Can 3D mammogram miss cancer

Options
EuroAmerican
EuroAmerican Member Posts: 27

Hi,

I go to a local cancer center for all my appointments because I had early stage of different cancer 4 years ago at age 39. My mom and her sister both had breast cancer in early 50s. Genetic testing comeback negative. I go for annual 3D mammogram to the breast cancer clinic. My MD is one of the head of the clinic. My mammogram was clear. But I do feel a small lump. I had ultrasound and was told it’s a cyst. It feels very deep in the breast and about 1cm. Can 3D miss the cancer? I can go for MRI in 6 months. Would that show it for sure? Thanks

Comments

  • Annabelle2
    Annabelle2 Member Posts: 44
    edited February 2020

    Hi Euro,

    Here is a link to a good explanation: https://www.mayoclinic.org/tests-procedures/3d-mammogram/about/pac-20438708

    "Detect slightly more cancers than a standard mammogram alone. Studies indicate that combining a 3D mammogram with a standard mammogram can result in about one more breast cancer for every 1,000 women screened when compared with standard mammogram alone."

    If you have dense breast tissue, it is possible for mammogram to miss a cancer. Regular mammograms miss approximately 20% of all breast cancers. I'm not sure where you live, but some states now have laws that require your doctor to inform you at the time of your mammogram if you have dense breast tissue and may need additional follow up / screening.

    I have a friend who pushed her insurance company and got an MRI covered (based on my experience and her learning that she had dense breast tissue).

    Hope that helps!


  • EuroAmerican
    EuroAmerican Member Posts: 27
    edited February 2020

    Thank you for responding, I am suppose to be getting annual MRIs. Would MRI be much more occurate?

  • Annabelle2
    Annabelle2 Member Posts: 44
    edited February 2020

    It can definitely be more accurate. It can also result in false positives. That (and the ridiculous cost) are the main reasons insurance companies and doctors are so hesitant to recommend it and cover it.

    *My personal opinion* is that MRI should be the standard for BC screening. But I'm a little jaded on this topic......

  • EuroAmerican
    EuroAmerican Member Posts: 27
    edited February 2020

    Thank you. I will call my MD and request MRI. My MD has wanted me to have regular MRIs but I haven’t done it yet

  • LaughingGull
    LaughingGull Member Posts: 560
    edited February 2020

    It sure missed my cancer. I had a clear 3D mammogram in August, plus exploration by breast cancer surgeon, and three months later I found myself a lump in my underarm. It was breast cancer that had spread to my lymph nodes and the primary tumor was 3.5 cm. I had dense breasts -do you have dense breasts? My MRI pre-surgery, after having chemo and no palpable tumor anymore, also missed a remaining 2.5 cm tumor, but again, my breast was dense.

    I also had cysts that were benign, had had them for a long time (20+ years) but they were biopsied to confirm, even if they looked benign. Did the Dr explain the differences to you, and why they are so sure it is benign? I wouldn't stop until getting confirmation, beyond any reasonable doubt, that the cyst is not cancer.

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2020

    EuroAmerican

    If your risk % is high enough, ins will pay for a mammo every year and an MRI every year, alternating and offset by 6 months. These together plus ultrasound have an accuracy close to 99%. Ask your ins company. If you haven't had your life time risk calculated that would be good to do now.

    There are screening protocols now that are abbreviated versions of the full breast mri exam that take less time and cost less but are still pretty pricey and not available everywhere yet.

    MRI will become the standard screening exam once it takes 10 minutes and costs $100.00 .

  • EuroAmerican
    EuroAmerican Member Posts: 27
    edited February 2020

    LG,

    Yes, I have very dense breasts. I was told by the tech doing the ultrasound that it’s movable so it’s a cyst. I have called my MD’s office. And the nurse said my MD will review my ultrasound her selves.
    Thank you for responding and have a nice weekend

  • EuroAmerican
    EuroAmerican Member Posts: 27
    edited February 2020

    DJ,

    Thank you. That's what my MD wanted to do, MRI or 3D mammogram alternating every 6 months. I was just being lazy because I am still being monitored for my other cancer.

  • Annabelle2
    Annabelle2 Member Posts: 44
    edited February 2020

    LaughingGull me too. I went from "free and clear" to stage 3C in about 9 months. I knew walking out of my mammo appointment that something was wrong but never got a copy of the mammo report, and didn't know any better that I should have followed up on anything. Also didn't know that {some} doctors only tell you what they think you want/need to know. Hard lesson to learn.

    DJmammo - I read all of your posts with great interest. Is there anything being to move that effort forward? If I won the lottery, I would just pay for MRI's for everyone with dense breast tissue.

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2020

    Annabelle2

    "Is there anything being to move that effort forward?"

    Most if not all states have that law that says you have to be told your level of density and that more tests would be helpful. Some states, not sure which, have laws requiring the ins companies to pay for the additional tests so things are going in the right direction.


  • EuroAmerican
    EuroAmerican Member Posts: 27
    edited February 2020

    DJ,

    I am in Texas. I will request / follow my MD’s recommendations for MRI. I have checked my mammogram report and it notes extremely dense Thank you.

  • LaughingGull
    LaughingGull Member Posts: 560
    edited February 2020

    My mammo reports used to say my breasts were extremely dense, but nothing about more tests being helpful.

    Annabelle, I was also concerned and suspecting something wrong, I had excruciating pain in that breast only. Star breast surgeon with more degrees than a thermometer smiled condescendingly. Heartbreaking when I think about it. I started breast screening in my 20s. Like 25 years of screening for nothing, to find my cancer myself when it was bursting from my lymph nodes.

    Thanks Djmammo I also follow your posts.

  • djmammo
    djmammo Member Posts: 2,939
    edited February 2020

    A quick clarification of my post above

    When the law says you have to be informed that additional studies would be helpful for dense breasts, it is referring to the lay letter that you receive from the imaging center about a week after your study. It is an ACR requirement that these letters are sent to everyone having a mammogram both screening and diagnostic.

    Although density is alway remarked upon in the report, there is not yet a requirement to add the statement indicating additional studies would be helpful in the case of dense breasts within the report.

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited February 2020

    3D mammo missed my bc a week before bmx. Was found on MRI, followed by US & biopsy.

  • pilot27k
    pilot27k Member Posts: 1
    edited February 2020

    The radiologist who did my 3D Mammogram and Ultrasound missed my breast cancer. Upon request, was referred to a surgeon at a different hospital and he sent me for a second opinion because he recognized I had advanced breast cancer. The new radiologist saw it on ultrasound and did a biopsy right there. The hospital did a breast MRI too and it showed almost no normal breast tissue.

    So yes, a mammogram can miss cancer and this is especially true with dense breast tissue.

  • VeeHow
    VeeHow Member Posts: 82
    edited March 2020

    I’ve had cysts found with mammograms and ultrasounds and 1 biopsy, nothing, after bloody discharge I got an MRI. It found 4 hyperplasias, 1 Atypical. An MRI can definitely find things a mammogram and an ultrasound doesn’t especially if you have dense breast tissue.

  • VeeHow
    VeeHow Member Posts: 82
    edited March 2020

    I've had cysts found with mammograms and ultrasounds and 1 biopsy, nothing, after bloody discharge I got an MRI. It found 4 hyperplasias, 1 Atypical. An MRI can definitely find things a mammogram and an ultrasound doesn't especially if you have dense breast tissue.

  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited March 2020

    3D mammogram missed my breast cancer even 1 week before bmx. Was picked up on mri, followed by US and biopsy.

  • Aviva92
    Aviva92 Member Posts: 34
    edited March 2020

    I had a 3D mammogram miss a bunch of things found on an ultrasound, all determined to be benign, one after a needle core biopsy that was discordant benign, followed by an excisional biopsy that was definitively benign. It is a bit horrifying though that no doctor has suggested I get an MRI since my breasts are very dense.

    But from what I've read, while an MRI will find cancer, it will also find a lot of false positives to be investigated. That seems to be true of ultrasounds too though. Wish these less invasive testing methods were more accurate as to avoid constant biopsies.

Categories