Worried, scared, and need words of encouragement

Options
MzCat
MzCat Member Posts: 4
edited January 2020 in Not Diagnosed But Worried

I just turned 40, and a mother to three kiddos. About 6 months ago I went for my annual check-up, my doctored mentioned thickening on my left breast and what she said felt like a ridge. I personally never felt any difference in my breast, but her finding quickly turned into me getting a diagnostic mammogram and ultrasound.

Fortunately what my doctor was concerned about turned out to be normal breast tissue, and unfortunately my mammogram showed an area of architectural distortion in a totally different array. This meant biopsy and removal of the area. I was given a braid score of 4.

I was elated when my biopsy came back benign. However my radiologist and breast surgeon felt removal and biopsy was the best course of action. So we set a date for my savi scout to be placed and for surgery.

This is where my world turns upside down.

*Trigger*

My surgery was outpatient and should have taken only about 45 mins to complete. Durning surgery I went into anaphylactic shock ( or some other reaction but it is noted as allergic in my documents). My surgeon had just made the incision when it occurred. We are still not sure what caused the reaction, but my routine lumpectomy was quickly aborted and they worked on bringing me back. I spent the night in the hospital for observation, barely missing a stay in ICU.

During my post op visit ( still had to recover from the incision) my surgeon and I discussed just monitoring the area and to work with an allergist to see what the trigger could be. The only way my radiologist would feel comfortable with this scenario is if I had an MRI and follow up mammogram, and there was no change to the area. Absolutely! If that meant not having to go through surgery again!

Well... I had the MRI and good news there is no change in the architectural distortion. However the MRI picked up a non mass-like enhancement 13mm. In the same breast Braid score of 4. So I'm back into the realm of biopsies and potential surgery. MRI guided biopsy is set for next week and a visit with the allergist today to discuss local anesthetics, we think lidocaine might be the culprit.

I'm absolutely beside myself. There is no other way to put it. My anxiety is crippling and I just can't grasp my mind around why this is happening.

If you have taken the time to read one of the chapters from my life novel, thank you. I'm just in the need of encouraging words and positive vibes. I'm cautiously hopeful that things will work out for the good but these past six months have been a roller coaster that I’m ready to come off of.

Comments

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited December 2019

    Goodness I am so sorry to read you are having problems with anesthesia. I know that is scary. It sounds like you are taking all the right steps though and checking it all out thoroughly. Once they know the issues they can help you get a good course for you to follow for treatment. You are smart to know yourself and be your own advocate. Hang in there.

  • Beaverntx
    Beaverntx Member Posts: 3,183
    edited December 2019

    MzCat, you are certainly on a roller coaster with so many unknowns! You do seem to be on the right path to identifying them. Congratulations on taking care of yourself. Hang in there and keep us posted please.

  • dysonsphere
    dysonsphere Member Posts: 204
    edited December 2019

    I'm so sorry you have gone through so much already. I think the best thing to do is to always hope for the best news, but be prepared for what could happen. I have faith that whatever happens in my journey there are doctors who know how to treat it and that I will be up to any challenge. I always keep my little boy in mind when I think I can't handle something. Please keep us updated!

  • Moderators
    Moderators Member Posts: 25,912
    edited December 2019

    MzCat, and welcome to Breastcancer.org,

    We are sending you positive thoughts as well! Scary time during your lumpectomy, for sure, but we're so glad they're getting down to the bottom of it!

    Please keep us posted as you find more out. We're all here for you, hoping for benign results.

    --The Mods

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited December 2019

    MzCat - sorry for your troubles.

    Do set up an appointment with the head of anesthesiology at the hospital. There are lots of different things they can use to sedate you that might change your reaction. The gas they used on me the first time left me unable to stop throwing up, but worse, they couldn't wake me up in recovery for a long, long time. Wish I could remember, but the next time they did not use that gas. Also I got a scop patch so had no nausea.

  • MzCat
    MzCat Member Posts: 4
    edited December 2019

    Thank you all for the kind words and suggestions. I’m trying hard not to let my emotions rule but it is very hard at times. I’m just ready for some solid answers and to move forward, whatever may be in store for me.

    Yesterday I had another visit with the allergist to retest on lidocaine.The past few months we have tested every drug that was used during surgery and this is the only one that showed a reaction. Again yesterday, it showed a reaction. So it is a good bet that this may be the reason of the major reaction during my surgery. So now I’m being tested on other locals to see what I can be given for my biopsy next week. My allergist is also prescribing a regimen to be taken ahead of time as a preventative.

    If surgery is in my future (which I’m sure it will be) I plan to have ALL my ducks in row before going through with it. I’m hopeful but nervous.
    Thank you all again. I will definitely keep you posted.

  • MzCat
    MzCat Member Posts: 4
    edited January 2020

    *UPDATE* Hi, wanted to give an update for those that were kind enough to respond. I know often people may not update if they get good results. I had an MRI guided biopsy right before the holidays, it wasn’t an awful experience but definitely not one I wish to do again, lots of blood and a hematoma. They only did the biopsy on the new area found on my MRI and left the previous area alone.Fortunately the new area is normal tissue and stromal, it looks like it is starting to form another radial scar. This is what I was told from the radiologist. I’m cautiously optimistic at this point, but do have to meet with my breast surgeon again next week. This is the part that scares me the most, especially after my last experience with the incomplete lumpectomy and reaction. Fingers crossed!

Categories