Does anyone here get Lupron shots?
Hello everyone,
I have a question about Lupron. Does anyone here get the shots to prevent ovulation and periods? If so, how are your side effects? I have heard horror stories about it and am really curious about peoples' experiences with it on here. I have to make a decision about whether or not I want to take it. I am still getting my periods (I am 36) and my oncologist wants me to take Lupron to stop them. I am already taking Tamoxifen, which I have been doing pretty well with the past month or two.
I have just heard awful things about Lupron when researching online, so I just wanted to hear what other think.
Thank you so much for any advice you may have.
~Stephanie
Comments
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there are a number of threads devoted to Lupron and/or ovarian suppression...just do a word search and you will find them. I did it for 3 years. I was much older, but the few side effects that I had, I was able to overcome or deal with. My team helped me. If you do have issues, you should discuss them with your team.good luck
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I’ve been getting Lupron shots for about 2.5 years. No side effects at all. The only PIA part is that I have to go to the hospital to get them every month. Small pinch of the needle.. but I don’t have any side effects from it
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Thank you both for your answers. I looked at a few of the older threads, but just wanted to see if anyone is currently on Lupron and what their side effects have been.
I hope I am one of those with few side effects. I am just really scared about this. My MO is giving me a choice and I'm just not sure what to do yet. I struggle a lot with depression and anxiety, which I am really scared will just get worse. I'm already on Lexapro, but antidepressants only do so much (I was on Prozac for over 20 years).
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My oncologist wants me to start monthly Lupron shots, then add Exemestane pills daily, but I am nervous and uncertain. I've rescheduled my first shot appointment twice already. I am thinking about having my ovaries removed instead. Currently waiting for a referral for a surgical consult. Please keep us posted on how you do on the Lupron.
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Im getting my first one tomorrow morning so I can let you know how it goes! Im 42 but frankly I tend to have better days when I'm not on the monthly estrogen high, so here's hoping I dont get side effects and maybe it levels me out a bit.
Frankly I wish they would have given me the option of ovary removal, but that is perhaps a discussion down the line. Essentially I will get the shot + bloods + onc visit all in one go,so hopefully cut down on too many hospital trips.
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Let me know how it goes AngelMia. I discussed ovary removal with my MO, but she doesn't seem keen on the idea at my age. She would rather I do the non-permanent option (Lupron) since she said I would only need to stay on Lupron two years.
Keep us updated, SondraF. : ) I really hope you don't get any bad side effects. I wish you luck!
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They finally shot me up this morning and it took literally five minutes. It felt like a tiny staple, pretty sure the punch biopsies they did on my tumor were more, how to say, pressureful? Louder?
Should take a few weeks for the side effects to kick in I suppose, but I will let folks know! Probably most concerned about tumor flare as I already have issues with joints and the low back. Let's see...
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I wish you the best of luck, SondaF! I hope your side effects are minimal, if any.
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Hi I got my 2nd shot today, 6 more pending. More hot flushes and sore throat are my side effects
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I had the shots prior to chemo and then chemo put me into menopause so they stopped.I didn’t find the side effects to be too bad. Mostly hot flashes. It’s the AI they put me on later that is tough with side effects.
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Thank you Prahan and OCDAmy for the replies.
Did anyone have any digestive issues with Lupron? I have IBS, so that kind of concerns me. Other than that, I am concerned about increased depression. I am going to discuss this with my MO when I see her next.
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I've been getting Lupron shots for almost 2 years. It is a pain in the butt to go in every month. I have side effects like joint pain muscle tightness and constipation/digestive discomfort but it's hard to tell what drug all of those are from. I am on Lupron, prolia, exemestane, and ibrance. Overall my side effects are very tolerable... the joint and muscle pain is the worst, and I really doubt that that is from the Lupron. Here's hoping your side effects are minimal or, even better, non-existent 😊
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I do feel throat tightness , i am on Tamoxifen and lupron. Aged 36 at the time of diagnosis.
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Thank you for sharing your experience, Lexica. And thank you for wishing me well. I hope I don't have many (or any) side effects. Still scared, but I'm going to take it one step at a time. I really appreciate everyone sharing their experiences.
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Peridot180,
I was diagnosed at 36 (now 37) and have been doing Lupron shots for several months now. My docs don't want my one remaining ovary out because of my age as well. I haven't had many side effects. I feel like the hot flashes were worse with my chemo tha
n with the shot. My depression got worse for a while, BUT I'm 99% positive that it was because I had to switch my antidepressant at the same time I started shots. Apparently, the one I was currently on, had a high interference rate with my Tamoxifen. I've had joint and muscle pain, but that actually started with the Tamoxifen, and just got a touch worse with the Lupron (but definitely tolerable). I haven't had any digestive issues, but then, I don't generally have any, and didn't have any with my chemo either.Let me know if you have any other questions!
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Thank you Twinklemom for telling me your experience with Lupron. That is really helpful and makes me feel a bit better.
Going to talk to my MO hopefully this week about it some more. I am still really scared about it, especially since my depression and anxiety seems to have gotten worse on the Tamoxifen and I really don't want to add anything else that might make it worse. I will see.
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Im what, day 6 (including injection day) out on this and while I've felt fine for the most part, today is the first time I've started to feel kinda out of it. I don't have anything to be anxious about and yet its been a day of flushed face and feeling squirrly/on edge. Like I feel when Im starting to get sick but Im not sick. I've also been really sleepy the last day or so, and my pelvis/hip joint is playing up significantly (please note, though, this is a long-running, pre-diagnosis problem that may only be tangentially related to the start of this), so I have spent the last three days either sitting up or laying down and not out of the house, which could be contributing to feeling weird.
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SondraF-
It’s not your imagination. I’ve been on Zoladex for a year now after 6months on Lupron. It’s a similar medication. I just had my shot Wednesday, and sure enough, woke up feeling like I’d been hit by a ton of bricks today. It’s usually day 5 for me, lasts for about a week, then improves until the next shot. Took me a while to figure this out because over the last year I’d had three surgeries, so it was hard to connect the dots. Some months it’s worse than others.
Now that I know what it is, I can expect it and cut myself some slack. And also not worry about why I’m suddenly sooo tired. I know it’ll pass and I can get back to kicking butt in a week or so.
Hope you feel better soon!
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I had my first lupron shot 4 days ago. I was awakened from sleep this morning with left jaw pain that felt like I had been punched! My arms ache and my back hurts. It is a huge relief to read that it may just be cyclical. I am supposed to start arimidex in 2 more weeks. I am nervous about it!!!
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I should have clarified that Im on zolodex not lupron. So - checks out??
If I could just walk like a normal human I wouldn't care as much about being tired but this back and hip pain man, its gotta go. Its really cramping my style. A little pain is one thing but this ongoing issue with being mobile is no fun. I do get up and 'walk' around during the day and stretch, so I'm not completely a slug!
I have been tracking symptoms since the first injection, so hopefully I can spot a trend in the next couple weeks.
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I hope you start to feel better soon, SondraF and Acucindy. I'm already getting some muscle and joint pain on Tamoxifen, so I am not looking forward to Lupron possibly making it worse. : ( I really do not want to take this drug.
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I just met with my MO today, I will have this every three months.
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Alright, it seems like its starting to ease up.I think I read somewhere that you can have a flare of symptoms in 72 hours with peak at 7 to 10 days. I am right on that timeline. Also,my only problem has been where I have known arthritis/degeneration/mets in my back - I havent had problems in my knees or wrists, etc. No issues either with other side effects (yet).
Hoping this isn't going to be every month, I cant take the time off life for this.
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Hi Acucindy,
Can we walk after the shot? Shall I ask my friend to go with me that day?
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You can just walk. Side effects will be felt only later
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Thanks Prahan,
Is the shot very painful? Similar feeling as biopsy?
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No not painful. But injection site may go reddish after a day.
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Cathy- are you getting Lupron or Zoladex? Lupron is in your backside in the muscle, not too bad. Zoladex is in your stomach under the skin. I’m thin, so that shot sucks and about half the time leaves a nasty bruise. Both are available as one month or three months injections.
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Hi peachymom, I don't know. Will ask nurse when they call me for appointment. Thanks.
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Hi, I did lupron injection this Tuesday, no any side effect, thanks ladies!
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