IBC returns following mastectomy
Hello Community! I was diagnosed with Triple Negative Inflammatory Breast Cancer in February of 2019. Following Chemo, I had a mastectomy. The pathology report indicated all of the disease was removed. Fewer than 5 weeks post-surgery the redness,blisters, etc. reappeared and a PET scan revealed the disease recurred. Has anyone else experienced such a speedy recurrence?
Comments
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Hi there, IBCbegone! We want to welcome you to our community. We're so sorry you find yourself here, we imagine this has been a difficult experience! Recurrence can occur quickly in some cases, particularly if you're dealing with an aggressive form of breast cancer. You might find some helpful information and connect with members in your position in our Recurrence forum: https://community.breastcancer.org/forum/106. We're all here for you!
The Mods
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hi IBCbegone I was also diagnosed with inflammatory carcinoma of the right breast in August. Lil skeptical of the diagnosis though as my breast has stayed completely the same. It really looks no different than the other. I can’t answer your question but there is a Facebook group for all woman who have been diagnosed with IBC and there is an IBC specialist named Angela that works with clinical trials at MD Anderson and knows a lot of info and and a lot of woman with IBC that can answer your questions. I’ll see if I can get the link
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there are 1,000 members on there. Very helpful! You will be asked a few questions to join the group as it is a closed group. Prayers
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Hi Did you have non skin sparing mastectomy as that’s important and also hope no reconstruction as you have to wait at least a year
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Flo80, yes non skin sparring mastectomy and no reconstruction
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Thank you missmom79
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Hi there try posting in the main IBC lounge group as there are many people who can advise better
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