Faslodex

Vilma65
Vilma65 Member Posts: 111
edited December 2019 in Stage IV/Metastatic Breast Cancer ONLY

Hi, sadly I have to move on from Ibrance and it seems (will know for sure after ct and bone scan) that my next treatment will be only Faslodex. Will love to hear from women that are only on Faslodex, especially for how long and how effective it has been

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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited December 2019

    Vilma, I think the trials indicate averages are just 4-5 months with Fas alone after I-F ( half will go longer than that); with a 30% chance you are still fully sensitive to CDK4,6 inhibitors, so why not continue to include Ibrance or try Abemaciclib and try to double your response time? Or Faslodex and Piqray if you have PI3K mutation. Generally when the cancer mutates to get around the drug it becomes more aggressive, so you want to avoid quick progressions

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  • ZZZAAAZZZAAA
    ZZZAAAZZZAAA Member Posts: 43
    edited December 2019

    Me too the same question Will love to hear from women that are only on Faslodex, especially for how long and how effective it has been?

    my mom 71 years stage 4 bone and liver many thanks

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited December 2019

    I know that my MO has faslodex as the next runner up for me too.

    I don’t want to leave Ibrance.

    Curious thank you so much for your response! It is good to have this in my “question box” to discuss with my MO. Frustrating that it doesn’t work for very long cr

    My MRI and bone scan show progression and my CT scan shows things as the way they’ve always been. So we are confused now and awaiting insurance approval for a PET scan, which could take a few more weeks with the holidays and all.

    Makes me nervous to continue on a med that may not be working if the cancer is possibly becoming more aggressive.

    It’s so tough to live in the unknown!!

    I would also like to know how people felt on Faslodex. How was it for you?

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  • Vilma65
    Vilma65 Member Posts: 111
    edited December 2019

    hi Curious, thank you for your response. It does give me points to discuss with my mo. She talked about the possibility to add abemaciclib but worried since I have Crohns and it seems that it may not be great on my digestive system. I dont know about mutations, in Canada is not common to biopsy.

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  • Vilma65
    Vilma65 Member Posts: 111
    edited December 2019

    hi Curious, thank you for your response. It does give me points to discuss with my mo. She talked about the possibility to add abemaciclib but worried since I have Crohns and it seems that it may not be great on my digestive system. I dont know about mutations, in Canada is not common to biopsy.

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  • melmcbee
    melmcbee Member Posts: 1,119
    edited December 2019

    Faslodex kept my bone lesions stable for 3 years. I just metastasized to colon and it changed to ER neg. Hope you get a long time out of it. Im moving to Xeloda.

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  • Vilma65
    Vilma65 Member Posts: 111
    edited December 2019

    Melanie, 3 years is great! I also have mets in the liver, hope the treatment is effective for them too. Hope that also for you next treatment is as least as effective !

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