2013 Survivors!!!

Susannah, yes, I am. The pain was getting unbearable, and DH is not ready to give up that activity yet, unfortunately, so something had to be done. I researched on here and one person was told by her MO at - I forget which one but a major well known cancer center - that estriol was safe, but estradiol was not. I found a cream that has estriol and use a small amount daily, it has really helped a lot.

Not long ago there was a study that said that even Premarin cream (which I believe is estradiol) applied vaginally did not raise the risk of cancer recurrence. So I'm not concerned about it. It was a quality of life issue, for me.

Hello, my favorite survivors. I also still have alerts on this site. Always nice to hear someone pop in ...

I’m still retired and loving every minute of it! No recurrences on my end. Once I get rid of my winter cold. I will be great!

Love you all

Hi my lovelies! I'm quickly approaching 7 years NED. It's been a while since I've been back on the boards and as soon as I logged in I started having an anxiety attack. Although, I don't have any issues, the fear came flooding back.

Since the last time I've been on my daughter started High School, and in 3 short months, she graduates, I can't believe that. I'm a new aunt to 4 new babies in 3 years, my brother had a baby on 6/11/15, my sister had twins on 6/12/15 and then that same sister had another baby on 7/25/18. I'm very blessed to be a part of their lives. Because my name is difficult for them to say, they call me Aunt Cici and it's the best. My husband and I celebrated our 17th wedding anniversary in October, we are wanting to take another trip, we just don't know where.

For those of you on AI's, have ya'll heard of the Breast Cancer Index test? It's different from the Oncotype, They use the tissue from your initial breast biopsy to determine if you can go off your AI earlier than 10 years. I go next Friday 2/22 to get those results. I'm hoping I'm able to get off them. I took a 6 month vacation from it to see if my liver enzymes would go down and they did. My liver enzymes were up to 110 and in 6 months they lowered 39. Hope you all are doing well I miss ya'll!

Hi my lovelies! I'm quickly approaching 7 years NED. It's been a while since I've been back on the boards and as soon as I logged in I started having an anxiety attack. Although, I don't have any issues, the fear came flooding back.

Since the last time I've been on my daughter started High School, and in 3 short months, she graduates, I can't believe that. I'm a new aunt to 4 new babies in 3 years, my brother had a baby on 6/11/15, my sister had twins on 6/12/15 and then that same sister had another baby on 7/25/18. I'm very blessed to be a part of their lives. Because my name is difficult for them to say, they call me Aunt Cici and it's the best. My husband and I celebrated our 17th wedding anniversary in October, we are wanting to take another trip, we just don't know where.

For those of you on AI's, have ya'll heard of the Breast Cancer Index test? It's different from the Oncotype, They use the tissue from your initial breast biopsy to determine if you can go off your AI earlier than 10 years. I go next Friday 2/22 to get those results. I'm hoping I'm able to get off them. I took a 6 month vacation from it to see if my liver enzymes would go down and they did. My liver enzymes were up to 110 and in 6 months they lowered 39. Hope you all are doing well I miss ya'll!

Hey Ladies,

I find myself drawn to this page in times of need. Back undergoing tests due to severe pain in right shoulder and arm...same side as before...I had ultrasound yesterday, where they discovered a mass on my neck. Because of the position they were unable to biopsy, so CT scan booked for 27th. And there I am again, back in that dark place ...waiting.

Sorry for bringing you down ladies.....but I needed to vent....I am so angry!.

Onc has told me they cant say what it is yet but went on to tell me they had more drugs and Chemo available.....which didnt exactly settle my nerves!!

So can I ask that you say a prayer for me in the hope this is just a benign tumor or left over debris from the last round of treatment.

love and Hugs

Ireland

Just a quick update....unfortunately the CT has now confirmed I have stage 4 mestastic Breast Cancer in lungs and chest. I start the rounds of Dr appointments in the next few weeks to see what is available, but as I have become resistant to the hormone blockers, my choices appear to be limited.

Thank you ladies for the years of comfort I got from this page and wish you all the very best for the future.

Keep up the good fight my lovelies.xx

Ireland there are other options. I know it is not what any of us ever want especially those of you are 7 years + since the original diagnoses.

I lasted 4.5 years on AI's and since the summer of 2017 I have been on a few chemos and with crazy neuropathic pain I almost gave up a few months ago. I was on crazy amounts of narcotics and it was die or stay in bed not moving much. Luckily I was a candidate for an embedded intrathecal pain pump which was a miracle. I still have no use of my right hand but the chemos have done something. I quit chemo in November (my choice) and had a CT this week and there is no progression.

So Ireland see what the options are and we will be cheering you on.

Chrisrenee, so good to see you here with such good news. Susannah and Believe it was so good to see your names.

Marian

I took tamaxaphen. No big deal. I had her/2 and it was what was the protocol. I did lose my hair. The good thing is that I don't remember a lot of the down days. My hair was so much fun coming back in and I actually lost a lot of weight with this drug. It took about 3 days to kick in and then I'd just sleep all day like a baby. I had no help so I drove myself to and from treatment. I've heard the cold caps work. From what I went through the best part was the adavan they give first and I slept through the whole.9 hours of treatment every 3 weeks and the Herceptin for a year every 3 weeks. I thought about it like a horrible job I'd have to work at for a year. I never let cancer own me. I wouldn't let it into my soul. I'm out 7 years now with no libido...Just wonderful.....

Websister, it has been a long time since you and I had coffee in Calgary while I was there on a visit. Thanks for reading my post and you will know where I am at. It is not great but on the other hand, it could be worse. For anyone else who would like to catch up, the link is just above treatments etc.

Ireland20 what is the treatment decided on after you got the CT results?

Marian

It's always so hard to hear the less than desired outcomes of breast cancer - There but for grace of god go all of us - But I am impressed by each persons outlook and positivity as they face this next hurdle. So far so good for me on the cancer front - On the personal front not so much - a very unexpected divorce (shocking actually) after 30 years of marriage and a train wreck of all my retirement plans. But it's the hand I was dealt - I hope I can get my life back on a new path and begin to "enjoy" my retirement and the rest of my life - it's too short to waste.