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PamClark
PamClark Member Posts: 4
edited February 2020 in Just Diagnosed With a Recurrence or Metastasis

I don't know what to feel or how to react. On January 23, I was basically told I was soon to die of mets to the brain. The diagnosis was dire.

More tests coming, as expected. Spinal MRI with contrast, spinal tap, full torso scans.

February 10th: The neuro-oncologist is not in agreement with the MRI doctor. I had a full neuro exam on Monday and "passed" ?!?

She doesn't know why my vision is deteriorating so rapidly. But she seems to be thinking that the brain MRI results may not be mets?!?!

I am so overwhelmed. The next MRI is Jan 26 but I can't get to the hospital for 5:00 a.m. No vehicle, no driver, no family. I have to call tomorrow and reschedule it.

Do I dare hope? I was stage 2b, grade 3, ER/PR + , Her2 -, two types of cancer, 3.5 and 2.5 main tumors.

How am I a) supposed to feel, and b) live in anticipation -again!- for two more weeks?

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    Pam -wishing you good luck with the new tests. What a cluster....

    If there is a hotel close by the hospital that isn't too expensive, maybe consider spending the night there before the MRI that's already scheduled so you don't have to wait longer. Some hotels even have shuttle service to close medical locations.

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