, hairspray, moisturizer, foundation, powder, face makeup, facial masks, sunscreen, hand cream, body lotion, nail polish, polish remover, toothpaste, contact solution, perfume, deodorant, sports cream.....

    Yet it's the diet that is always targeted.

  • JACK5IE
    JACK5IE Member Posts: 760
    edited February 2020

    Thanks for all the replies on this topic. Keep them coming.

    I do limit any intake of soy, but it is in almost everything which is why the soybean business is so prosperous. I'll continue to limit it, but I'll try not to freak out if I have a dessert or a cracker that may have soy in it.

    I do try to watch the products I use on my body too. I've been using Attitude Living products that seem very healthy. But I find myself going around in circles sometimes and stressing myself out if I find an ingredient that is questionable. That's where I am with the soy candles at this point.

    I think I read too much into what can cause cancer, specifically breast cancer and I am trying everything in my power to do the best I can to live as long as I can, but by doing so I am causing myself unneeded stress. So from this point onward, I'm stopping this nonsense. I'm still going to try to do what is healthiest, but without stressing myself out. So, I'm going to light my soy candles, I'm going to eat a dessert if I want, I'm going to put a little sugar in my coffee, I'm going to put mascara on my sparse eyelashes even if it has a questionable ingredient, I'm going to have an occasional cocktail, etc. I have to live while I'm living.


  • Anonymous
    Anonymous Member Posts: 1,376
    edited February 2020

    jackie thats what I do. I try to avoid processed foods in general , many of which contain the soy protein isolate, but I dont freak out over an occasional snack or something that might have it. The other night I ordered a poke bowl that had a few edamame beans in it...I ate them all, lol. But I stopped buying the protein shake with soy protein that I used to have for breakfast every day. I can enjoy breakfast just fine without it.

    I try to be careful with cosmetics too, but again, I dont worry about using a hand lotion or something if Im not in a place where I can check the ingredients. I havent used hair dye since my diagnosis, I still wear wigs, but I just got a new haircut and I might try dyeing my hair again just for fun.

    I think of myself as careful but not obsessed.

    PS tofu is soy, so vegan or not I wouldnt eat it. I always thought it was gross, anyway. : D

    Happy Valentines Day everyone <3

  • JACK5IE
    JACK5IE Member Posts: 760
    edited February 2020

    Olma...good for you!

    Happy Valentine's Day to you as well and to everyone else here!

    Image result for happy valentine's day images

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited February 2020

    That's it, JACK5IE and Olma. Set up your life and pantry so it is generally healthy, then relax and enjoy yourself as much as you can.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited February 2020

    Happy Valentine's Day to all!

    Jackie, we can only do so much. You're right about not stressing continuously about every little thing. I think about the multitude of people who eat and drink anything and slather their bodies with everything yet do not get breast cancer. It gets frustrating if I think too long about it.

    Over 20 years ago, my neighbor gave birth to twin girls. One of the girls was born with a malignant brain tumor. She survives, but her intense treatments affected her mental development. Even tho she's in her 20s, she remains very childlike. Their whole family treats her like a princess, it's very sweet.

    My neighbor lived as clean a life as anyone I know. No drinking, smoking, drugs. How the hell does a fetus in the womb develop malignant cancer of the brain and her twin is born healthy, and the young mother was so healthy?

    There are too many variables of this disease, of cancer. We could drive ourselves mad trying to sort them all out.


  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited February 2020

    hey folks! Your local integrative oncology nutritionist here!

    There are no clear links directly connecting soy to cancer in humans. This has not been established in any clear cut studies at this time.

    That being said, the way Americans ingest soy products in the USA is very very different than in Asian countries. In japan, tofu is added to miso soup in teeny tiny little cubes. They eat natto which is fermented soy beans to help aid digestion and for healthy gut bacteria.

    In the USA, people eat tofu like a steak. Like it's the main dish. So many vegetarian alternatives are made with soy isolates and soy proteins. It is NOT soy that is the enemy, it is how we consume it. And that isn't even something that has been proven.

    my take on soy is: avoid GMO soy products and mostly stick to fermented soy products which include miso, tamari, natto, tempeh, etc.

    It's the highly processed foods (and a lot have soy in them) that are troublesome.

    Love,

    Philly

  • NineTwelve
    NineTwelve Member Posts: 569
    edited February 2020

    No one told me to avoid soy. I eat tofu about once a week. I gave up cow's milk instead. Dairy products, it turns out, account for 80% of the estrogen consumed in the human diet.

    I burn any candle I want. I drink alcohol.

    In my experience, massive life stress is the single predictor I have noticed whenever my cancer has progressed. I do whatever I can to reduce worry, anger, and stress, and I don't worry about every little thing that goes in my mouth.

  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited March 2020

    9-12; Agreed! All the headlines last week said MILK gives you breast cancer, WTH?, so I went straight to Starbucks for a yummy soy misto! Soy has plant-estrogens that can signal cancer cell growth, although much more weakly than human estrogens, I don't avoid soy in foods but wouldnt take it in a supplement or eat it daily. No idea how your body could pick up plant estrogens from a burning candle!!

  • walkingmydestiny
    walkingmydestiny Member Posts: 28
    edited March 2020

    My Dr./Surgeon told me to avoid soy of any kind so I would personally include taking into your lungs the scent of soy candles, sorry about not posting it this way first I never really met eating soy candles that would be crazy.

    Maybe you can buy some battery ran candles, I have a few and really like them. Bought them at

    costco.

  • moth
    moth Member Posts: 4,800
    edited March 2020

    I'm vegan and I do not avoid soy.

  • cowgal
    cowgal Member Posts: 833
    edited March 2020

    I limit exposure to soy both ingested and topical. My original MO, who retired back when I was battling BC the first time, told me to avoid soy but to not go crazy over it. Here is an interesting chart about estrogen in different foods:

    Image result for beef estrogen soy chart

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited March 2020

    You aren't eating the candles. Why would you avoid them?

  • exbrnxgrl
    exbrnxgrl Member Posts: 12,424
    edited March 2020

    For a short time after my stage IV I imposed far too many dietary restrictions upon myself. No soy, no sugar, etc. I hated restricting my eating as I had a healthy diet to begin with. I argued with my younger dd who became the diet police. I was stressed and my relationship with my dd was tense. It didn’t take much reflection to realize that this is not how I wanted to live my life. I eat as well as I can but never feel guilty about indulging in treats when I want them. I try to use body products that do not contain harmful ingredients but don’t freak out if they do. Soy candles? Seriously, I am not going to give even a moments thought to that. I know my relaxed approach is not for everyone but it has allowed me to live a reasonably normal stress free life (as far as my diet is concerned). I have been NED for over 8 years, still work full time and never stress about food. Not typical for stage IV but it works for me.

  • redhead403
    redhead403 Member Posts: 125
    edited March 2020

    I don't like Soy, so no problem

  • moth
    moth Member Posts: 4,800
    edited March 2020

    op - there are no stupid questions. This stuff is sometimes complicated.

    re the candles - fwiw, I think there are some studies showing paraffin candles are probably not a good idea because they do put out some weird chemicals when they burn. Also, the artificial scents themselves are sometimes considered toxins. The wicks can apparently also be contaminated with heavy metals.

    Also I think it depends how much you use them. Occasional use is one thing but if you're exposed to it all the time, that's a different thing. My guess is that soy or beeswax candles which are locally made by reputable people are fine.

  • BlueGirlRedState
    BlueGirlRedState Member Posts: 1,031
    edited March 2020

    Soy or not to Soy. I wish there was a clearer answer. For years I've been told that soy as food (tofu, tempeh, beans) are fine, but no soy supplements, no soy oil, and maybe limit soy milk. Several servings week ok as food. Nutrition, the only subject more contentious than religion. I usually eat several servings/week when avoiding/limiting meat. I eat a lot of dairy, eggs which are also on some hit lists. 3 articles seem to have different conclusions, might also depend on if cancer ER+ or ER-. and what drugs a person is taking. https://www.breastcancer.org/research-news/soy-may-offer-benefits-for-hr-neg-disease https://www.breastcancer.org/research-news/soy-may-turn-on-genes-linked-to-cancerhttps://foodforbreastcancer.com/foods/genistein-and-daidzein

    Ibrance and Arimidex. Supplements include Mg, D, biotin, C, Turmeric(Curcumin), Gluchosamine-Chondroitin,BoneUp(multi with Coligen),Thorne (another multi), Melatonine(at night).

    2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinel node removal, negative. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.

    2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinel nodes remove, negative. Cold Capping using Chemo Cold Caps (DIGNICAP not available). Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months due to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018

    10/2018 noticed stiffness and some trigger finger again. Was eating meat a lot more (daily) than normal. Usually 1-2 /wk. Have cut way back on the meat, seems to help, but one finger still very prone to trigger finger. Trigger finger seemed to be getting better, but now 4/2019 seems worse, is it the break from added turmeric to meals?

    6/18/2019 Noticed Swelling in R-arm, opposite side from where lymph nodes removed. . Could have been swelling earlier but wearing long sleeves. Ultra sounds for clots, Trip to urgent care. They did ultrasound, concerned that there might be a clot, there was not. 7/2/2019 lymphatic therapist recognized that there was something very wrong and sent me back to the DR.

    8/2019 CT, Breast/chest , neck/thyroid ultra sound

    9/2019 DR ordered biopsy, said it could be lymphoma, cancer, benign lymphatic. Biopsy R-axilla. Cancer. Genetic test showed no known markers (20+ looked for)

    9/29/2019 PET scan, no indication of spread. Arimidex and Ibrance prescribed to shrink tumor prior to surgery, if needed.

    10/2019 – Stopped Tamoxifen. Started Arimidex and Ibrance. Brand name Arimidex so far does not seem to have the SEs that generics did, but stiff/trigger finger on left middle finger returned.

    1/2020 CT showed tumor in Axilla shrunk (hooray!!) from 2.3 to 1.1 but picked up something in lower bowel. DR consulted a DR I saw in 2011 who compared it to 2011 image, said they had not grown, but one has changed and was starting to obstruct.

    2/14/2020 Happy Valentine's Day. Surgery removed to remove, waiting for pathology. 2/25/2020 – Pathology. Not cancerous. Hooray


  • wanderweg
    wanderweg Member Posts: 549
    edited March 2020

    My integrative care doc encouraged eating soy, but in more whole form (tofu, edamame, miso - but not the more processed soy meat-substitutes or soy supplements/protein powders. It fits with my general belief that the more whole food your diet, the better.

    I tend to check things with NIH/NCBI because it's a research-focused information source. There are a lot of studies on soy and breast cancer, here's just one (I often skim ahead to the conclusions):

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2981011/

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