Smoking and Tamoxifen

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Mistymn
Mistymn Member Posts: 14

I tried looking for a thread like this but couldn't find once. I've been smoking for over 20 years (I'm 44) don't exercise and I'm overweight. I've tried discussing my concerns with tamoxifen and smoking with my MO and she just tells me to quit smoking. I've tried quitting numerous times but it won't stick. Has anyone else smoked or quit smoking and taken tamoxifen? I haven't started taking the tamoxifen yet because I'm afraid of what will happen since I'm currently still smoking. I really don't know what to do or who to turn to. Please help!

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  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited January 2020

    I know several people who have been successful with Chantex. I know it is really hard and the people I know had tried several other methods w little success. Good luck.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2020

    Misty, I quit smoking about 30 years ago. Its still one of the smartest things I've ever done. Something you will never hear is a person saying, “I wish I'd never quit smoking."

    At the time I quit, I used different tips, like keep fidgity items around to give my hands something to do, keep a jar of sugarless hard candy around and gum to satisfy my mouth. I kept pen and paper round to doodle rather than turn to a cigarette. One tougher thing was to spend less time or no time with other people who smoked. It meant finding new ways to spend my time. I cut back gradually, regressed a few times and then finally gave the cigarettes up for good.

    Please use whatever is at your disposal to try to quit. There may be an online support system, an in-person support group, an app, medicine like Chantix mentioned above (my husband used Wellbutrin successfully to quit) or even hypnosis. The internet has to be brimming with tips on how to,quit. Read upon thhem every day,Get some of the fidgit spinners and other items available and keep them in your purse, on your coffee table, wherever you hang out, and use them. Be open minded to trying almost anything, even if it costs you money. It is WORTH IT.

    Something I told my husband, who tried quitting numerous times but started back when stressful situations popped up: you will always have stress. Life is not without stress. You need to find other ways of dealing with it before it pops up so the first thing you do isn't turn to cigarettes.

    My words made sense to him and he was finally able to quit. We are both so happy we stopped. You will be, too.


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    Misty - the stop smoking thread isn't very active but there are a ton of good tips if you read through the posts. I haven't smoked since 7/11/07 BUT I will always be 'a smoker'. Just someone who chooses not to smoke - after smoking for 40 years. For a long time that choice was "just for today". 12 years down the road, I don't usually think about it more than once every couple of weeks and the thought is fleeting. Sorry, I can't remember if anyone on the thread was taking tam.

    https://community.breastcancer.org/forum/152/topic...


  • jessie123
    jessie123 Member Posts: 532
    edited January 2020

    I'm in the same boat as you are. I'm over menopause so they want me to take the AI, but I have refused because of the osteoporosis risk. So the Oncologist wanted me to take Tamoxifen, but I'm also a smoker so refused. How do we quit smoking when we've just been diagnosed with cancer? I'm done with treatment so maybe next year I will be settled down enough to stop the smoking -- but not this first year. It's embarrassing to be a smoker these days.

  • KIDI919
    KIDI919 Member Posts: 425
    edited January 2020

    I started Chantix the end of Nov and am now down to 2 a day. It is hard but I keep telling myself all the positives about not smoking. I really notice now too how bad people that smoke (usually those heavy smokers) smell. I haven't started Tx yet for 2 reasons that I won't get into here.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    KID - good for you on the stop smoking program. One day at a time. Take lots of walks, I ate a ton of sunflower seeds in the shell for the arm motion. Seed to mouth, arm down, crack seed, arm up, remove seed, arm down, do it again. There really are lots of good ideas on the link I posted for Misty and EVERYONE there knows exactly what you're going through.

  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited January 2020

    The MO who told you to quit smoking ought to refer you to a program that will help you quit. I bet your insurance company or employer has a free program available.

    Is the concern over increased stroke or blood clot risk? If so, might taking low-dose aspirin daily help mitigate the risk?

    If you keep smoking, a sort of non-standard alternative to tamoxifen could be ovarian suppression or removal. Would smoking without working ovaries be less risky than smoking while on tamoxifen? Worth asking. Before we had tamoxifen, oophorectomy was a standard treatment for premenopausal women, according to my surgeon. Obviously you would want to weigh the risk vs. benefit for you as an individual, and quality of life issues as well.

    Just brainstorming here.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited January 2020

    I smoked about 2 packs a day for close to 50 years. I still smoked when I had my lumpectomy in July 2018, and the re-excision that August. Around the time of my lumpectomy, I was found to have kidney cancer. When I saw the urologist, he insisted I quit smoking before my nephrectomy in September. I procrastinated a bit, but quit eight days before surgery using the patch. I haven't had one since, nor have I wanted one. I haven't even really thought about it. Besides the two cancers, three surgeries, and radiation, I also lost my mother that year and had to get all my top teeth pulled and adjust to dentures. Tell me about stress. Unfortunately, I have gained back the weight I lost (kidney cancer sucked off about 40 pounds), plus a little more, but I'm seeing a nutritionist Friday to navigate healthy weight-loss eating while taking care of my remaining kidney.

    Oh, and once I finally finished radiation in December 2018, my MO put me on Tamoxifen.


  • Mistymn
    Mistymn Member Posts: 14
    edited January 2020

    I'm definitely concerned about the risk of blood clots or stroke. Even if I quit today, the fact that I've smoked for over 20 years increases my risk exponentially. I've found a new MO that I'm supposed to see next week and hopefully she'll take my concerns seriously and give me alternatives to tamoxifen. I'm worried about ALL of the potential side effects so if I'm not given an alternative the risk vs reward isn't worth it for my personal situation to take tamoxifen and I'll choose to opt out.

  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2020

    This sounds weird but I remember I started going to a new church and asked to be prayed for to stop smoking. Two church members sat in the car and prayed over me. I didn't immediately quit but the seed was sown. These days I'm not even a big believer in prayer. But I was looking for help back then and it was something I turned to. So just as an addict may ask a higher power to help, I think it could apply to someone wanting to quit smoking. Ask your higher power to help. Maybe it is something you can't do on your own and could use divine intervention. Everyone thinks of turning to a higher power for drugs or alcohol but smoking is considered an addiction too.


  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited January 2020

    Also why not give yourself time. Instead of thinking you must quit immediately, try doing it gradually. Give yourself six months to tackle the problem. Try to take small steps, one a day or a couple a week, to get you closer to your goal. Some people quit cold turkey but others like me do it over time. Practice self care. Don’t get down on yourself or berate yourself.

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    Devine - exactly. "don't get down on yourself"

    Gradually worked for me. I was still smoking in my house & car. Stopped smoking in the house first. Then several weeks later stopped smoking in the car. Once I was self restricted to the front porch I started stretching out the intervals between smokes. By the time I started Chantix I was already down from a pack a day to one every couple of hours.

    I did have to stop some 'triggers'. For example, I had to give my morning cup of coffee for awhile. Every time I wanted to smoke, I banged out of the house and walked around the block (and yes there was some swearing going on with the walking). I washed everything in my closet or took it to the cleaners. I treated myself by having the carpets & drapes cleaned. Boy, after that expense i for sure wasn't going to smoke in the house again. Or in my clean clothes. My son still jokes about my 'smoking jacket'. The last smelly thing I put on when I was giving up those last few smokes.

  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited January 2020

    I've been too embarrassed to go back in the stop smoking thread. I've been waking up everyday for the last 3 1/2 years telling myself that I am a non smoker. I was wanting to quit even before diagnosis. Once diagnosed I kept on trying, I did pretty good until radiation planning and scheduling threw me over the edge. I had most treatments in the afternoon but as soon as I was out of there I lit one up for the ride home. I did like Minus2 and others have done and gradually got down to 2 a day and somedays zero. Late summer early fall I stopped for a period of almost 2 months. Stress in life triggers an unbelievable craving in me and I eventually give in. So as I worked out the I don't believe it's the nicotine keeping me smoking, it's my emotions. I don't know when I will get them under control. My husband in late Oct. was diagnosed with small cell lung cancer. (yes the one you get from heavy smoking!) He stopped for a while too, but has recently started again, and what am I going to say? It's going to kill you? Geez! I just let him go, at least it's no where near the amount he was smoking before.

    We have signed up together for a free stop smoking class with the hospital that will start up again in Feb. Meanwhile, everyday I try not to smoke, but I have been failing. Since the New Year, I've made it 1 and a half days total smoke free.

    Lastly, do you all have annual low dose CT lung scans? I would recommend asking to get this screening test if you do not. My husband had one in July that didn't show cancer but pneumonia. He went for a follow up in 6-8 weeks with contrast and there was further obstruction found, was referred to a pulmonologist which he had appt. for 1st of Nov., but had so much pain he ended up in the hospital and got diagnosed there. That's how fast and aggressive this cancer is. He has extensive stage mets everywhere except not to his brain yet. Why that's not enough to make me want to quit for good is beyond my comprehension???!!!

    So, hang in there, I get it. It's hard to stop even when all the risks are right in front of your face! One day my heart, brain, and that higher power will all come together and it will work! Great tips here too, Thanks for listening.


  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited January 2020

    ctm - never, never be embarrassed. No one should point fingers, and if they do... break it off. I can't even remember how many times I quit before the last time. When the time is right for you, it will work. Maybe February.

    Actually I quit smoking when I was first diagnosed with osteoporosis - 4 years before cancer. I was petrified that I'd fall, break a major bone & be warehoused in a nursing home. I quit drinking cokes at the same time since sodas are bad for bones too. It was almost as hard to quit the cokes as the smokes.

    Sorry to hear about your DH. If he's in treatment, I hope the SEs aren't too bad. My neighbor has lung cancer and still smokes - but he changed to "swisher sweets". He lights, has a few puffs and then puts out for later - so one lasts most of the day. Of course his wife is furious that he's smoking. But of course she never smoked so has NO CLUE how hard it is.

  • KIDI919
    KIDI919 Member Posts: 425
    edited January 2020

    CTM: WOW don't be embarrassed! Nicotine is just as addicting as narcotics but no one offers a inpatient program for that! They just tell you to quit. Chantix is costing me around $300 a month so I damn well better try really hard this time around. Oddly none of the 3 doctors I've seen have said anything about smoking. Weird. Altho OC is sending me for a bone density as a way of persuading me to start Al. Best of luck to everyone on this journey.

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