MRI Was So Painful...

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Cat94925
Cat94925 Member Posts: 18

I am not claustrophobic at all. I was fighting off a panic attack during my MRI because the support I had to lay on was so painful. It was very hard and all my weight pushed against it, against my diaphram, so that I couldn't catch my breath. I was taking half breaths the whole time and my body was clenched and I was crying and trying not to move. It was just awful. I was finally able to stop the panic by concentrating on breathing in through my nose and exhaling through my mouth but I felt like I was suffocating. Is this awful hard support thing used on everyone's MRI? Do other places have a different option? I'm dreading ever having to do it again and if I do I'll need to be on some good drugs.

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  • Musosgirl
    Musosgirl Member Posts: 387
    edited October 2019

    Oh, yes. The pain. I hate that plastic form. Cut into my ribs so badly the first time. I had my back seize up on me last year (#3) and I couldn’t get off the table. Panic attack the last half of the MRI and lots of tears. Begged my Dr. to skip this year. Then I had changes in my scar tissue and HAD to have a diagnostic MRI. Dr. gave me Xanax which did its job. This is a genuine issue that needs to be addressed, in my opinion. Not sure there is a cost effective fix though. And I am already out $2,000 for each MRI. I hate cancer.

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited October 2019

    I remember my first one before my lmx surgery. It was awful and uncomfortable then! I'm guessing the experience you had was similar to what I remember of my first one. You'd think they could make the support structure on the sternum more padded or something. You have My sympathy for the pain you endured.

    Ever a year out from rads I still can't lay on my stomach due to breast pain from RADs and Breast Lymphedema...a Freakin year later! My first post-surg Breast MRI is next week. Dreading it.

    Is this a dx mri? Or pre-surgical?

    In either case I sure .hope you will get your results before the weekend. Keep us posted.

  • gb2115
    gb2115 Member Posts: 1,894
    edited October 2019

    I think it depends on the facility. Pre surgery I had two MRIs at the hospital and they had everything well padded. Then I did a follow-up MRI at a satellite imaging center and it was painful like you said. They also didn't have the hole for me to be face down, so I had neck pain too.

  • HopeWins
    HopeWins Member Posts: 181
    edited October 2019

    it must be by facilty because I didn't have any pain with mine. Maybe I was just comparing it to the nightmare stereotactic needle biopsy experience... MRI was a dream compared to that.

    Definitely consider taking something to calm you down. I'd have to be comatose to do another biopsy on that mammogram table. One positive of bmx is that I wont ever have to again.

  • SummerAngel
    SummerAngel Member Posts: 1,006
    edited October 2019

    The support used during mine was also padded. I'm sorry for your experience, that sounds awful!

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    I'm sorry that happened to you. If I have to go to the same place again I will get Xanax or something. I was upset too, because I googled images and videos of the breast MRI and they all showed a soft table with a rectangular slot that your breasts hang through. So I was NOT expecting the "cage".

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    I've been diagnosed by mammogram and ultrasound (1A, grade one, double positive, both breasts) for now. Lumpectomy scheduled for the end of the month, then radiation and hormone blocker. All this of course will change if my genetic testing comes back positive, which I was supposed to hear about this week and still have not. Also, I'm really upset because the surgeon called my HOME phone yesterday to talk about test results (MRI, maybe genetics) when I had asked them to call my cell phone because I'm at work...and her office closes at 3:30! And today, she does surgeries. :-(


    How does everyone set up their their "signature" ? Your diagnosis and treatments at the bottom of messages? I couldn't find where to do it in settings?

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited October 2019

    Cat - Maybe you could call her office back and ask if a nurse could at least tell you what they can about why the surgeon was calling for? It may help you get through the weekend a little bit easier.

    go to "My Profile" at the top of the page. Then scroll down to "Add Dx". Be sure to go to "Settings" and make whatever you'd like public since they are private to begin with.




  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    Oh how awful for you. So far I have not had that type of biopsy, just the sonogram-guided biopsy which wasn't bad because they pumped so much novacaine in. I was more sore afterwards.

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019
  • FarAwayToo
    FarAwayToo Member Posts: 255
    edited October 2019

    The breast MRI support/table/positions are the worst! I had a good number of MRIs as I was on a study that monitored my tumor size during neo adjuvant chemo, and I have some tips.

    1) If your tech doesn't offer it - ask for pillow under your lower legs, arms and a warm blanket. Anything that can make you more comfortable.

    2) Headphones with music instead of earplugs. I'm not claustrophobic either, and did OK with music (music also helps me estimate the time - I ask them to turn on rock radio, and I know each song is about 4-5 minutes, give or take), but on my latest MRI the tech wasn't as fuzzy and just shoved earplugs into my ears. Boy, I immediately felt the world closing on me. I then asked for headphones and music, and she said "sure". Why not offer it right away?!

    There is nothing to do about that hard thing pushing into your ribs, although, as other said, I think the ones I had experience with were padded. But still, your entire weight pushes on it, and it can make your breathing a little harder. This is a sensor and is needed there to guide the machine. For me, it helps to concentrate on something else. You did good by concentrating on your breathing. I would usually imagine I'm not there at all - every MRI I did I was mentally skiing my favorite trail, imagining every little detail, every turn, trying to feel the wind on my face, envisioning the sparkly snow. Escapism at its best.

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    Thanks, that's a very good idea.

  • Brilee76
    Brilee76 Member Posts: 227
    edited October 2019

    My MRI was painful too. The hard support was right between my breasts. It was really hard to stay still but I somehow managed it. I was super happy when it was over.

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    I wish it was padded. It was plastic coated metal. Ugh. Thanks for the great advice. The tech did put a pillow under my legs, but I didn't know about music. I will remember that next time. Music and xanax.

  • 2019whatayear
    2019whatayear Member Posts: 767
    edited October 2019

    I had a pelvic mri it's just dog gone painful not moviing for such a long time. plus being in a tube on a silver tray. MRIs sucks!

    Hugs to you!

  • Cowgirl13
    Cowgirl13 Member Posts: 1,936
    edited October 2019

    Hi Cat, I lived in SF too. Awful story about your MRI. If I may ask, where did you have it performed?

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    The radiology center in Greenbrae, for Marin General. For a next time maybe I'll shop around, ha!

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    So the MRI results came back. I think they are generally good? Tumors appear to be the same size. There are enhancements in the area around the tumors, which the surgeon indicated could be pre-cancerous and she would remove that tissue too during surgery. So, I need to have another double biopsy. Still waiting on my genetic test results.

  • HopeWins
    HopeWins Member Posts: 181
    edited October 2019

    great news!!! And I second music and xanax! It can get a girl though a lot!

  • Trishyla
    Trishyla Member Posts: 1,005
    edited October 2019

    My breast MRI was so unbearable that I told the tech I had to either have a wedge to raise my hips to take pressure off my diaphragm or I was stopping the procedure. She said: "Oh, okay." and handed me the pillow.

    Really? That was all it took? Asking? I don't understand why they don't offer that as standard procedure. I think the techs should be required to get into the positions they ask us to get into. Then they might actually do what they can to make us comfortable before we're literally in tears.

    Rant over.

    Trish

  • edwards750
    edwards750 Member Posts: 3,761
    edited October 2019

    You would think they would know and be diligent about making a patient comfortable. I had one done years ago and at first they talked to me but then stopped. I hyperventilated and gav them what for when I got out.

    Diane

  • JCSLibrarian
    JCSLibrarian Member Posts: 564
    edited October 2019

    I have been lucky enough to have two MRIs so far. Of ALL the tests administered since the diagnosis, this one is the absolute worse. This includes CT guided biopsies. The position is awful. The length of the test is awful. The fact that no one tells you what the experience is like before hand is awful. I asked why the stand could not be made more comfortable and was told it would interfere with the test. I am not a large person. I cannot imagine the pain more pressure would cause. I will need a lot of encouragement to do this a third time

  • Veeder14
    Veeder14 Member Posts: 880
    edited October 2019

    I’ve had 3 MRIs plus the biopsy ones and bring my own cushioning, memory foam strips that the techs allow along that plastic grid you lay against. If it wasn’t for this I don’t think I could handle these MRIs since I have neck and back issues. Plus I have pillows under my hips, ankles, and elbows. Yes, they should get a better padded grid. I make sure and not eat or drink for several hours prior due to the position laying right on the stomach. The need for shallow breathing is really a pain. The first MRI I wasn’t told and did deep breaths and they said I moved just from breathing and had to redo it on another day

  • HPLS1957
    HPLS1957 Member Posts: 15
    edited October 2019

    I had sedation for my MRI. It was a breeze. I was awake, sort of, but hardly remember a thing. Went home and had a great nap. Would do it the same way in the future, if needed.

  • SUPer52
    SUPer52 Member Posts: 122
    edited October 2019

    Oh boy! I have my first breast MRI coming up this Friday. I did not have one at the time of diagnosis. I had my first post-surgical mammogram a little over a month ago, and the MRI is additional screening due to the dense breast tissue I have. Thank goodness I have an idea what to expect thanks to all of your posts! I dread the thought that it could be more uncomfortable than my biopsy (which was a stereotactic biopsy with mammogram) because I thought that was awful. Ugh. I do still get some pain in my breast too, and I have some swelling (possible breast lymphedema) still from a seroma that isn't going away, and I also have developed another Mondor's cord (my second one) down my rib cage which hurts. I hadn't even considered that the MRI would be uncomfortable. I've had several MRI's for other conditions due to ski injuries, but I lay on my back for all of those. At least I won't be caught off guard. So glad I saw this thread so that I can prepare as much as possible. I do so appreciate the good information and advice posted here!

    Cat, glad to read that your MRI didn't show that your tumors were any larger. Every bit of good news is worth celebrating! When I was first diagnosed, I kept hoping for each result to be the best possible scenario given the situation. Hoping all goes well with the next biopsy for you!

    Spoonie, I have read some of your posts on other threads, and I am so sorry for everything you have endured. In light of everything, you always are so helpful to others on here, and you have such a positive attitude and a sense of humor that are both evident in your posts. You are a very talented writer by the way! It sounds like you and I are having our MRI's around the same time. Here's to "the best possible results given the situation" that we can hope for for both of us!

    Hugs to all!!!

  • LynnVB
    LynnVB Member Posts: 24
    edited October 2019

    I have had three MRI's on the table. It was an open machine with a refracted mirror so you could look out window. Very peaceful. I had a soft cushion that went between my breasts that helped a great deal. Yes, it was loud but I just tried to put myself on a beach somewhere in my mind. Even though it is a scary thing to go through, I do try to think grateful thoughts for the technology. Just my opinion, but I would much rather have the MRI than the punch biopsy-for me that was dreadful. I passed out

  • Turkeypoult
    Turkeypoult Member Posts: 36
    edited October 2019

    Absolute horror! I had the MRI 2 days before surgery. My BS asked how I was feeling. I told him the surgergical site was ok but the pain from my ribs under both breasts was awful.

    The radiology tech told me new equipment is expected “soon.”

    Sorry we have to go through this annoyance

  • Spoonie77
    Spoonie77 Member Posts: 925
    edited October 2019

    Cat - > Glad to hear the good news that there was very little change in your tumors. I'm betting you are a bit relieved? When will the double biopsy be? Any idea when you will get your genetic testing results? I know that was so hard for me to wait for when I was in your shoes. It felt like so much of my decision hung on it. Keep us posted.

    Super52 -> Awww thanks for the kind words, fellow Warrior. Reading your post made my day. Sometimes in my daily battle with multiple illnesses, BC, and now MS, life tends to get overwhelming. Hearing that in whatever small way I can help others gives me a few extra "spoons" and a feeling of "It's a good day to be alive." type vibe. Thanks for the warm fuzzy. We can never have enough of those, can we? May you have have a wonderful week and a clear MR as well! When is yours? Mine is scheduled for Thursday.

  • SUPer52
    SUPer52 Member Posts: 122
    edited October 2019

    Aww Spoonie, I'm glad I was able to give you a few extra "spoons" for your day! And yes, I agree we can never get enough "warm fuzzies!" My MRI is Friday. I'm a little nervous about it. I remember my surgeon saying not to panic right away if I get a call back because they often show false positives, but somehow I think that will be more difficult to do than I imagine if I should happen to get that call back.

    Good luck to you on Thursday!

  • Cat94925
    Cat94925 Member Posts: 18
    edited October 2019

    Thanks for checking in. Now I'm having a stereotactic biopsy on both breasts this Monday. This, from what I am understanding, is because of the enhancement seen around both tumors on the MRI. The surgeon said they likely indicate pre-cancerous blood flow to the area, but that it could be other, benign things. Of course, my mind is going catastrophic, thinking that it's some freaky cancer that wasn't visible by MRI and I will be a higher stage. Also wondering if the precancerous bloodflow will put me at a higher stage? And it's not like I can just call up the surgeon and ask her these things! And when all these appointments are being made, they call me whenever, usually when I'm at work, supervising children on the playground or in the front office, and I can barely hear the conversation, only quickly make the next appointment. And when I call back I never get a human being to answer the phone. I have today off and I think I might just go in person to the medical office to ask for my last MRI report which I didn't get because I was so freaked out I needed to leave asap. Maybe I'll check in in person to the "Wellness Center", too. I've spoken with the Breast cancer Patient Navigator by phone, who has been very helpful, but I'm not sure of everything that she can help me with. Maybe she can help with some of my questions and concerns.

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