Triple negative DCIS

fmdwala
fmdwala Member Posts: 5

Hi,

I have been diagnosed with triple negative DCIS on my right breast. I have had 3 rounds of chemotherapy with Taxol. I had a mastectomy with sentinel & axillary lymph node removal about 2 weeks ago. There is also a drainage tube attached. Drainage started with 500mL and now it is at 100mL for the past week. My surgeon suggested to remove the tube in 15 days depending on the drainage amount & rate. My oncologist wants to start chemo again in 1 week. Is it possible to start the chemo with the drainage tube attached? If not, what are the other alternatives to the drainage tube that allow me to start chemo as soon as possible. With this kind of aggressive cancer, I do not wish to wait any longer and want to start the chemo immediately. Any suggestions would be very helpful. For those people diagnosed with triple negative DCIS like me, during the chemo which drugs did they use and how many treatments did you receive?

I appreciate any and all advice on this.

Thank You

Comments

  • Beesie
    Beesie Member Posts: 12,240
    edited December 2019

    DCIS is a pre-invasive condition, and as such, chemo is never given. Therefore those with DCIS who are participating in this forum won't be able help you.

    It is very common for some DCIS to be found together with IDC, invasive ductal carcinoma. I'm guessing that's what's happened in your case - that you have DCIS plus IDC. Since IDC is the more serious condition, your treatment plan is based on the IDC.

    I'd suggest you repost your question in the Triple Negative forum, https://community.breastcancer.org/forum/72 where I'm sure there are others who've been in a similar situation as you and can offer advice. Good luck getting the answers you need

  • Martaj
    Martaj Member Posts: 325
    edited February 2020

    Fmdwala, I had chemo for aprox 5 1/2 months before surgery. It shrunk my tumor to no existance. I had partial mastectomy little over a week ago with reconstruction and axilary node. Good thing is all margins were clear. I have triple neg breast cancer as well. I've been in a clinical trial, start radiation in 2 weeks. Surgery went great except for large seroma under my arm. I have had to have it drained a couple of times. Meet with oncologist again today

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