Cmf and hair loss

I lost 85% of my hair from CMF. I was one of the unlucky ones. But it started to grow back before I finished treatment. I’m about 8 months PFT and I have about 4 inches of hair. I got hair extensions in October when my hair was about 3 inches long and it has helped my self-esteem tremendously.

I didn't cold cap. I actually couldn't because I was taking the classic CMF with the cytoxan pill for two weeks so cold capping would have been impossible.

I have thick fast growing hair so maybe that's why I lost so much. I lost at least half of my hair about two weeks after my first treatment. It continued to shed throughout my treatments, but obviously there was less to lose as treatments went on.

Try a wig cap. I did not cut my hair until after treatment was over. I had a beautiful human hair wig and tucked my real hair under a wig cap. The wig felt very secure with this method

JRNJ, I am so sorry that you are losing so much hair I remember how devastated I was when I started to lose mine too. I wore a wig constantly. I didn’t want to wear my disease on my sleeve.

The only thing that helped me through it was knowing that my hair would grow back 100%. My doctors originally pushed me to do TC, but after talking to several women who had permanent hair loss from Taxotere, I found a different doctor that was willing to give me CMF.

I didn’t lose my eyebrows and eyelashes completely. They thinned, but i kept enough to be manageable

Hi Ladies, I hope you won't mind if I join you. I start CMF today and have not much idea what to expect. Normally they give the Stage IV ladies a lower dose but I don't think that's going to happen here. I'll know much more in 12 hours.

My MO said "hair thinning". Which is what he said when I started Halaven last January. And it's true for most people. Three weeks later it all fell out in one day, LOL. Of course it wasn't funny at the time because I was at work. . .found a baseball cap to keep me sane until I could figure out what to do.

But it grew back. Of course this time I'm much more grey but them's the breaks.

Goldensrbest ugh thats sad I’m sorry. I thought that wasn’t supposed to happen on cmf. If you don’t mind me asking when did you have mastectomy and radiation and start tamoxifen?

lol. I know there are more important things to worry about but the hair loss really bothers me. Ironically I always hated my thick course hair. But I hate my face without it more. And I hate the wig. I’m hands on house project kind of girl with hair in ponytail and can’t deal with wig. Third treatment today so next few days might be traumatic.

Hi Jrunstroop, I was just thinking about you, as hair issues are annoying every day. I wonder if I can make it through this without a wig, but I doubt it. I've lost about 60%, maybe more. I stupidly thought in the beginning that brushing it out was a good thing because it's coming out anyway, but now I brush it as little as possible. I bought a bunch of root touch up spray for the gray and the thin spots, spray my hair and put it in a ponytail, and it still looks like a version of me, not noticeable to average person. But still coming out. Yes, treatment 2 was the worst, and I have treatment 4 on Monday. Wearing it in a ponytail gives me some control over the situation, so it only comes out when I want it to instead of shedding all over the place. I take the ponytail out, run my fingers through it, light brushing. Let me know what they say about biotin. I bought a bottle but am afraid to take it. Don't want to interfere with the chemo. I went on MSK website and they have a biotin page. Doesn't say not to take it during chemo, but has a few warnings regarding interfering with lab tests.