Male and Confused. Symptoms don't match Results

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Superman17
Superman17 Member Posts: 24
edited November 2019 in Not Diagnosed But Worried

First I'm Male and to say I'm scared out of my wits would be an understatement. Anyways here we go. I have an elarged right breast and areola and tenderness in there. Diagnosed by ultrasound as having Gynecomastia via ER doctor. Fast forward 2 weeks later getting pain numbness and tingling starting at neck, shoulder blade, bicep,tricep,forearm,hand and into finger all on same side as supposed Gynecomastia. Went and saw a Dr at Comprehensive Breast Center. Did a digital mammogram and ultrasound and diagnosed me with Gynecomastia. Is there anyone with any insight? Do I believe this or continue further? I'm scared and idk what more to do. He seemed insistent it's Gynecomastia.

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  • Lou10
    Lou10 Member Posts: 332
    edited November 2019

    Sorry you're worried! I believe there's a forum on male breast cancer on this site (unfortunately I can't provide the link at the moment). You might want to post your questions about gynecomastia vs breast cancer there as well?

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Thanks I found the forum actually. Sadly it seems not many are there anymore. I just don't know what more to do as I'm told that I've taken the golden standard of testing for men. I've had 2 breast ultrasounds and a diagnostic mammogram which earned a diagnosis of Gynecomastia. Given everything idk how much I have left. I have a wife and 2 kids and right now I'm non existent and I'm not proud. I don't handle this type of thing well.

  • Hannah1962
    Hannah1962 Member Posts: 35
    edited November 2019

    Did they have any explanation for the pain? Is the enlargement something new or recent? Was there any explanation for why it is one sided?


    What kind of comprehensive breast center did you visit, such as, are they affiliated with a medical or research center?


    I understand your concern. I received a diagnosis of breast cancer last year and had a lumpectomy in December, then radiation in the spring. However, there were two occasions in the years before my diagnosis when I went to (perhaps) the wrong place, and (perhaps) did not get the workup I should have received. For example, a couple years ago, I felt a lump before getting my routine mammogram (but within a month after my visit with a doctor who wrote the screening mammo prescription). The person who did my mammo ignored my concern about a lump, did not try to find it (which I protested at the time), did not mark it or anything, then when my mammogram came back looking normal, I was dismissed with comments about "anxiety" (hinting I was imagining the lump). Prior to that, something did appear on a screening mammogram, but they determined in a diagnostic mammo that it dispersed so was not a lump. As it turns out, my cancer, invasive lobular carcinoma, is one that does not show up on mammograms. Also, it grows in sheets and often fails to form a lump. It is a slow growing cancer. During those years I felt exhausted and unwell and saw plenty doctors. It all makes me wonder how long the cancer was there, and might it have been caught earlier? So don't be ashamed or afraid of questioning the doctors and persisting until you are confident you have the answers you need.


    My recent BC surgery was at a famous cancer center in NYC, and I am confident had I been getting my mammograms there, any relevant earlier abnormality would have been less likely to be missed (I believe that earlier lump I felt would at least have been checked and probably biopsied).

    I think male breast cancer is uncommon enough, if I were you I would want to make sure to be evaluated somewhere where they are really expert. Also, if you are having pain there, maybe you need an antibiotic? I don't know much about gynecomastia, but it does seem odd to me if it is one-sided.

    If you don't mind spending some money on a second opinion, if all else fails, you could try an online second opinion somewhere like Cleveland Clinic, or maybe Memorial Sloan Kettering in NYC (they might do them). Or if you are close to one of these places, you could try to be seen in person, which is actually better, and also more likely to be covered by insurance.


    Good luck, and I hope you get answers soon.

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Well I haven't had really any pain in the breast itself. I had 2 breast ultrasounds and the diagnostic mammogram and diagnosed gynocastemia. No lump has been found at all. I don't feel any lumps under armpit either. That's why it's so strange. Yes in makes they say it can be dual sided or one sided in reference to Gynevomastia. It's crazy. I went to a Comphrensive Breast Center that specializes in this and has their own in house Oncologist sugeon. Dr. Forsberg the Radiologist was certain. He said this is absolutely benign Gynecomastia. Idk I'm so lost because I dont have any evidence of lumps at all. Just the enlarged right breast and areola. He said the what seems like a pinched nerve in neck is unrelated. It's just the timing of it all. Does this make sense? It just seems if it was Breast Cancer causing this it would've been revealed somehow? Idk I'm just in a world of doubt.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited November 2019

    Superman17, sorry about your plight. I’m a guy treated five years ago for breast cancer and I’ve helped many men here over the years who have come with gynecomastia who have posted here with their worries.

    After carefully reading through your report of the tests you’ve had to date, I’d be confident to say that you don’t have breast cancer. Let me know if you have further worries, but try to stay calm in the knowledge that you have good medical people taking care of you.


  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Ive read thru most of your posts. You seem like a terrific man. I'm hopeful I don't I just you know don't know what to think. The timing and unknowing of it all. You have really helped my confidence level. I'm happy you're in good health at least I hope you're. I'm trying to trust in them and Jesus also. I pray for you and all who brave this fight both make and female. Im confident and hopeful and take it a day at a time. Is there anything I should do or just trust them? Thank you so very much

  • Traveltext
    Traveltext Member Posts: 2,089
    edited November 2019

    I’m well, thanks. I really am confident that you are on the case. Worry is a natural part of the process of getting the right diagnosis. Post here any time you like and I’ll help in any way I can.


  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Can you help me. What I'm concerned about is the lymph nodes being responsible for all this even though mammogram and ultrasound showed nothing. I can't feel lymph nodes at least as far as I can tell. I'm really confused as to if a mammogram normally shows these and how it works. Idk what to do?

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    Superman - I don't think a Mammo will, but likely an ULS will. However someone else will likely know more.

    Attached is a link to a diagram of the lymph system. I was able to feel my swollen lymph node, as was my doctor. I believe that an ULS might show general lymph swelling & prompt more testing, but if cancer has moved to the lymph nodes I believe an MRI is the definitive test.

    https://www.sasklymph.ca/lymph_diagram_wide.php



  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Yes I've been reading on it. I can't feel lymph nodes and nither did doctor and have had a diagnostic mammogram and 2 ultrasounds as well s multiple physical exams showing nothing but gynecomastia. Does this in principle put me safe of BC? I'm sorry just so confused and dazed

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    sorry Superman, I don't know any more. I expect TravelText will be along later.

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    Superman17

    The majority of cases of gynecomastia are due to medications the patient is taking, including prescription drugs, some health food store "supplements", recreational drugs, and those used by body builders. Part of the problem is not all are legal and no one wants to admit this to their docs. Look up the side effects of each and search gynecomastia. Also gynecomastia has a fairly unique appearance on mammography and can be tender.

    In men under 20 after puberty is already well underway if intense weight training is started I have seen this happen without supplements/steroids.


  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Thank you for getting back to me. I'm 36 scared and idk what to do. I've had a diagnostic mammogram and 2 ultrasounds and doctor insists it's one sided Gynecomastia even though I don't do any drugs or anything. I am obese. So I guess what I'm wandering is could they have missed breast cancer that has spread and is causing nerve issues? I'm sorry idk what to do

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    Superman17

    The scenario you are suggesting would be very unusual. I am not sure I have ever seen metastatic breast cancer without the primary cancer being visible on imaging or palpable as a discrete mass on physical exam.

    Here is an excerpt from this article: https://www.nhs.uk/common-health-questions/mens-health/what-is-gynaecomastia/ Perhaps some blood work for hormone levels is in order. See below.

    Obesity

    "Being very overweight (obese) is a common cause of gynecomastia – this is because being overweight can increase levels of estrogen, which can cause breast tissue to grow. If you're overweight you're also more likely to have excess fat that can enlarge the breast tissue. For some people losing weight or doing more exercise can help but this may not always improve the condition."

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Ok so basically it doesn't sound all that possible then? So my doctor is right in the diagnosis you would believe? You've never heard of this? I want to thank you for talking to me. He just dismissed it as Gynecomastia or even when I told him what was going on

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    Superman17

    You should have all those non-breast related symptoms looked into just in case there is something else going on.

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Ok so it seems they are unrelated to you as well then just based on all the testing I've had done? What I'm asking I guess is the testing I've had done definitive? Idk the standard

  • djmammo
    djmammo Member Posts: 2,939
    edited November 2019

    Superman17

    The rest is outside of my field of expertise. These are good questions for your doctor(s).

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019
  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    So I just saw my PC who again checked all my lymph nodes again no swelling. As far as breast cancer involvement in nodes causing symptoms certainly they'd find something?

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2019

    I'm sorry, but I don't understand. You've been told pretty definitely that it's gynecomastia and not cancer, but you seem ... disappointed? Maybe you have health anxiety issues that you need to address.

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    I do anxiety yes but no it's not that. It's based around an unexplained set of symptoms that occasionally from what I've read can connect depending on circumstances. Dr. Google frightens us all. So I'm doing my best to deal with the situation. I figured folks here might have some advice on how to figure out testing and steps to take to ensure I know what is happening. Being underdiagnosed isn't something I want to face . Sorry to have offended you

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    I want to thank you for your kindness to me. Hard to find kindness these days and I appreciate it when I see it. Thank you sir

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited November 2019

    Superman - we're not offended so please keep posting if you need to. I think Alice's point is it would be healthy if you stop going & Google and searching & try to figure out the best way forward from here. I expect most of us are unfamiliar with your diagnosis, but if your doc isn't giving you the steps to take & the advice you need, maybe it's time for a new doc.

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Oh of course I figured. I just didn't want offend or be rude to anyone. I suppose I must accept the diagnosis I don't believe they would leas me stray. You'll been awesome.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited November 2019

    You haven't offended anyone! I'm just worried that you seem to have more faith in whatever you find on the internet over the highly educated and experienced medical professionals who have actually examined you.

  • Traveltext
    Traveltext Member Posts: 2,089
    edited November 2019

    Superman17. You’ve had a lot of people here doubting your self-diagnosed breast cancer and I think you can relax for now. Of course, remain vigilant, keep seeing your docs, but don’t assume the worst meanwhile.


  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    Thank you very much for your kind words. I guess what I'm worried about is the effectiveness of the tests I've had done and their reliability

    I've had a diagnostic mammogram and 2 breast ultrasounds all negative except finding unilateral right side only Gynecomastia. Then tired in the same sided other issues. Idk I guess I'm lost and confused

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    You're right. It's just odd that everything seems to line one way but the testing shows different. It's confusing for someone especially like me who doesn't handle health issues well at all

  • Superman17
    Superman17 Member Posts: 24
    edited November 2019

    The uniltateral part is what scares me. The doctor said he sees unilateral Gynecomastia alot. So idk many folks say I should worry many say no because testing I've had done is pretty definitive. Idk what to think honestly

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