the kitchen sink

You are doing a great job... I think you have got it all covered.

You sound like you're doing brilliantly - this is very positive and that in itself helps your health! There are trials of adjuvant Ibrance for ER+ stage 3 - it looks very promising, I would definitely be on that if I could. There's a thread in these boards for those on the trial. Ask your onc. Also bisphosphonates. My hospital has got that approved - six-monthly infusions for 3 years. Risk reduction of around 5% (protects your bones). First treatment made me achy and feverish but after that nothing - walk in the park and well worth it. Going forward, exercise has been shown to significantly reduce recurrence (see main site for latest guidelines). Look out for results of trials on Aspirin, Metformin and statins. All easy to take low cost common prescriptions all being trialled for their impact on cancer. As for complementary, people accept evidence for green tea and curcumin. There's a lovely book 'Anti Cancer' by a wonderful doctor who got a brain tumour himself and delved into all the research on different approaches for himself. It's a kind intelligent uplifting and empowering book. And if you can find a way to have that baby o hope you do it. Can't think of anything more life affirming. Good luck.

lkc - just wanted to hop on and say that soy is actually highly recommended now for women with bc. My breast surgeon recommended soy as part of my daily diet. I also read Dr. Kristi Funk's book "Breasts - The Owners Manual" and she goes into detail on why soy is good for us, whether you are ER positive or not. Dr. Funk shows that every single soy study since 2009 has shown a decrease in breast cancer occurrence/recurrence/mortality rate in women who consumed soy vs those who did not.

Be careful with soy. It depends on whether you are ER/PR positive or negative is soy is recommended.

As others have said, Xeloda. (It's my favorite chemo, really!)

Also, there are clinical trials where you can add Ibrance or Kisqali to your hormone meds for non-MBC. Hope that helps, best wishes.

Yes, I did take xeloda with aromasin for those 6 cycles.

Why does your onc think you should be stage 4??

My MO think I should be stage IV because I had a first recurrence in my reconstructed breast which contained 7 tumors. And after the error of my RO (who forgot to radiate a zone which contained cancer, nothing less than that!), and then a second recurrence (in the forgotten zone) of a 5 mm fat cyst containing really bizarre tumor cells (these cells were "very rare" according to the report and were not ER+ anymore).

All the doctors in the hospital don't understand this strange cancer. They are waiting new metastasis to decide what is the type of my erratic cancer : ER+ or triple negative ? While waiting, they give me Faslodex, just in case.

With 7 metastasis in my skin and parenchyma, it would be a miracle if I was not stage IV (this is what they says).

This is the reason I get of all these petscans and have my COC protocol: I have absolutely nothing to loose... And for the moment, it works ! [fingers crossed]

I'm glad you're going to Mayo clinic. Hopefully they can help you select appropriate treatment without over-treating it. That can be tricky for some of us - treating the cancer is important, but maintaining quality of life is really important too. Best wishes.