CRAZY TOWN WAITING ROOM - TESTS coming up? All Stages Welcome.

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    Beppy, you are always in my heart! Miss you so much!

    Molly, yes, thanks, side effects have been minimal...no skin irritation though I had a lot with breast cancer, but then, they are zapping a very different (and smaller!) area. My eye waters a bit right after the daily zap, but only for five or ten minutes...So, almost no SEs....until this week that is: when, while it hasn't been awful, I've been hit with serious fatigue. I am working remotely while this is going on (since tx is in CA) but today I had to stop answering email and next thing I knew, I was waking up from a two hour nap on the couch! (felt good, actually...). I mentioned it to Doc when I saw him Monday (see, even though the tumor is benign, I can't quite bring myself to call him my 'Radiation Oncologist' even though that is what he is. Crazytown in action), and he pointed out it was the second to last week and the fatigue is to be expected. I have been trying to walk a lot which helped with SEs during the bc, but it has been raining the past few days, which has also slowed me down. Overall, no complaints, though. Probably goes without saying that I can't wait to finish up and head home!!!

    Hugs to all

    Octogirl

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    oh, and some good news!! Saw the neuro-ophthalmologist last week and my vision has improved by almost 50% in the bad eye! This is particularly good news because the goal of treatment was *not* to improve my vision but rather just to keep it from getting worse and from going blind, which would have definitely happened eventually in the bad eye, and it could have grown to the point where it impacted the good eye,potentially making me blind or near blind in both eyes....

    She (the eyedoc) cautioned me that I shouldn't celebrate too prematurely, because my vision could change again....but that she was cautiously optimistic that this is a real, lasting improvement. Woohoo!

    Octogirl

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  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited December 2019

    Octogirl, here's rooting for lasting improvement!

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  • Jojo0529
    Jojo0529 Member Posts: 193
    edited December 2019

    it seems to never get easier. I hate bloodwork.. hate every appointment. Worry is the worst.

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2019

    Beppy ..I never , ever sign in here without thinking of you ...miss you !

    Rainny ..so good to hear from you !

    Octo ...no ! I could never hate you for not having to dye you hair ..but I am very envious !!! Great news about your vision !!!

    Jojo...Welcome ..you're so right ..the worry over everything really causes so much misery ?

    Hugs to all xx

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  • moth
    moth Member Posts: 4,800
    edited December 2019

    Hi everyone - I had a screening MRI w/ contrast on the 12th. It's my first ever breast MRI, my previous screening was a diagnostic mammo last Feb but I asked for an MRI this time.

    Now I wait for results, which I think will be available next Thurs (I can't get online access to these ones). The technician who checked me in and did my IV and reviewed my allergies/metal implants etc was really chatty at the beginning but at the end of the exam she was kind of abrupt and busy fussing around with things in the room when I left. After I walked out I started to wonder if she'd seen something and didn't want to meet my eyes... otoh, my exam was delayed because of a problem with the table and I think they were running behind so maybe she was just legitimately frazzled.

    but when you're waiting for scan results, it's easy to imagine the worst so here I am in crazytown

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    moth, pull up a chair on the Crazytown porch and have a cup of tea or a margarita or whatever you want. We will wait with you and are in your pocket! Waiting for scan results is not fun! Do keep us posted and fingers crossed for excellent results!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2019

    image

    Here’s our Mayor of Crazytown.....came to see me all the way from her home town...I miss her so much..

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2019

    She was very special. She made this place feel like a refuge when my life was going to pieces.

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  • Di2012
    Di2012 Member Posts: 925
    edited December 2019

    So right Mommyof2! Beppy was a special person to so many of us!!

    Di

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2019

    Hi ladies...went with my daughter today for her biopsy...they did a vacuum biopsy and got 4 to 5 pieces of tissue...result in 2 days..she was so brave, and I know i hurt because mine did...extra Lanocaine jut like me.....I can’t even think...my kids are talking about xmas eve which is always at my house and do you mind if I say I don’t give a “F” about Xmas right now.....and its at my house and has bee since my first was born and that was 62 years ago....This cannot be happening...I know I am thinking to much to far ahead, but I cannot go through this again....my husband died from Pancreatic cancer and could God be so cruel to do this to my daughter.....All I say is Dear Lord..not my daughter....Can’t handle much more...will ot even tell you of all the other problems with health issues in my family...but when you have 6 children all married....18 grandchildren 7 married, and 11 great grandchildren with another on the way.....your bound to run out of luck sooner or later.....thse next 2 days will be pure hell......I have a son with Melanoma...a son-in-law with prostate cancer...and just found out another son has a bubble on his aorta that they say they have to watch.....not to mention a great grandson with a spot on his eye that they think could be melan;oma and he is 4 years old.......a year old great grandson that is being tested because he cannot control his head movements...all typ;e sof testing at CHOP in Philly........and you all remember Grayson who is no 8 and still in a wheelchair after a traumatic birth being the 2nd twin delivered and the Dr. tore her spinal cord delivering her feet first....Sorry ladies, I guess I’m just venting tongiht......aren’t you glad you have me back........hugs and prayers

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    ducky, of course we have your back and with all that, I wouldn't feel that much Christmas spirit either! Sending hugs!

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2019

    Ducky, go ahead and vent. It’s not good to keep that all in. Keeping you and yours in my thoughts and prayers.

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2019

    Ducky ..so sorry ...you have every reason to vent ! I know what you mean about Christmas....it's hard to care about it with everything going on ..I will pray for your daughter to have benign results ...which would be the best Christmas present ever !!!!! Hugs

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2019

    Hi Ladies..love you all...and yes...that would be the best xmas present ever.....thanks for the prayers..I told Nik and she thanks you too

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2019

    Ducky, vent away. That's what this thread is for. I'll say a Mi Sheberach (prayer for healing) for your daughter.

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2019

    Hi...Today is a happy day...the Dr. called and my daughter has something called PASH..it is a non cancerous mass, but has to come out so it does not show up again in future MRI’s that she will have done which are routine..(dense breasts)....thank you for all your prayers...you ladies are the best hugs...God is good

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  • M0mmyof3
    M0mmyof3 Member Posts: 9,696
    edited December 2019

    Prayers answered!


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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2019

    Ducky ..WooHoo ..great news ! 🤗

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  • Di2012
    Di2012 Member Posts: 925
    edited December 2019

    DUCKY, GREAT NEWS! For both your daughter and you!😀

    Di

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    WooHoo Ducky!!!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2019

    Fantastic, ducky!

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  • moth
    moth Member Posts: 4,800
    edited December 2019

    My MRI results were clear! BIRADS 2, all benign. Happy Dance. Thanks for waiting with me & best wishes to everyone

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    yay moth! Excellent news!

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2019

    Congrats, moth!

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  • duckyb1
    duckyb1 Member Posts: 13,369
    edited December 2019

    Moth, you don’t k’now me...I”m an oldie on here as far back as 2011....I won’t say Goodie, cause that may not be true.....

    Just want to say Fantastic news...that’s 2 good reports in a couple days.

    They did tell my daughter the were going to remove this PASH thing.....but in a conference yesterday the Radiologist, Surgeon, and Oncologist agreed surgery did not have to be done......The Radiologist said because she took so many tissue cuts 4 to 5..there is probably nothing left since it was so small.....not sure I agree with that, but they made the call, and my daughter 3was satisfied.....I just think if there is even a piece left..won’t that show up as a suspicious spot in the next MRi, even though they know this PASH thing is never cancer or pre-cancer.....so its a done deal I suppose....just glad its all over...hugs to all of you

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  • Lucy55
    Lucy55 Member Posts: 3,044
    edited December 2019

    Hi all ..9.35 pm Christmas Eve 🎄 here ...I'm starting to think about getting to bed before Santa comes 🙄.A very busy day tomorrow ..28 of us in total ..luckily my niece who lives 15 minutes away is hosting it this year ..Just want to wish all of you a happy , blessed Christmas ..hugs



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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2019

    Same to you, Lucy, from this side of the Int'l Date Line!

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  • octogirl
    octogirl Member Posts: 2,804
    edited December 2019

    28, wow I am impressed! Hope you had a wonderful Christmas Lucy! Today is quiet here: just me and hubby and my sister, who is visiting for a few days....but we did get a white Christmas with a bit of snow!

    Happy Holidays to all!

    Octogirl

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  • ChiSandy
    ChiSandy Member Posts: 12,133
    edited December 2019

    We're warmer here in Chicago than in L.A.!

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