Well maybe Lumpie has access to the full study..

Very interesting observation Lala. Here’s an article on benefits of perine, bioperine, peperine

https://www.livestrong.com/article/534594-benefits...

marljen,

Interesting article. It's also worth it to read the comments, especially the first one. The patient did not continue her treatment, regressed, and subsequently passed away a while later. However, this methodology of treatment still seems promising if one would stick with it.

I think the theory behind the treatment still seems promising. It ties into a lot of things that I've been reading. So it was worthwhile to post!

Re "run it by your doctor first"-- YMMV.

Unless the specific MO is *also* trained and experienced in complimentary practices, they will often say a blanket "no" to antioxidants as there are not double blind clinical trials proving their safety and helpfulness. (My home town MO said the same.) I also went to an Integrative Oncologist for a consult, and got very different advice. Due to his 30 years of clinical practice data, I had confidence in him and I followed his recommendations, which involved a boatload of antioxidants, including a heavy dose of curcumin daily. My hometown MO looked up every recommended supplement and found nothing contraindicating their use. I began the supplement protocol in early chemo and followed it throughout my treatment and am still on it. I feel insanely good-- no more aches and pains-- and I had a perfect response to chemo. Besides supplements I had an exercise regime and a diet regime. My home MO told me that he believes the complimentary practices made a large difference in my outcome. I was 3C by current rubric... 3.8 cm TNBC tumor and 3 cm lymph node. Grade 3. Got a pCR. It makes me so frustrated when I hear comments warning about supplements from non-specialists. I think they helped me beat my odds -- and so does my former-doubter MO.

Yes the Integrative Onc (Dr Keith Block) takes insurance and can treat you from afar even; many of his patients fly in for their chemos. But not everything he does gets reimbursed (he does IV curcumin for example, which was not available in my town). I was tempted to go to him but the thought of getting on a plane to Chicago every 3 weeks just sounded too daunting. I was able to duplicate most of what Dr Block would have done in my home area. Some of his innovations are to give much slower drips and to "pulse" the chemo according to circadian clock; that was another I could not duplicate but the rest I followed to the letter.

The consult I did was actually a third opinion so I did not submit it to insurance. It was $1800 for a four part consult-- I spoke to three different people for one hour each re diet supplements exercise stress/psychological.... and then got 1 hour with the MO. After you do this you can get 15 mins with doctor for $150 any time for those pesky next-generation questions.

Best $1800 I ever spent.

Lumpie, can you find anymore info on this one?

Research team discovers drug compound that stops cancer cells from spreading

https://news.ohsu.edu/2018/06/22/research-team-dis...

If you search the Fenbendazole Thread, my whole list of supplements is on there. Most are antioxidants. All but Metformin are OTC.

Ok, sorry-- I can't find it either! Here's the whole program of what I did for complimentary stuff, most of it from Dr Block and a few things per a naturopath in my town. NOTE: I had TNBC which may make a few recommendations different. I also have NO underlying conditions or health problems that others might have that might contraindicate some of this. So, YMMV.

MORNING meds 500 mg metformin (taken for anti cancer purposes not diabetes purposes); 400 mg Vitamin E & 400 mg pentoxifylline - for post rads fibrosis prevention

EVENING meds 500 metformin, pentoxifylline, ashwaghandha 600 mg, Magnesium Citrate 500 mg, Niacin 500 mg, Melatonin 20 mg (work up to 20 mg slowly)

Other Supplements, which I split up am/pm mealtimes... I do rotate a couple of these in and out, and give myself pill free days here and there when I need them... But basically each day I take:

D3 5000 IU , ALA 300 mg, Wild caught Nordic fish oil ~2000 mg, Curcumin 6000 mg, Quercetin 2000 mg, Vitamin C 1000-2000 mg, Berberine 1000 mg, Luteolin 100 mg, Sea Buckthorn 500-1000 mg, Rose Hips 500 mg, Astralagus 2600 mg, Feverfew 760 mg, Selenium 200 mg, Ubiquinol 200 mg, Resveratrol 500 mg, EGCG (Green tea extract) 1340 mg, B6 50 mg, Om Reishi Mushroom Superfood 1500 mg, Super Greens Organic green powder 8g, Zinc citrate 50 mg, Calcium D glucarate, 81 mg aspirin Took organic whey protein isolate during chemo for extra protein when I felt food averse.

Pectasol modified citrus pectin: 3 scoops/day. best on empty stomach. Took for 2 weeks prior to LX surgery. Going back now to it due to my high AR+ and the recent trial results re prostate cancer. Doubt it can hurt and it might help.

A couple of these supplements, like the PectaSol, were not suggested by Dr Block but by a naturopathic physician I see. But 90% was via Dr Block. Pentoxifylline from RO. Astralagus came in recently for blood support on the rec of a BCO friend.

During chemo I also took 750mg L Glutamine on day before, day of, and day after chemo per Dr Block. Claritin 2 days prior to chemo day for 7 days. Also did Fasting mimicking prior to each chemo (not Dr Block but via Dr Valter Longo). Also did a ton of heat on my tumor & node (hyperthermia). Lots of heat for 2-3 days prior to chemo. Heat is very damaging to cancer cells at temps not damaging to healthy cells.

Dr Block recommended Interval training or other aerobically intense workout 3x week & pilates or yoga 2x week and also support or meditation to deal w stress. I did all that. Did intervals on the morning of chemo and did well on exercise until the last 2 chemos made me too breathless.

Dr Block recommends an organic pescatarian/vegan whole food diet favoring anti cancer foods (alliums, peppers, ginger, berries, greens, etc) Pre and probiotics, legumes, etc. LOW egg, LOW dairy. I probably did a little too much of both of those but cut way way down from my former diet. I lost 30 lbs following these plans and feel FANTASTIC. No aches or pains that I used to have (I am 58).

Once a month, still, I take artemesinin suspension and ALA in am, then I get Hyperbaric Oxygen, then I go straight to my High dose C IV. I used to do this routine 2x a week during chemo but dropped back to 1x a month. after treatment. Also during treatment I got a few Vitamin D injections and a few glutathione injections. When in chemo, I would typically have chemo on a Monday, then do High dose C on Weds/Fri.

Hospitals Sue Trump to Keep Negotiated Prices Secret

SantaB (sorry, one more question),

Which curcumin supplement do you use?

Lanne

Lumpie - I like the idea of a forum dedicated to supplements. What a person takes and why., brands they like etc. Do they let the Oncologist/DR know what they are taking, and is the DR supportive or have any opinions. Usually the information on supplements is included on what ever forum someone is posting to. So information can be very scattered - but I'm finding this to be true of the forums in general. An ND recommended green tea (alot), a mushroom powder, among other supplements for my cancer. For the most part, my oncologist feels I should get as much as I can from real foods, and not supplements ( I agree, but sometimes it is hard to get "enough" of a particular substance in food). She also exressed some concern about the mushroom powder, since not mush is known about interaction with other drugs. I do take a number of supplements (mostly vitamins).

2009 ER+ left breast. 52 yrs. Lumpectomy, Sentinel node removal, negative. Radiation 6 weeks, tamoxifen 5 years. Dense lumpy left breast, normal right. Acupuncture offered at facility as part of integrative medicine. It really helped with anxiety/stress during radiation treatment.

2016 ER+ left breast. Probably a new cancer, but unknown. 4 rounds TC Aug-Oct 2016, Bi-lateral (my choice) Nov 2016, no reconstruction. 2 sentinel nodes remove, negative. Cold Capping using Chemo Cold Caps (DIGNICAP not available). Anastrozole 1 mg starting May 2017. Joint issues noticed immediately. Stopped Anastrozole after 3-4 months due to joint stiffness in. After several months of no AIs, fingers were feeling better. Started tamoxifen March 2018

10/2018 noticed stiffness and some trigger finger again. Was eating meat a lot more (daily) than normal. Usually 1-2 /wk. Have cut way back on the meat, seems to help, but one finger still very prone to trigger finger. Trigger finger seemed to be getting better, but now 4/2019 seems worse, is it the break from added turmeric to meals?

Swelling in R-arm, opposite side from where lymph nodes removed. Noticed 6/18/2019. Could have been swelling earlier but wearing long sleeves. Trip to urgent care. They did ultrasound, concerned that there might be a clot, there was not. Started seeing lymphatic therapist 7/2/2019. Stopped seeing lymphatic therapist early October. She did not think it would help until tumor removed/chemo'd/radiated into oblivion.

8/2019 CT, Breast/chest , neck/thyroid ultra sound

9/2019 DR ordered biopsy, said it could be lymphoma, cancer, benign lymphatic. Biopsy R-axilla. Cancer. Genetic test showed no known markers (20+ looked for)

9/29/2019 PET scan, no indication of spread. Arimidex and Ibrance prescribed to shrink tumor prior to surgery.

10/2019 – Stopped Tamoxifen. Started Arimidex and Ibrance. Brand name Arimidex so far does not seem to have the SEs that generics did, but stiff/trigger finger on left middle finger returned.