Just diagnosed with met to lung

Nikisworld
Nikisworld Member Posts: 10
edited February 2020 in Stage IV/Metastatic Breast Cancer ONLY

Hi everyone. I had breast cancer 4 years back. Stage 2 grade 2, triple positive. I did all the treatments and chemotherapy’s and was on tamoxifen for 4 years. In my last scan they found a lung nodule which did not have fdg uptake. We left it to observe for 3 months. In my recent scan I just did, the nodule was still there but size was same. I did a lung biopsy and it came back positive for cancer. It’s the same type as my breast cancer. The lung nodule is about 1.4 cm.

My world has turned upside down due to this. I was diagnosed at 25 and have to face this at 30. Does anyone have any similar experience or anything that can help me through it. Pls help as I’m devastated.

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  • Gudrun
    Gudrun Member Posts: 140
    edited February 2020

    Dear Niki, I'm so very sorry for you and Im afraid I won't be of much help. But you might find women at a similar situation in the following thread:

    https://community.breastcancer.org/forum/8/topics/...

    Best wishes for you. G

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  • vlnrph
    vlnrph Member Posts: 1,632
    edited February 2020

    Oh dear Niki, I'm so sorry you are going through this at such a young age.

    My story has been quite different but I think there are others here who can relate. From what I know, a single spot might be more easily treated than multiple lesions. Maybe they can do surgery to remove it? Lots of research right now involves metastatic HER 2 tumors which means many options exist.

    The other thing for you to consider is requesting a referral to a genetic counselor because, even with minimal family history, there may be an inherited mutation which could help determine your course of action. Let us know how things develop.

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  • pajim
    pajim Member Posts: 2,785
    edited February 2020

    Nikisworld, getting this diagnosis is devastating. There's no way around that. And really there's no way through all the fear, anxiety, sadness, etc. except for time.

    We've all been there. You've joined the most exclusive club that no one wants to join. Only the best get in. :-)

    Don't feel bad about raging, screaming, crying, etc., etc. But I promise you that in six months you'll feel better. You get a new treatment, the nodule shrinks (or you have it surgically removed) and life gets back to 'normal'. Yes it's not the normal you have five years ago, but it will feel normal.

    In the meantime if you need help, ask your doctors. Anti-anxiety, anti-depressives, sleeping pills, whatever you need. It isn't for forever. I took sleeping pills for 2 months after my diagnosis. But eventually I didn't need them any more. And so what if I did? Better living through chemistry.

    Hang in there!

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  • Bestbird
    Bestbird Member Posts: 2,818
    edited February 2020

    I am so sorry to hear you are dealing with lung mets, but please know that many people with lung mets have done well for years. After 4 years of misdiagnosis, my solitary lung lesion had spread not only just in the lung, but in the pleura (lining of the lung) as well as around my heart. By the time the doctors figured it out, I had a liter of pleural effusion that needed to be drained.

    That was in 2011, and thankfully I'm able to be here to write this note!

    You have good reason to expect to respond to treatment and hopefully will have years and decades ahead!

    One thing you may want to consider is learning about the available treatments and new research for your subtype of disease. Feel free to check out "The Insider's Guide to Metastatic Breast Cancer" which is available in paperback, eBook, and complimentary .pdf formats. For information please visit https:www.insidersguidembc.com/about

    Obtaining fact-based information and liaising with others who have walked in similar shoes can be extraordinarily helpful!

    Wishing you an excellent response to your treatment!

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  • theresa45
    theresa45 Member Posts: 314
    edited February 2020

    I'm so very sorry that you have been diagnosed with a lung met at such a young age!!! If you only have the one lung met, then I believe that you would be considered oligometastatic (minimal metastatic disease) and could be treated with curative intent. I would want to be seen at a large, highly-regarded cancer center. I would ask about surgery to remove the isolated lung met or radiation. Since your cancer is triple positive, you also have many systemic treatment options. I also developed mets while on tamoxifen, so I was afraid that hormonal therapies would not work for me; however, my cancer responded extremely well to an oophorectomy (ovary removal) and letrozole (an aromatase inhibitor). Reading about treatment side effects can be scary, but remember that as a young woman your body will be better able to cope with treatment. Wishing you the VERY best!

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  • AnnC2019
    AnnC2019 Member Posts: 203
    edited February 2020

    I just read this article posted by Snooky on another thread that might be of interest.


    https://www.clinicalomics.com/topics/precision-medicine-topic/triple-negative-breast-cancer-might-not-actually-be-breast-cancer/?fbclid=IwAR2f_MjMFVZg89TZwm9au9kHONA3kv-zHG3o7qhZp6i0Y_kGJ-SMWALKdzA

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