feeling defeated with severe osteoporosis

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  • edj3
    edj3 Member Posts: 2,076
    edited December 2019

    My MO referred me to an endocrinologist because I fractured my pelvis from running. (I didn't fall, just from running . . . ok a lot)

    I've only had one injection (in September) and that was at my endocrinologist's office.My MO's PA said maybe Reclast would be an option--I know b/c of the pelvic fracture, I did not pass go, I did not get $200 or a script for any of the oral meds. All my MDs know I won't stop running so the goal is to get my bones in good shape.

    I'm a fan of that.

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  • ctmbsikia
    ctmbsikia Member Posts: 1,095
    edited December 2019

    Received my 1st Prolia shot yesterday. Happy to report I feel fine. My MO is aware of fracture implications when stopping this medication. She mentioned Fosamax as a possible med for when I go off this and the AI.. I have also read where Reclast has been given to patients coming off Prolia with no adverse effects.

    Also had annual lung CT which shows calcification of coronary arteries. MO recommends I see a cardiologist. I bit my tongue and kept my thought to myself, but to me it's much better to drop dead of a heart attack than to put up with this crappy cancer.

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  • BrooksideVT
    BrooksideVT Member Posts: 2,211
    edited December 2019

    A few sessions of physical therapy can teach you resistance exercises designed to strengthen your bones. Some communities or hospitals offer an exercise program called something like Strong Bones, designed primarily for seniors. All of us should be doing these as we get older to support our muscles and bones. And walking, of course.

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  • DorothyB
    DorothyB Member Posts: 305
    edited December 2019

    Most YMCAs offer a free program (and you do not need to be a member of the Y) called LiveStrong which teaches various exercises for strength training as well as doing cardio and providing other support.

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  • trinigirl50
    trinigirl50 Member Posts: 343
    edited December 2019

    Perhaps they can change you to Tamoxifen.

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  • jessie123
    jessie123 Member Posts: 532
    edited December 2019

    The reduced bone mets with Prolia information may have changed. I read this article last night, but don't know how to post it. It's in "medpage today" and I was able to copy the article title ---

    Denosumab Does Not Alter the Course of Early Breast Cancer

    -D-CARE trial failure spurs reassessment of adjuvant treatment with bone-modifying agent

    The article went on to say that Fosamax does reduce the risk, but Prolia does not.

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  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited December 2019

    I'm not looking to reduce further risks of cancer. Just increase bone health - or at least keep it stable.

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  • trinigirl50
    trinigirl50 Member Posts: 343
    edited December 2019

    or Aromasin. Supposed to be less harsh on your bones.


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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited December 2019

    I am on fosamax and have been for 2 years. My dexa scan before going on femara two years ago showed I had osteopenia. I just had a dexa scan a few weeks ago and the osteopenia is gone. The fosamax reversed it. Everything came back normal so fosamax at least for me is doing a good job.


    Nancy

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2019

    Yay Nancy! What a relief, no? I'm glad Fosamax works for you. (It's a lot cheaper than Prolia, too!)

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  • jessie123
    jessie123 Member Posts: 532
    edited December 2019

    Nancy -- so glad to hear that. I haven't even gone on the AI's yet because I already have osteopenia and I just don't want osteoporosis or Prolia. Now I might consider the AI since the Fosamax is working for you.

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  • Nancy2581
    Nancy2581 Member Posts: 1,234
    edited December 2019

    Thanks ladies. I am really glad the fosamax is working. I was so afraid my dexa scan was going to be worse this time around.

    Elaine - nice to hear from you. Hope you are doing well. I read on the other thread you lost some weight. Lucky lol. I'm jealous since I've gained. Grrrrr

    Jessie I would definitely give both a try. You can always stop. Fosamax and femara are my security blanket

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  • ElaineTherese
    ElaineTherese Member Posts: 3,328
    edited December 2019

    I am doing well, Nancy. Yep, I lost some weight, but I've gained two pounds in the last two weeks. Thanks, Christmas. Time to eat more salads!

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  • windingshores
    windingshores Member Posts: 704
    edited January 2020

    I have had osteoporosis for 13 years and have been on Femara for 5, with no new fractures. I hope that can be true for others. I am not medicated for bones.

    I cannot tolerate any of the osteoporosis meds, many of which affect my afib. I had three spinal fractures prior to osteoporosis (traumatic fall) but have NO new fractures in all this time. Due to the spinal issues I cannot do weights or many exercises that might strengthen bones. I do Tai Chi three times a week and walk.

    The aromatase inhibitors cause a more rapid drop in bone density but then things stabilize. Similar to the drop at menopause, which is steep but then stabilizes. I have read that bones rebound 10% once we go off the AI's.


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