Ok- Got a verbal Diagnosis - Now what?

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rebakoosh
rebakoosh Member Posts: 11
edited October 2019 in Just Diagnosed

47YO Who got a call from my nurse navigator. So this is what i remember

Had a sterotactic biopsy where they took 10-11 samples and 3 came back as DCIS ranging in the 2-3mm range.

She said standard treatment would probably be lumpectomy and HRT.

Seeing surgeon this week and hopefully get some written down stuff.

I have a family history of melanomas that have metastasized, so wasn't very concerned about such a small non-invasive BC but the more I read the more I freak out.

I hate the unknown and want to go in to see BS prepared so I can understand the treatments she'll recommend and know what questions to ask.

I just don't have many friends and none to talk to about this.

I'm currently the sole breadwinner for a family of 6 and I don't know how to stop and take care of myself. Recommendations?


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  • Moderators
    Moderators Member Posts: 25,912
    edited October 2019

    Hi there, Rebakoosh! We're so sorry you find yourself here, but we hope you find this to be a supportive place. The first days and weeks can be confusing and scary, especially since you don't have much information about your diagnosis or treatment options yet. You'll learn much more in the coming weeks, and hopefully you'll fee a bit more in control when you have a better idea of what you're dealing with here. You may find some more helpful info in our DCIS forum - https://community.breastcancer.org/forum/68

    The Mods

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  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2019

    HRT is hormone replacement therapy. You're probably going to be on hormone blockers. I haven't seen anyone here on HRT after surgery and other treatments.

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  • MountainMia
    MountainMia Member Posts: 1,307
    edited October 2019

    Agree with Alice, more likely hormone blockers than HRT. As to the DCIS, the surgeon will tell you that they won't really know what they'll find until they actually do the surgery. However, the biopsy samples showing 2-3mm is encouraging. That is very small. It can be very frightening at first, not knowing what you're looking at, and not knowing any of the language the professionals are using. When you meet with your care professionals, stop them when you need clarification. Ask questions and for definitions and other resources. Take notes if you can. Check in with the nurse navigator if you want to ask questions after your appointment. That person should be able to help you find good answers.

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  • Beesie
    Beesie Member Posts: 12,240
    edited October 2019

    rebakoosh,

    This thread might be helpful:

    A layperson's guide to DCIS


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  • Nomoresideffects
    Nomoresideffects Member Posts: 9
    edited October 2019

    Hi my name is Jennifer I'm about 2 year's out from my diagnosis of stage 2b invasive and dcis breast cancer. Ive had a double mastectomy w reconstruct ion. Any questions you have ..anything at all please send me a PM. I'm a veteraan and had several insurance issues but w patience and a lot of phone calls I got taken care of.. I'm here if you need any question answered.

    Edited by Mods to remove personal contact information.

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  • Nomoresideffects
    Nomoresideffects Member Posts: 9
    edited October 2019

    Second opinion doctor is also a great way to learn more.. possibly..

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