Still NED

Options
lorrhaw
lorrhaw Member Posts: 751
edited January 2020 in Stage IV/Metastatic Breast Cancer ONLY

I was diagnosed with Stge IV breast cancer in January of 2010. I was stage IV because of bone mets. The docs in Vegas were kind of willing to just give up on me but my dear husband took me to MD Anderson in Houston where I was aggressively treated with additional surgeries (I kept my breasts), chemo, lots of radiation and finally tamoxifen for the last 9 years.

I have been NED (no evidence of disease) since December of 2010. I am now being treated locally in Vegas with a doctor who is very responsive to every little issue I have so I am scanned, probed, stuck, etc. more than I like but I know he is only looking out for me.

Unfortunately I lost by dear husband last November. He got me through my s**t but I wasn't able to get him through his, seems kind of ironic and I miss him everyday.

I haven't been on this site for a long time but felt like it was time to come back and share my positive story which hopefully will help some of you. I will make an effort to be here more often so if you have any questions feel free to reach out to me.

· Share on FacebookShare on Twitter

Comments

  • illimae
    illimae Member Posts: 5,710
    edited October 2019

    Congrats to you!🎉

    Sorry about your hubs ☹️

    · Share on FacebookShare on Twitter
  • Faith123
    Faith123 Member Posts: 41
    edited October 2019

    Always lovely reading these stories💕Gives is hope

    Condolences about your hubby.

    · Share on FacebookShare on Twitter
  • Faith123
    Faith123 Member Posts: 41
    edited October 2019

    Always lovely reading these stories💕Gives mhope

    Condolences about your hubby.

    · Share on FacebookShare on Twitter
  • pitanga
    pitanga Member Posts: 596
    edited January 2020

    Hi lorrhaw,

    I haven´t been on this site for a few years either but I remember crossing paths with you way back when. I'm glad to know you are still fighting the fight but very sorry to hear you lost your husband.

    My stage 4 diagnosis came in 2009, a single bone met, which was treated with radiation and aromatase inhibitors. After that I was NED for a long time and not doing any treatment at all, just regular checkups. Then in 2018 I was diagnosed with a second cancer, follicular lymphoma, and a PET scan for that picked up a very tiny spinal lesion which turned out to be... a breast cancer metastasis! It was exactly ten years since my original Stage 4 diagnosis. They radiated it and put me on Letrozole.

    Last week another small BC met showed up, in my ureter of all places. My oncologist is switching me to Faslodex.

    It is tough dealing with two separate cancers. Never imagined it could happen to me. But when I searched online I discovered that about 1 in 5 cancer patients are in that situation.

    And the beat goes on. The good news is that follicular lymphoma is considered very treatable and the drug I have been on so far, rituximab, has very few side effects.


    · Share on FacebookShare on Twitter
  • Heidihill
    Heidihill Member Posts: 5,476
    edited January 2020

    I remember you, too, lorrhaw! Congrats! You were lucky to get to MD Anderson. Really sorry to hear about your husband. I have also been NED since 2008 and had some scares with my husband more than five years ago with him getting lung emboli on both lungs, twice.

    Pitanga, good luck with Faslodex!

    · Share on FacebookShare on Twitter

Categories