Does anyone have experience with port flipping and revision?

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dysonsphere
dysonsphere Member Posts: 204
edited February 2020 in Chemotherapy - Before, During, and After

Today was supposed to be my first AC Chemo. Instead, I had long day of being stuck may times but nobody could access my port. After an x-ray and scan, they decided my port had flipped and they are scheduling a revision for tomorrow so I can start chemo on Monday. I went through so much pain today and right now my port area is so swollen, I can't even imagine it being touched again but I know I will be under anesthesia. Has anyone had to do a revision? Did it work?

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    dyons - that's really weird. My doc put the port in with imaging all the way. I didn't think they could flip.

    Good luck tomorrow. Please so let us know.

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  • VLH
    VLH Member Posts: 1,258
    edited January 2020

    My port didn't flip, but rather looped and retracted 3 cm, something neither my oncologist not the general surgeon who inserted the port had ever seen. I've only been able to find one other example on the Internet of that happening. I struggled for many weeks with my "bad" port before repenting and having it replaced by an interventional radiologist. The replacement was an easy procedure under twilight sleep so no post-anesthesia nausea.

    I couldn't believe how easy infusions were the new port. I was used to needing clot busting drugs and waiting for them to kick in before every treatment. I know you're extremely sore right now, but think you'll find the replacement procedure well worth it.

    Hugs, Lyn

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  • dysonsphere
    dysonsphere Member Posts: 204
    edited January 2020

    Thanks, I hope so! Preparing for chemo is hard enough without any extra stress! I'm glad your issue was resolved!

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    dyson - What did the doc say? Do make sure you have a power port if you don't already and you're going for a replacement.

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  • dysonsphere
    dysonsphere Member Posts: 204
    edited February 2020

    My port was a power port and they were able to reopen the incision and reposition it . They used sutures this time to hold it in place and have given me one week to recover before the first chemo. Hopefully that will take care of any issues because it is extremely tender right now. They are still not sure as to how it could have flipped because I didn't do anything unusual and it did not flip until they tried to access it in the chemo area. I guess it just didn't heal fast enough.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    dyson - my port was stitched in place from the beginning. sorry for pain & the delay.

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  • VLH
    VLH Member Posts: 1,258
    edited February 2020

    I hope the rest of your treatment goes smoothly, dysonsphere. When my oncologist had me contact the surgeon about my looped / retracted port line, he said, "What did you do?" To this day, I don't know if he was joking. I'd spent hours in the ER and was so weak that I needed a walker to make it to the infusion room so I wasn't out doing cartwheels or bungee jumping. (Mine was NOT a typical experience so I don't want to provoke unwarranted anxiety for those facing chemo.)

    Lyn


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