Bone health on AI

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Stage2ire
Stage2ire Member Posts: 82

Hi

Just wondering if anyone on here knows if it's essential to supplement calcium?

I take aromasin daily, monthly zoladex and zometa infusion every 6 months. I've been very sporadic about taking calcium and haven't taken out at all in a few months now.

Is it essential? I take vit d, eat pretty well and walk a lot. Not much dairy in diet though

Any thoughts really appreciated


Comments

  • Claire_in_Seattle
    Claire_in_Seattle Member Posts: 4,570
    edited November 2019

    Ten years later, I still take Vitamin D and Calcium supplements. I also make sure that I get in a ton of weight bearing exercise. I did 5 years of AIs and ended up with normal bone density. I am a tea drinker, and this is with whole milk. I also take milk or cream in coffee.

    Good work on the walking.

    I didn't do any of the bone-building infusions, so can't help you there. I will say however that once you are past all the breast cancer treatment, you need to think about bone health. I have seen what happens when bones aren't strong which is a series of broken bones for minor falls. Very, very painful and life-limiting.

    Make sure that you do all the building blocks for bone health. If you really want good intel on this topic, check with a dietitian. Your health service should be able to help you out here. Good luck and congrats on being at this point. - Claire

    p.s. Happy Thanksgiving!!!

  • bcincolorado
    bcincolorado Member Posts: 5,758
    edited November 2019

    When I went on letrozole (Femara) i developed osteopenia quite a bit and labs showed calcium in my blood from my bones. I had to take double the amount of calcium each day and start Prolia. I kept it up until I was able to stop letrozole. I also increased walking each day to ensure up and weight baring on my hips each day which is where DEXA scan showed a lot of weakness. I also shrunk 2" while on it over a period of 4 years.

    Everyone is different on how they react to medications though. I personally HATE milk and always did. Did not eat a ton of cheese. Just took extra supplements. Anything is better than cancer as far as I'm concerned!! Happy Thanksgiving.

  • Daylightdancer666
    Daylightdancer666 Member Posts: 50
    edited December 2019

    Hey all

    As my cancer has spread to the bones and back. The I have been offered bond injection used for osteoporosis however I've only had it once since June as that is because rest time my calcium has been too low I was taking calcium d3 which kept my levels up once got injection ND this was couple months ago though was taking thrn I remained low do between discussion between my dad and oncologist was decided I try what my dad has cacit tablet which dissolve on water and drink it I have trice day I drink it then have tablets morning and then night helps me remember. I they decided this see if was absorbed better find out next week xxx

  • Coconut_mom1
    Coconut_mom1 Member Posts: 4
    edited February 2020

    Dear stage2ire

    I have almost completed my 5 years of Anatrozle treatment. I was put on actonel because of osteopenia. I am having numerous Utis. I think it is the bone medication. I feel right now I can no longer take the medication. I also fee like stopping Anatrozle because of my bones at the end of the treatment in a few months. I am completely frustrated

  • Tiny2261
    Tiny2261 Member Posts: 2
    edited September 2020

    My doc has me on calcium and 5000 it of vitamin D.He seemed to be very concerned about my bone density.I feel better taking my vitamins. Either way can't hurt .

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