Mastectomy Coming in February

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BryantMarie
BryantMarie Member Posts: 3

I'm scared. I need a mastectomy.I have Paget's nipple and a large area of high grade DCIS.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    Bryant - I assume by the title that you've picked a surgeon and have a date? Do you have your hormone status yet? HER2+? Are they recommending chemo &/or rads? Have you met with an oncologist? Have you had any genetic testing yet?

    I'm sorry you have to join us, but you'll find lots of support. When you get a minute, go to My Profile and add your diagnosis & proposed treatment. And please keep in touch.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2020

    BryantMarie-

    Welcome to our community! We absolutely understand your fears, and you've come to the right place for support as you go through this. As MinusTwo mentioned, it's helpful if you fill out your profile with as much information as possible so that other members can get a better idea of what advice to offer. You may also want to join the February Surgery thread for tips and support from people having their surgeries next month: https://community.breastcancer.org/forum/91/topics...

    The Mods

  • BryantMarie
    BryantMarie Member Posts: 3
    edited January 2020

    Hi,

    I am in such a state. I had a crusty nipple for 16 months. I went for my yearly mammogram 5 months into the nipple thing. I was cleared after lots of mammograms and ultrasound. They did not biopsy the nipple. Over the next year my own doctor saw the nipple and recommended different creams. This year, when I went for my mammogram- they found linear, amorphous calcifications and after many views, and ultrasound they did a core biopsy. The core biopsy showed DCIS but they felt they needed more "material" to examine so I went through a partial mastectomy and a nipple biopsy. The news from that was high grade comedo-necrosis DCIS and Paget's cancer on the nipple.


    I have no option and must have a mastectomy and sentinel node biopsy on Feb. 10th. I am fearful of them finding invasive cancer. Today was my worst day yet. I am 52- and my youngest is 13. I had never had a surgery till the recent excisions biopsy---and that was under sedation. General anesthesia scares me. I am also afraid of what it will be like immediately afterwards. I am not getting reconstruction. I wanted the least process done to me.

  • Moderators
    Moderators Member Posts: 25,912
    edited January 2020

    Bryant,

    We're so sorry you're still feeling anxious, but we can assure you, now that you have surgery scheduled and your doctors have started a treatment plan, you'll start feeling a little better. Just know that there are many, many members here who have been through a similar situation, and can understand the anxiety that comes along with surgery. Just know that after surgery you'll have more information about what you're dealing with and how to manage follow up treatment. We know it's scary, but we're all here for you!

    Please keep us posted and don't hesitate to come back often, ask lots of questions, and get the support you need!

    --The Mods

  • bella2013
    bella2013 Member Posts: 489
    edited January 2020

    Bryant, so sorry you find yourself here but you have found the place where you will receive a ton of information, wisdom and nurturing.

    Please, please, please contact your doctor and get a script for Xanax. You are having severe anxiety which all of us have experienced at the beginning of our diagnosis. Treating your anxiety with medication will help you so much.

    Think of it this way...your body is fighting the good fight for you...stress and lack of sleep makes it really difficult...stress and lack of sleep also lowers your immune response which can enhance the cancer.

    You are at the worst stage right now..a plan will soon unfold and you will feel more confident.

    Be good to yourself...take really good care of you. You are your #1 priority.

    (((Hugs)))

    Bella201

  • BryantMarie
    BryantMarie Member Posts: 3
    edited February 2020

    Hello,

    I want to thank those that have written. I am trying to spend the next few days before the mastectomy being calm and hopeful that it will go well. I have an experienced and kind surgeon- he did the partial mastectomy with the nipple biopsy for me and I healed well and pain was not an issue. I anticipate more discomfort as the partial was actually a large biopsy, not a removal of all breast tissue.

    Can anyone tell me how they did with the general anesthesia and also what was pain levels immediately after surgery. I am scheduled to go home on the same day.

    Bryant Marie

  • ajminn3
    ajminn3 Member Posts: 327
    edited February 2020

    Hi BryantMarie,

    I am sorry you have found yourself here. I had never had a surgery or any major (or minor) medical problems prior to my diagnosis. My bi-lateral mastectomy was my first surgery and first time going under anesthesia. I was terrified. I can tell you that like others, Xanax helped me a great deal (I had never used it before this) during those waiting periods and now that I am on the other side of surgery, results, scans, and the start of a treatment plan I rarely use it. I did fine with general anesthesia- woke up fine, no nausea, no side effects. Yes, there was certainly pain and a long recovery after surgery, but honestly it wasn’t half as bad as I thought it would be. I went home the next day from the hospital (due to my reconstruction piece. 4 weeks out I generally feel good and have had no complications. I was even able to go direct to implants for immediate reconstruction. I know how excruciating the waiting for answers period is. In the midst of it I never thought I’d make it through, but had to keep going for my 3 small children. It’s hard not to worry and get ahead of yourself with all of the “what if’s” try to take it one day at a time.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited February 2020

    My advice would be to ask for a scop patch - just one extra prevention against nausea. I didn't know the first time around and it made a HUGE difference the 2nd time.

  • Floral
    Floral Member Posts: 41
    edited February 2020

    I had a bilateral Mx on 1/23 and it was my first surgery and first general anesthesia. It was not as bad as I thought it would be. I did not have complications, so far, anyway.

    Do try to stay ahead of the pain, which can be done. I made the mistake of rationing my pain medication because I was afraid in the current environment they wouldn’t give me more. This led to me almost passing out from pain in the area my one drain, but this was avoidable. They did give me more medication.

    Plan on ups and downs in pain, mood and energy. And don’t expect the waiting game to be over, I don’t think it ever is!

    Goid luck, you will deal with it

  • SimoneRC
    SimoneRC Member Posts: 419
    edited February 2020

    I second the Scopolamine patch! I always put them on the evening before surgery at bedtime. Take your pain meds on schedule the first few days. Eat bland food and protein. Stay hydrated. Get up and walk around.

    Good luck!

    Editing to add... I just realized you had your surgery today. I hope all went ok and you are having a peaceful night. Take care!



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