Am I wrong?

Options

After dealing with DCIS and HER2+ micro-invasions, 3 surgeries to get clear margins and 6 weeks of radiation, I'm still struggling.

My sister, who just happens to be a mammographer and, in my opinion, an over zealous volunteer, wants me to volunteer like her, wants me to get involved in cancer events, etc.

Here's the thing and I know it's not a popular opinion, but I just don't want to do that. I want to deal with it my way and not be, what one of my doctors said was a "cancer girl".

I feel others can be the great volunteers or super-involved, but I just don't want to do that. Am I a terrible person for feeling this way? I just want my own life my own way. Am I wrong?

I'm tired of feeling guilty for wanting to just let this chapter go for now. Am I wrong

Comments

  • Salamandra
    Salamandra Member Posts: 1,444
    edited January 2020

    You are not wrong!

    There are so many needs in the world, and so much good to be done! Just because you happen to have got a particular disease, does not mean that has to be your cause. And if you just need a break from all causes and some time to recuperate and recenter yourself, that's fine too!

    Maybe your sister would just enjoy your company, and you can find other things to do to spend time with her? But otherwise, no, don't feel a second of guilt. She chose her cause(s), you get to choose yours.

  • blah333
    blah333 Member Posts: 270
    edited January 2020

    I agree 100%.. this is something we had to deal with (not by choice). I don't want to be a "breast cancer person" or have breast cancer be my hobby. For some people volunteering or this experience can give a new purpose in life, but for me -- ew, never wanted this, it's "not who I am" and I have plenty of other interests to occupy my time. I would never wear a pink ribbon either, embarrassing. It's a low key semi-secret (some people know, friends might tell friends but I don't really tell new people or talk about it except to my closest handful), I don't want it to be seen as a personality trait or like my astrological sign or something.

    HOWEVER, if it did come back or consume more of my life or really put me through the ringer... the more time it dominates from me the less I can deny it as a part of my life. I thought it would be and hope it will be a small footnote bump in my life. I'd like to move on, but will it let me? I WOULD volunteer to help if a friend was sick or needed help, but I don't want to wear a pink shirt or be in some photo of pink-shirted women. Hooray! The images conveyed from pink cancer events all seem too far from reality.

    But hey - it is good people like your sister exist, they do need volunteers. She might think it would be even more enjoyable with your company. However she should respect if it's just not what you're into or how you want to spend your time.

  • Stretchygirl83
    Stretchygirl83 Member Posts: 6
    edited January 2020

    thank you so much. You cannot imagine how much i needed that. Thank you

  • Beesie
    Beesie Member Posts: 12,240
    edited January 2020

    "Here's the thing and I know it's not a popular opinion, but I just don't want to do that. I want to deal with it my way and not be, what one of my doctors said was a "cancer girl"."

    Actually, on this site, how you feel is the popular opinion. Of course some people are happy to shout out to the world about their experience with breast cancer and participate in every pink event, but that's not most of us.

    Tell your sister that you will not participate and that you do not want to be hounded about it or even asked anymore. And if she doesn't like it, direct her to this site, and ask her to post a question explaining her position and yours. Then she will find out how many of us feel just like you do.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    Frankly, I'd tell her to piss off, you already donated enough to breast cancer. Of course, you can tidy up the wording if you want. 😁

  • Maire67
    Maire67 Member Posts: 768
    edited January 2020
    You are fine just the way you are... oh my gosh I’m quoting Mr Rogers.

    my friends tried to make me that bc person 14 years ago. I was in the middle of AC and they thought it would be great if I walked in the survivor walk at an event. I was hospitalized 3 times during a 2 month period. I said NO and will never forget the look on supposed friends faces. I went for 12 years wonderful until a recurrence 2 years ago. I wish you triple that.

    You can do whatever you feel will help YOU feel better. There is no right way for any of us. I took up knitting and make blankets for Project Linus. I have participated in groups for stage IV
    I have learned from the participants that whatever your feelings are, they are just fine at that moment. You don’t need a cause . I had some therapy for another problem and that helped too. Give yourself time to process. You may just want to live your life. Do that for all of us.
  • mitziandbubba
    mitziandbubba Member Posts: 177
    edited January 2020

    It is absolutely 100% right to feel any way that you feel. None of us chose cancer but we absolutely have the right to choose how we handle it and how we feel about it as individuals.

    I was the same after my diagnosis and throughout treatment - I even told my husband that we didn't need to tell anyone. I said I wouldn't wear a pink anything and that I didn't want to be known as a survivor at all. I wanted to just forget it ever happened. Now I feel entirely differently - and mine is an unpopular opinion here! I surprised myself during October - I was prepared to be super upset but I actually liked seeing the ribbons all over. I was SHOCKED that I felt like this. I felt like the ribbons were a big hug every time I saw one. Am I making you guys nauseous yet? Sometimes I really do think WHO AM I?

    But even so, I am not interested in volunteering. I already volunteer and my volunteer organization needs me too. Proud to be a survivor, yes - but not cancer girl.

    I have a good friend who is an 11 year survivor and she goes to every BC event there is. She goes on retreats, trips, etc. I just don't see myself doing that either. She always talks about hanging out with her "cancer friends" like it's nothing!

  • Stretchygirl83
    Stretchygirl83 Member Posts: 6
    edited January 2020

    I'm not totally familiar with how these things work in this community, but I just wanted to say thank you to everyone so far. What an unusual treat, to feel supported and ok being me. Xox

  • mitziandbubba
    mitziandbubba Member Posts: 177
    edited January 2020

    Stretchygirl, we are all individuals - despite the fact that society loves to group us all under categories like "Breast Cancer Survivors". It makes it easier for THEM to do this. We must just keep on being ourselves and know that there are no wrong ways to feel.


  • trinigirl50
    trinigirl50 Member Posts: 343
    edited January 2020

    Ugh. I remember a friend buying a pink tshirt and signing me up for BC Walkaton. She was so sure that I would want to be a "BC Warrior" (vomit). I declined. Gave the tshirt to my puppy (he loved playing tug of war with it)

    I did go for a Save The Planet walkaton with my very bald head (at the time).

    I hate all events BC and pink, I am sure its denial but I dont care.

    Do not hesitate to tell your sister that you do not want to Volunteer.

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited January 2020

    Here's the thing too. It is a frigging bore to be “sick girl." I got so damn sick of never having a conversation that didn't involve “how are you FEELING?" “Are you doing okay?" I just wanted to be me again

  • Stretchygirl83
    Stretchygirl83 Member Posts: 6
    edited January 2020
  • mitziandbubba
    mitziandbubba Member Posts: 177
    edited January 2020

    MelissaDallas AMEN. I am sick of being seen as sick!

  • TB90
    TB90 Member Posts: 992
    edited January 2020

    My nurse friend introduced me as her friend with breast cancer. I damn near slapped her. A few months later she invited me to speak to physicians about chronic illness and sensitivity. I used that example as to what not to do. We never discussed it further but she never said it again and I hope she never describes any of her patients that way.

  • mitziandbubba
    mitziandbubba Member Posts: 177
    edited January 2020

    TB90 I am HORRIFIED that she did that! What is wrong with people?

    We have a big fourth of July parade in my town and there is a pink "breast cancer tractor" (live in a small town, rural area) and people are asking me if I am going to RIDE on the pink tractor this year! I never saw anyone do that but apparently its a thing. I am sure no one else wanted to parade their breast cancer in the middle of freaking July.

    I do think it is very sweet that the man painted his tractor pink for BC. I don't think it does anything but he meant well for sure.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    And this is why I never told anyone but two friends, my grown son & my ex- husband.. One friend betrayed my trust and submitted my name to the local newspaper to be listed on PINK SHIT day. I was so upset.

    Hang in there Stretchy. You deserve to do exactly what you want. Frankly I like Alice's answer - tell your sister to take a flying leap you leave you alone.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    Ugh, flashbacks to attending a Christmas party at my son's church in 2018. I had JUST finished radiation, finally, after lumpectomy, re-excision, and nephrectomy, and was feeling tickled [ANY COLOR BUT PINK] to have all the active treatment behind me. Some woman came up to me and gushed right in my face "How ARE you? I've been PRAYING for you!" Man, I had to remind myself it was a church thing so I wouldn't say WTF and jump back. Even now, a year and a half out, I try to hide from her, because if she catches my eye, I get THE LOOK OF PITY FOR THE CANCER LADY.

    I don't want anything to do with breast cancer products or events. Or kidney cancer, or endometrial, etc., etc. Why the hell would I want souvenirs? I've got my scars and missing body parts, I've done my bit, thank you very much.

    I AM NOT MY CANCERS.

    eta:.Hmm, I think this topic hit a nerve. Sorry about the rant.

  • Stretchygirl83
    Stretchygirl83 Member Posts: 6
    edited January 2020

    oh my gosh. I never knew others felt similar to me. Thanks so much to everyone. Wow, people be crazy

  • SimoneRC
    SimoneRC Member Posts: 419
    edited January 2020

    I second what so many women here have so perfectly said. Practically nobody even knows about my diagnosis. I am me. Like me, don't like me... on the quality of my character, not my medical diagnoses. I support cancer stuff with my checkbook. It is not some fun, rah-rah, isn't this fun, look at me, girl power, thing I was drafted into. To each his own! But not for me!



  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited January 2020

    Agree with what Alice said earlier. You do you. you can do a search on this site for Pinktober, pink washing, etc Then you can read many opinions on how a LOT of us REALLY feel about the pink.

  • Stretchygirl83
    Stretchygirl83 Member Posts: 6
    edited January 2020

    wow, more good reading and info. Thanks Spookiesmom

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