How was your LCIS discovered?

I have sclerosing adenosis with calcifications which can look like cancer on a mammogram. Found it when they biopsied that suspicious looking area. Actually they found ALH, suspicious for LCIS. LCIS confirmed on surgical biopsy

I had microcalcifications that were loosely grouped and the Dr said I had a 5 to 10% chance of it being cancer but highly unlikely. They did a core biopsy and called yesterday and said lcis. Scheduled with BS for excisional biopsy and then medical oncologist to start Tamoxifen.

Hi All,

I just saw this post and I am interested as well. I had may imaging tests, MRI, 4 mammos, ultrasound and they said I had a small IDC tumor. Since I’m still fairly young with extremely dense breasts, I opted for double mastectomy a few weeks ago. I just got my path report and the IDC was next to the DCIS and LCIS. I was surprised and my BS said I made the right decision especially for the LCIS had a greater chance of getting a new one on the other side. He still said they agreed no radiation or chemo and no Oncotype? I’m still trying to figure all this out.

This board has been great. Thanks for listening

My LCIS was discovered in a mammogram in the form of microcalcifications

Mine was found a year ago when I had my mastectomy for ILC. It was not seen in my biopsy only after the whole tumor was removed and sent to pathology. That doesn’t surprise me because my ILC wasn’t seen on my mammogram either.My mother had LCIS that was only discovered when she had her mastectomy for IDC.

Jessie123, two of my other sisters also had IDC, but both were treated with lumpectomies and neither had any LCIS component. Sadly my oldest sister had lymphoma at the same time so she didn’t live long enough to know if she would have had a recurrence which would reveal LCIS? My other sister was diagnosed less than a year ago and her lumpectomy didn’t show any LCIS. My mastectomy was because I had IDC in 2003, treated with lumpectomy, chemo and radiation and my pathology was void of any sign of LCIS.

I wonder if I have LCIS in my remaining breast? I think it is very likely, again, because neither myself nor my mother ever had LCIS show up on a mammogram. I don’t really know how women are diagnosed with LCIS, I presume via mammogram confirmed by biopsy? Oh, and I was denied a BMX because I don’t have the BRCA defect, hospital policy not to remove a healthy breast.

Jessie123, do some research before you decide to do one breast at the time. You will go through anesthesia and surgery two times and that's way more difficult for the body than one time only. Just my thought as I go for second surgery fro breast reconstruction tomorrow.

Stereotactic biopsy. Pathology reports concordant with the imaging. Florid LCiS classical type/lobular intraepithelial neoplasia grade 2

Welcome, JJT644! We're sorry you find yourself here, but we hope you find the support you need!

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my story is kind of wild. I had implants and I felt like one looked like it was bigger than the other suddenly. Naturally I freaked out and when I got back into the US I forced my doctor into a Mammo, which showed nothing but dense breast. I’m 36 and they said, see you when you’re 40. Reading the bottom of the report it showed 30% of breast cancers in women with dense breast are missed via mammo. I offered to pay out of pocket for an MRI and a very nice nurse said she would help me pass it through insurance to give me piece of mind. Low and behold a tiny area showed up, literally 2 MM. everyone said they were sure it was nothing but since it was seen it had to be biopsied. When they went back in they couldn’t find the area anymore but by chance they happen to see another small area, since they were already in there they took the sample. A complete shock to all LCIS/ALH. Everyone told me it was physically impossible for me to have symptoms with either one of these, but I think as women we know our own bodies well, and I knew something was off. I didn’t want to stress at 36 years old, going in for a check up every six months so I opted for a bilateral MX and reconstruction. I’m happy with the decision, but it’s been quite the wild ride! I had second-degree aunts with breast cancer but no one directly related to me. My onc said it’s not genetically linked, but I think they know so little about this pre cancerous stuff it’s hard to tell.

This site was a great resource for me!

JTT644, I have the exact same diagnosis. Let's stay in touch to find out what your treatment is?

I was diagnosed with DCIS May 2019. Prior to surgery, myBS ordered an MRI and they found a small group of microcalcifications. After biopsy of the area, I was diagnosed with LCIS too. My mother had 2 incidents of BC and my paternal aunt died of BC in her early 50s. Based on my family history and diagnosis of DCIS and LCIS, along with only being 50, I decided that BMX was the best course of action for me. My BS agreed with my choice. For me, the LCIS was a far scarier diagnosis.
I don’t do great with anesthesia and therefore doing both at once was the right option for me.

Hello, I know this post is a year old, but I just want to say that my LCIS was found with a lymph node biopsy when searching for a lung infection. Docs have not been able to find a primary source, however, because it can’t be from the LCIS, so I’m a bit nervous before going into a lumpectomy with sentinel node biopsy. Just hoping they find the source and can remove it