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Butterflywarrior28
Butterflywarrior28 Member Posts: 8
edited March 2020 in Waiting for Test Results

Hey everyone. I'm 32 yrs old and a mom to a 9 year old girl. I recently found a lump in my left breast, made an appointment with gyno and she confirmed it was a lump and I needed a mammogram.

Okay...*trying not to worry*

Gyno says it's probably a cyst or fibrocystic changes so I file it away as just something I need to do for peace of mind. I had my first ever mammogram Mon, Jan 26 and they did both screening and diagnostic. I waited a bit and they came back and said I needed an ultrasound because I have dense breast tissue and there is an area of concern.

*Gulp* okay

U/S wasn't awful just a bit uncomfortable and she moves the wand over the lump and notices an area on my lymph nodes swollen so she checks that out. More waiting and the radiologist comes in and says I need a biopsy and soon. She looks concerned and my emotions are numb, I feel like a robot when I leave the clinic.

Yesterday I had a core needle biopsy of both areas (breast lump and lymph node) and it wasn't too bad just uncomfortable, but the techs kept me really comfortable and at ease the entire time. After it was all over, I asked the radiologist what she thinks is going on and she says, "I think it's a possible cancer."

*Dead silence*

She starts mentioning breast surgeons and other scary things and I just want to leave. I want to disappear and wake up from this nightmare. My mind is reeling and my worry is intense, I keep thinking worst case scenario and working myself up.

I never expected to hear this. I have no risk factors, no family history. I feel a myriad of emotions and the wait for the results back is awful. I have a good support system, but they don't understand how I'm feeling. How can they?

I just wanted to reach out for support and advice on all of this I'm going through. It's all happening so fast and I feel like I can't catch a breath.

Comments

  • L8Blmr
    L8Blmr Member Posts: 133
    edited January 2020

    Butterflywarrior28, I am sorry you are going through this experience, but glad you found this site for support, advice and enCOURAGEment because there are a a lot or caring people and a wealth of knowledge to share here. The waiting period is always the hardest part; and we all understand the whirlwind you are experiencing; a definite feeling of 'no control'. Try to stay in the present, keep yourself busy and don't let your mind make 'mountains out of molehills'. Praying your biopsy results come back negative, but if you have to join our club that none of us asked to join, we are here for you. Peace to you and big hugs.

  • Anonymous
    Anonymous Member Posts: 1,376
    edited January 2020

    Everyone here can relate the fear, anxiety, and confusion - we've all been there. The doctors see this every day and what is routine for them with breast surgeon consultations etc, is all really confusing and scary for a newbie who would never reasonably expect themselves to be in this situation in the first place. Stay calm until you get the results, try for some diversions, and cry if you need to (but try and move on after!). If its not cancer, great! If its cancer there are a lot of treatments today at all stages, but accept it will take some time to get the hang of the terminology and phrasing.

    Go with the flow and take it one step at a time by staying in the now. Its hard but there is no use worrying about things that have yet to come to pass until they do. Also, there are quite a few younger ladies on here who will be able to comment on the specific challenges of having this when still trying to have a career/family.

  • Ingerp
    Ingerp Member Posts: 2,624
    edited January 2020

    Butterfly--yes we've all been there and the conventional wisdom is distraction distraction distraction. Bingeing something on Netflix, watching mindless TV, going out to a movie, . . . Hang in there--you'll get information soon.

  • keepthefaith
    keepthefaith Member Posts: 2,156
    edited January 2020

    So sorry you are going through this right now. It is hard to wrap your mind around. Stay away from Dr Google. There is much out-dated and mis-information. Praying you get benign results. One day at a time. ((HUGS))


  • HeartShapedBox
    HeartShapedBox Member Posts: 172
    edited January 2020

    Butterflywarrior- I'm so sorry that you're having to deal with this so young, and with a child. It still could be a false alarm, but if it is a cancer diagnosis, you'll find a huge supportive community here to help you through it! In many ways, this is the WORST, hardest time- the not knowing, waiting for results, imagining what-ifs, and spiraling down a rabbit-hole of freaking out. It sounds weird, but it will get easier and better than you feel now, EVEN IF you find you you have cancer.

    For now, there is no sense spinning your wheels about potential bad scenarios or statistics on Google. Breast cancer isn't one size fits all, and treatment and prognosis is determined by MANY factors that need additional testing. I know it's basically impossible to try and relax or not think about this, so the best way you could be burning that excess panic energy right now would be to check on your insurance particulars, and take care of things around the house- spring cleaning, change the oil on your car, fix the doorknob that's been broken for a month, that sort of thing. If you do get bad news, it will be nice to have those things already taken care of and not further adding stress, and if you get good news, well, it's still nice to have all that taken care of!

  • Butterflywarrior28
    Butterflywarrior28 Member Posts: 8
    edited January 2020

    *Update*

    Thank you all so much for your kind and encouraging words. I have been beside myself with worry and fear, but I am beginning to feel at ease.

    I got the dreaded call today and it was like my life went into slow motion...

    The biopsy showed it's positive for breast cancer and one of the three lymph nodes is positive. I am overwhelmed...I still have a lot of information to obtain and a plan to figure out. I know this is just the beginning of a very long road, but I will fight this one day at a time.

    Thank you for the support


  • nneaga
    nneaga Member Posts: 8
    edited January 2020

    I am so sorry you got a positive test result, thinking of you

  • fifthyear
    fifthyear Member Posts: 225
    edited January 2020

    So sorry you have to deal with this cancer, hopefully you have a good medical team that comes up with the right treatment.

  • blah333
    blah333 Member Posts: 270
    edited January 2020

    Sorry to hear your bad news.... my experience went somewhat similar (except no lymph nodes). It is quite shocking to experience, especally in your 30s and at your very first mammogram. It's really good your doctor didn't just dismiss your lump as fibrocystic changes without sending you to mammogram. It's unfortunate you have to go through this but now you are on the road to taking care of it.. which does turn your life upside down a bit and is not easy but it is not the end of the world. The rollercoaster of emotions and stress can be difficult though. This board is very useful for information and advice and to vent.

  • Lajonesin
    Lajonesin Member Posts: 23
    edited January 2020

    I'm so sorry you are in this fight, butterfly warrior. I, too was dx a few weeks ago and I'm just now feeling like I *might* just maybe have a plan. One thing that I have found super helpful is my nurse navigator. If you have access to one, seek her out. As soon as I left my gyn's office with a cancer diagnosis, a friend I brought with me (do that!) insisted we drive over to the breast cancer center where I had been given a card with a random name on it from my gyn. I was dazed, so having a pushy friend with me made a difference! Lol The receptionist called the lady on the card and she kindly sat with me and my friend in a room alone and gave me soooooo much info and support! As I said, I'm just a few weeks in and she has made appointments for me, called my insurance, given me tips, and invited me to free yoga and group meetings. One thing I can say about being told I had cancer.....the wagons circle pretty fast!It's been amazing to be with so many positive and special women who are in this fight with me. I hope you can find your circle, too.

    With all that said, I'm still pretty anxious. Every X-ray, blood draw, mri, or biopsy is another potential for bad news and I'm getting close to a breaking point. I haven't even cried yet! Is this normal? Will I just dissolve into a puddle at some point? I'm at least a month away from any real treatment and I'm anxious to just get on with it! Coming here and reading over posts has been so calming and helpful, though. Let's keep each other encouraged and look for blessings in this nightmare as best we can. Much love to you all!

  • Brilee76
    Brilee76 Member Posts: 227
    edited January 2020

    Butterflywarrior28 *hugs*

  • Butterflywarrior28
    Butterflywarrior28 Member Posts: 8
    edited February 2020

    I don't know what to say...just processing all this. I am thankful for all the support and comments. I am trying to take this one day at a time...but it's a lot. *hugs*

  • HeartShapedBox
    HeartShapedBox Member Posts: 172
    edited February 2020

    This is all a lot to process, emotionally, but it doesn't have to be logistically confusing. This website has great information that can help prepare you for what to expect in terms of testing, treatment etc.

    Now it's time to meet with a surgeon and medical oncologist. They'll have you do a bit more testing (MRI and CT scans, genetic tesring) to better assess the size of your tumor and potential involvement in other areas (such as add'l lymph nodes), and they'll formulate your treatment plan from there. Did your biopsy report say if you're ER/ PgR/ HER2 positive? That will be a big part of what determines your treatment. For most, surgery comes first, and since there is lymph node involvement you'll get chemo and likely radiation as well. Some people get neoadjuvant chemo before surgery (I did). It's important that you feel comfortable with the care team making these treatment plans, so speak up/ make changes right away if the relationship feels off to you, if you don't feel heard or respected etc.

    .

  • striveforhealth
    striveforhealth Member Posts: 121
    edited February 2020

    You've found your way to a great place for information and support butterfly warrior (love this!). Did you say your doctor told you about this site? I'm so grateful that I found this place with so many wonderful members willing to share and support. You are right. This is a lot to process. I went through a few days of not being able to wrap my brain around the news. As you begin to get information from providers, It can be confusing. It takes a little while for everything to sink in and make sense. But when you have your plan together, you will start to feel some relief that you are moving forward in the process of getting rid of the cancer. I'm beginning to feel that now as I have my surgery scheduled. Try to keep positive. While you are waiting you can begin to prepare for what you'll need to be comfortable after surgery.

    Wishing you all the best. Keep us posted.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    Butterfly I'm so sorry to hear about your results. It is terrible news that no one expects to hear especially at such a young age. I'm 34, so just know you're not alone. It is quite the emotional rollercoaster ride but we're here for you.

    You can PM me if you need someone to talk to. Wishing you all the best.

  • windingshores
    windingshores Member Posts: 704
    edited February 2020

    One lymph node doesn't always mean chemo. If you are ER+ and HER2-, you will have an Oncotype test which will tell you your risk of recurrence and benefit (or not) of chemo.

    You are in the hardest part right now. Once you have all the pathology info and a treatment plan it will actually be easier.

  • Butterflywarrior28
    Butterflywarrior28 Member Posts: 8
    edited February 2020

    I have an appointment tomorrow to find out the full pathology report. All this waiting and ambiguity is the hardest part. I have this fear or what is to come, but I'm finding the more people I talk to about this chips away at that fear just a bit. I know I'll feel better once I have a treatment plan.

    In the meantime, I've been relaxing with my family and recovering from the biopsy...the one in my lymph node has been pretty painful and I have some nerve pain as well. I did go have lunch with a friend and she made me a "care basket" of some of my favorite things and a sign that says "just breathe." Everyone has been so supportive and kind to me this week.

    I'm so glad I found this board and I will definitely use it a lot. I know we are all fighting this battle and some of us are at different stages, and can help those of us (like me) just beginning this journey. Thank you ♥️

  • L8Blmr
    L8Blmr Member Posts: 133
    edited February 2020

    ButterflyWarrior28, I'm sorry for your diagnosis. Life will be a roller coaster for a bit, but you will make it to the other side. The suggestions here are all excellent, but can I add bringing a friend/family member to every appointment? My brain was in a fog, everything was confusing and I couldn't retain important information (And I am a Type-A person, detailed to a fault). I was grateful to have a second set of eyes and ears. We are all here for you when things get overwhelming. Big hugs!

  • Butterflywarrior28
    Butterflywarrior28 Member Posts: 8
    edited February 2020

    Thank you all again. I met with surgeon today and got my official diagnosis...

    Stage 2 IDC triple negative and lymph node positive...

    It's going to be a long year starting with chemo and then surgery and radiation, but I've got a great cancer team. Things are moving really fast so I'm just trying to catch my breath and absorb all this information.

    Hope everyone is feeling good tonight. Prayers and hugs.

  • LiveLoveLaugh2020
    LiveLoveLaugh2020 Member Posts: 322
    edited February 2020

    So sorry Butterfly. It is going to be one long year for you but you sound like a tough cookie and will get through it. I'm glad you found a great team.

    Sending you hugs and prayers!

  • Maryjv
    Maryjv Member Posts: 306
    edited February 2020

    butterfly-I am also 34 yrs old, diagnosed with TNBC in Nov 2019, I have a 7 year old daughter...same plan as you, undergoing chemo, surgery and radiation to follow. I think the unknown was the scariest and hardest time for me but now that I am undergoing treatment and have all the testing completed I feel more at ease...you have found a wonderful support group and please know that you are not alone, we are all here fighting 🙏❤️

  • L8Blmr
    L8Blmr Member Posts: 133
    edited February 2020

    BW28, having a good team in place that YOU feel comfortable with is so important. I'm glad that you feel good about them. Yes, there is a lot of information to digest. Don't be afraid to ask questions on information you don't understand. The TNBC board might be a great help. Like Maryjv said, you are not alone, we are all here fighting. Big hugs!

  • Ashs4u
    Ashs4u Member Posts: 12
    edited March 2020

    Hi There,

    I am going thru the same exact thing ! I don't do my biopsy until 3/17/20, because of other things already planned. I am SCARED to death !

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