Pain Months after Lumpectomy/Radiation

kec1972
kec1972 Member Posts: 269
edited May 2020 in Pain

Is it normal to have pain on the side of the lumpectomy/radiation? On and underneath the breast, and in the ribs? I just feel like the entire side of my chest hurts.

Comments

  • DorothyB
    DorothyB Member Posts: 305
    edited November 2019

    I have not had that. I would get it checked out so that you can have peace about it.

  • Euphoriaa
    Euphoriaa Member Posts: 235
    edited November 2019

    I have finished rads a month ago. I have pain and tight muscles, also a burning pain that runs through my arm to my fingers. My SO said it can take up to 2 or 3 years to heal rads damage 😪

  • Prahan
    Prahan Member Posts: 75
    edited November 2019

    Yes me too experiencing the same

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    I'm 5 years our from rads after ALND. My RO told me I would have to exercise & stretch every single day for the rest of my life or the nerves & muscles would pull back like a rubber band. I would make a doc appointment about the pain running down to your fingers

  • S3K5
    S3K5 Member Posts: 606
    edited November 2019

    kec1972, yes it is normal to have some pain after the treatments are over. I remember taking Ibuprofen/tylenol which helped with the pain. As others have suggested, stretching exercises do help.

    Did you have the lymph nodes removed on the side of your lumpectomy? I had slight lymphedema after radiation, so I had to wear a compression sleeve.

  • letsgogolf
    letsgogolf Member Posts: 263
    edited November 2019

    I hope it is normal because I have pain nearly 3 years after lumpectomy and radiation. It's a tight, uncomfortable feeling and I can't wait to take my bra off at the end of the day. I probably should be doing more stretching.

  • kksmom3
    kksmom3 Member Posts: 183
    edited November 2019

    I am within 2 weeks of my one year anniversary from radiation. My breast is still achey and sore. They even sent me to PT last March, she said I do not have lymphedema, which of course is good, and gave me stretching exercises to do. I did them religiously at first, but really, it doesn't seem to help. I should try to make it a priority again tho. I do also always massage my radiated areas with coconut oil twice a day. I don't know if the pain is from rads or the lumpectomy or both, in which the surgical area was a centimeter under my nipple, an extra sensitive spot. I have tried OTC meds and nothing really helps. Aleve and Advil take the edge off it a little. I find I am more comfortable with a bra on, but I'm still dying to take it off after work! I really hope it gets better. It's' slightly better than last Feb and March. Funny, because it did not hurt until 2 months post lumpectomy.

  • letsgogolf
    letsgogolf Member Posts: 263
    edited November 2019

    When I mentioned the pain to my doctor in the year after my procedures she explained it as a train wreck in there. I had 2 different types of biopsies prior to my lumpectomy and several samples taken. I was black and blue even up to my surgery which was a month after the samplings. Add that to the stuff they did on surgery day and then for 2 months after. I can feel scar tissue in both the node area and lumpectomy area and it is always mentioned in my mammogram reports. Guess I should not be shocked that after all that trauma the area has been damaged and continues to hurt.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    kk - my RO told me I would have to stretch EVERY DAY for the rest of my life to counter the radiation damage. Apparently those muscles, nerves, skin, etc. are like a rubber band once they have been radiated. If you don't keep stretching, they will pull back.

    I had to stop my regular exercise for two weeks due to cataract surgery. I can already feel the difference and it's not comfortable.

  • jessie123
    jessie123 Member Posts: 532
    edited December 2019

    My radiation ended in July and I'm just now starting to get tinges of pain. My breast has long cord like lumps which I think is causing the pain. It's not bad pain, but it's a little concerning because it just started. Also, my breast just shrunk about a month ago which I guess was the end of the swelling. I have my yearly MRI next month so I'll learn if there is a problem then. I'm really getting tired of this cancer problem - they say the first year after treatment is hard and that is the truth.

  • mjane68
    mjane68 Member Posts: 7
    edited December 2019

    I feel exactly what you describe! finished radiation in May. PT helped a lot with the radiated tissue. but in past few weeks my breast has shrunk notably and become harder and more pain again. i have so much pain in my rib on one side right at base of breast. i cannot wear a bra past few days. im so disheartened.

  • edj3
    edj3 Member Posts: 2,076
    edited December 2019

    MinusTwo I'm having the same realization you mentioned. I must stretch (aka basically rip) that tissue daily or I will lose range of motion. My RO said some scar worse with radiation than others, and here I am.

    And the radiated breast is still swollen although that's probably a combination of scarring from radiation and scarring internally from the actual surgery (I've always made a lot of scar tissue). My BS said wherever I am a year out from surgery will be where I stay. I hope this breast shrinks because I'm pretty lopsided and I detest the artificial perkiness from all the scarring.

  • gb2115
    gb2115 Member Posts: 1,894
    edited December 2019

    It's been three years and my treated breast still hurts. I guess it's the new normal. It's ok if I don't poke at it, so I try to leave the entire area alone.

  • anamaeted
    anamaeted Member Posts: 8
    edited December 2019

    My right MX was in Sept of 2018 and I finished my rads in March, 2019. I still have pain in my chest wall and Lymph Node removal area. I have Lymphedema and nerve pain. The pain in my rib cage is nerve pain. The doctor put me on a low dose of Gabapentin. They increased the dosage yesterday to try to help control the pain. You should definitely mention any pain to your doctor. It may be normal, or it may be something that they are able to help you control.

  • DorothyB
    DorothyB Member Posts: 305
    edited December 2019

    My treated breast doesn't hurt and is now close to the same size (but perkier) than the other one.

    However, I also have found that I must stretch frequently or it hurts when I raise that arm high above my head and / or move my elbow up and behind me.

  • Confused516
    Confused516 Member Posts: 8
    edited February 2020

    I have upper chest pain / tightness and weird tingling feelings in center of chest and random shortness of breath during and after lumpectomy and radiation. I am frustrated because radiation doctor said it was not radiation related so now I am seeing lung and heart doctor to rule out any other issues!

    Lumpectomy 11/11/19 radiation 12/16/19-1/21/20

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    Rads can effect your heart and your lungs. Good that you're having consults.

  • KIDI919
    KIDI919 Member Posts: 425
    edited February 2020

    I also am still having pain and zings thru my breast. Seroma is supposedly back so breast is a cup size larger than the other. Itchy and red. RO said it might take months to go away. I have occasional periods of feeling SOB but I think it might be anxiety. I feel like I spend a better part of my day with my thoughts going round and round this BC crap. Finished rads on 2/5. Range of motion is good but tight sometimes.

  • Rain88
    Rain88 Member Posts: 167
    edited February 2020

    I'm wondering if anybody else has pain and some sort of heavy numbness along the underam after rads. I was afraid it might be lymphedema, by my MO ruled that out and said it was probably the nerves being affected after nodes removal and rads. Does it go away eventualIy?

  • Amyadipose
    Amyadipose Member Posts: 38
    edited April 2020

    Lumpectomy in late August last year, was fine until past two weeks I've had pain directly under nipple of that breast. I'm thinking it's maybe feeling coming back? It looks a little swollen and subtly different. No discharge, just kind of a bruised feeling, or like when you're about to start period, but it's not that. Anyone else?

  • Anonymous
    Anonymous Member Posts: 1,376
    edited April 2020

    HI everyone,

    This is another example of a huge problem in the cancer industry. In June 2011 a study was released that the majority of women who receive lumpectomy and radiation will be in moderate to severe pain for a year. Was this ever explained to you by your doctor? Did they explain how much radiation would help you? In some women it only lowers the chance of their cancer coming back by 7%. Is that worth a year of pain...and is that right for your doctor to decide that for you by telling you you must have a treatment. Also, did he tell you that there is treatment? The only treatment is HBOT with is FDA approved for radiation pain and damage. MOst radiation oncologists do not know this. SO they give you a treatment that causes you pain, dont tell you how much it is helping you and then they don't even know how to treat it.

    I need your stories!I am currently writing a book on stage 1 breast cancer as I had a horrific experience that didn't need to happen.These ranged from gender bias where my symptoms and pain were not believed, resulting in unnecessary suffering and damage, to doctors having very little knowledge in their fields, for example Hyperbaric oxygen specialists that not only unaware that it is the only approved treatment for radiation damage, but even after giving them studies to support this, they still didn't believe me and refused treatment.

    On top of this, there is the industry's constant over simplification of guidelines (mastectomy or radiation and lumpectomy for every stage 1 BC case) and the over treatment of patients.In 2018 a study came out that 70% of early BC patients did not need chemo.Then why were they giving chemo patients that didn't need it!Why were they testing a treatment before it was administered! Women are never told how much each of these treatments will help them so they cannot weigh the benefits and costs to treatment.They are just told they have to do it.

    Then to top it off, there is no accountability in the industry (please read "Unaccountable" by Dr. Makary) and completely driven by money (please read "The Price We Pay" also by Dr Makary. Dr. Makary is a surgeon and teacher at Johns Hopkins Bloomberg School of Health)

    So I want to hear from you.Were you ever told how much different treatments will help you?Were you ever in pain and a doctor said it was in your head or it wasn't that bad?(Both of these were said to me.)Were you told about all of the side effects of treatments, before you started the treatment, such as a long-term safe effect of chemo is cardiovascular damage?Or that you would have permanent damage to your skin, muscles, ribs (and heart of it was done on your left side) from radiation?Post-cancer did you have issues and no doctor had the knowledge to help you?

    To all of my BC sisters I want to thank you for your time and we will get through this!!

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited April 2020

    Marie good luck with your book writing. I am sorry you had an awful experience. At first I had the feeling of being over treated but the more time I spent here and in doing my own reading, I get the protocol that I am under and I will see it through. I do have pain from time to time in my left breast (like a 2 to 4), and I am certain it is from the trauma done and now I have fat necrosis (dead tissue). Also, right now my skin is clear but there are times my upper chest or my left arm (where they did a blood draw once) will break out in a rash. It goes from one spot to the other being clear in between. I feel this is from having radiation but that thought has been brushed off by 1 doc so far. A dermatologist and a cardiologist are in my future anyway at some point (post pandemic) so will like to see what they say about the treatments I have had. Thankfully my radiation simulation failed laying on my back and doing the breath hold, so I asked if they would consider doing me in the prone position, and they agreed. I was grateful for that. I felt my heart and lungs were safe and well away from any radiation. More than I can say for arm and upper chest.

    Best wishes to you and everyone.

  • KIDI919
    KIDI919 Member Posts: 425
    edited May 2020

    I am 6 months post op and my breast is still tender but looks normal (kinda) I did have a seroma which dr said will take months to go away. I had a left lumpectomy and radiation

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