Is anyone else an atheist with BC besides me?

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  • WorryThePooh
    WorryThePooh Member Posts: 413
    edited October 2019

    LaureninPHX thank you, it's my son who had liver cancer, he's my youngest. Very happy to report he is well now, age 17. :)

    SantaB I love that quote from Gloria Steinem, so true!

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    Excellent news, Pooh! Glad he is doing well. :)

    Zombie Jesus, haha. Sounds like a Halloween costume to me. :)  Pretty sure I'd get stoned to death here in Texas if I wore it. 

    So PET scan is today - I had to break the no caffeine rule because my head hurt so bad my eyes were crossing and I was nauseous. Hard to drive when there's two of everything, ya know? They'll just have to get over it. Apparently, caffeine affects the heart part of the scan, but since I'm not concerned with heart cancer, I think it will be fine. I'll get the CD and do my best radiologist impression to read the results. I think PET scans are pretty easy. If it glows like my neck nodes, I'm screwed. If not, yay me. I should get the official report by Thursday. 
    After my mini-meltdown last week, I think they know I'll be calling otherwise. 

    Faslodex shot was yesterday - no issues, but I'm a little concerned that she got it into a muscle. I have a lot...a LOT...of fat on my backside and she put it up around my hip area which is loaded too. She moved the fat around and said the needle was long enough to go through to the muscle, but...I'll try not to overthink it. She's been doing it for years, that was my first time, so...I'm sure it's fine. 

    Jury duty? Really? I'm going to ask her to give me a permanent pass on jury duty for medical reasons. I need to get something good out of this Stage IV thing. And I don't know how the drugs will affect me yet, so if I'm put on a trial, who knows what will happen. Not interested. 

    Well, I'm off to check Twitter to see if the country is still a dumpster fire... (Narrator: The country is still a dumpster fire)



  • Rae7200
    Rae7200 Member Posts: 37
    edited October 2019

    Actually, it was Florence or Florynce Kennedy, but published in a very early issue of Ms. Magazine, edited by Gloria Steinam. (Pedants United. 😉🌺😆

    I can't seem to get the ending paren to add to the phrase ending with emojis after Pedants Unite, so we may have an air conditioned paragraph hanging out there...)

  • Spookiesmom
    Spookiesmom Member Posts: 9,568
    edited October 2019
  • Yogatyme
    Yogatyme Member Posts: 2,349
    edited October 2019

    A friend told me about a colleague picking up his child (4 yrs old) from daycare at Easter time and the teacher was waiting for him and said in a stern voice, “he got into trouble today”. Dad asked for details and was told that when discussing the resurrection the child said, “you mean Jesus was a ZOMBIE?” Dad responded:” He’s 4. What he knows about dead people who come back to life is that they’re called Zombies so it seems like a reasonable question to me.” 😂. Out of the mouths of babes...

  • WorryThePooh
    WorryThePooh Member Posts: 413
    edited October 2019

    lol Yogatyme, perfectly reasonable assumption I'd say. I hope he didn't get into that much 'trouble', poor wee thing.

    LaureninPHX I think a permanent pass on jury duty sounds like a good plan!

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    Great answer!! Yes, I wonder what kind of “trouble” too. Probably scared the kid and started his fear of god indoctrination. Sad.

    If I am reading the scan right I think it is contained in my lymph neck nodes although it could be on the other side too. If it is I don’t know that they will do the surgery but I will kick and scream if I have to. I want them OUT! I hope to find out tomorrow, because the waiting is really making me insane. At least I started the Faslodex so something is happening.

    For now I’m just grateful that my caffeine withdrawal headache has finally gone away after a caffeine pill, two Excedrin, 2 diet cokes, and an iced tea.

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2019

    A reason to leave the turmor in (which they did with me) is to be able to watch the response to chemo.... so they can switch you if the chemo is not killing it.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2019

    I was scheduled for jury duty for last summer. I got it delayed until fall due to the lumpectomy and planned radiation. Then a scan showed I had kidney cancer and that got scheduled for September. Luckily, my hubby works in the court system for the presiding judge, who decided to play it safe and give me a three-year pass on jury duty. Glad to have that, but kind of a crappy way to get out of it!

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2019

    All our courts requested was a letter from my MO to pass on jury duty for a couple of years.

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    The crappiest way for sure, Alice. Boy you’ve really been through it huh? I’m sorry to hear that.

    SantaB, when I went through the first round, I had chemo before the mastectomy. He did a scan about halfway through and it had “somewhat reduced in size.” It freaked me out. I figured that if the strongest chemo at the time TAC wasn’t seriously killing it, I couldn’t wait for them to cut it out! I’m afraid ofthe same thing happening. I hope they’ll say they can tell if it’s working by tumor markers and if I don’t progress. Pleaseohpleaseohplease!

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    I think that will work, Minus. I’m sure she’s written a hundred before so I’ll ask when she calls with the results. We’re both in Texas so that should do it

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019
  • Wren44
    Wren44 Member Posts: 8,585
    edited October 2019

    Good one, Lauren.

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    I received a PERMANENT disqualification from jury duty today. YAHOO!

    Still waiting on results from Tuesday's PET scan. The doctor had an out of town emergency and she was just getting back in town this afternoon, but the nurse assured me I would know something today. Still. Waiting. I got the disc, and from what I can tell, it's still only in my neck, but it looks like it could be more widespread in my neck than I thought, so that's why I am thinking she may 86 the node removal surgery and currently shitting bricks. And have been for three days. And will continue to do until she calls. 

    Will update with news, hopefully soon. 


  • ananda8
    ananda8 Member Posts: 2,755
    edited October 2019

    Lauren, It is horrible that you have to wait like this. I wish there was something I could say to make it easier for you. Just try to breathe.

  • AliceBastable
    AliceBastable Member Posts: 3,461
    edited October 2019

    Here's hoping there's an easily-tolerated treatment that will help, Lauren.

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    Thank you Ananda and Alice.

    Still no news. It’s 8:00 so I’m guessing I won’t hear tonight. I already blew my “rah rah fight starts today fuck cancer” diet by stress eating Wendy’s. I was ASSURED I’d hear today so I wouldn’t have to go the weekend without results. I’m so upset. If I thought there was a chance she wouldn’t call I would have demanded my report 12 fucking hours ago.

    I think I’m going to go to bed and have a good old fashioned pity party. Hopefully I’ll be able to put this out of my mind until Monday and have a decent weekend. So much for acceptance lol.

    Have a great weekend everybody

    Lauren

  • ananda8
    ananda8 Member Posts: 2,755
    edited October 2019

    Cry until you sleep.

    image

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    I’m not sure how well I held it together today with the huge diet meltdown, but I did avoid the pity party by watching the baseball game. (I LOVE baseball! I need to start a thread for next season) There will be plenty of time to feel sorry for myself. I’m the meantime, I need to accept that I likely won’t know until Monday so I need to get the hell over the broken promise and move on so I don’t waste any more of my numbered days.

  • ananda8
    ananda8 Member Posts: 2,755
    edited October 2019

    True, absolutely True

  • WorryThePooh
    WorryThePooh Member Posts: 413
    edited October 2019

    Lauren glad you got the permanent disquaification from jury duty. Sorry you didn't get the report yet, it's so hard waiting. xx

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    So....the judge giving Amber Guyger a bible and a brainwashing speech...wtf? I'm all for more compassion and pep talks from judges, but this was waaaaay over the line. If it was me, well, it would probably never be me, but if it was me and the judge said that, wouldn't I have to take it, say thank you, hug her and all that even though I think it's ridiculous, or be afraid of legal repercussions? Or bring even more media attention and public outrage to myself? So inappropriate. (Don't even get me started on the sentencing...)

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2019

    Good point.

    Church...............................State

    They're supposed to be separate, right??

  • MinusTwo
    MinusTwo Member Posts: 16,634
    edited October 2019

    Interesting point Lauren. My immediate response was I'd just leave the bible on the bar. Then I got to thinking about possible repercussions from the judiciary. Hmmm.

  • wanderweg
    wanderweg Member Posts: 549
    edited October 2019

    It will be interesting to see what comes of the lawsuit filed by the Freedom From Religion group in that case.

    Lauren, I'm sure this weekend feels like it’s stretching out. So hard to wait for that kind of news.

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    Separation of church and state is in serious jeopardy, SantaB.

    Leave it on the bar, lol. Ballsy move-I like it. :)

    Yes Wanderweg! It didn't occur to me to take legal action until I read about that. Being in the Bible Belt I just assumed that's what is accepted as normal, but it shouldn't be.

    Yes the waiting is hard. I'm not dwelling necessarily but I'm unable to focus, so I'm not doing much of anything. It's hard to work when I can't focus so I have stopped trying until tomorrow. I have two games to listen to today so I'll be occupied tonight.

    I don't know what to do tomorrow. Do I call and demand my records first thing? Do I wait for her to call? Do I drive 45 minutes to the imaging place to get them? Ugh. These are the things that make me crazy and exhausted.

    Cancer is not good for over thinkers.


  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited October 2019

    Call first thing. And call the imaging place too - maybe they can email your report (summary of what images show). You have a legal right to them.

    I abhor this waiting thing. I just ask direct questions now and talk to the MD at the imaging place so before I go I know what's up. It seems so infantilizing that a grownup can't know the clinical results of their situation unless the MD is folded into it...

  • LaurenInPHX
    LaurenInPHX Member Posts: 165
    edited October 2019

    I agree with the infantilizing. I didn't know I could talk to the MD at the imaging center. I might have to try that too.

    When I see her on the 14th, I need to explain what kind of person I am so we can get on the same page. 

    1) I'm a planner - "Go with the flow" is not how I operate, never has been. "Let's just be spontaneous!" is how all my nightmares start. 

    2) I'm a big girl.- I learned how to read a long time ago. I can read a report, I can even Google the words I don't understand. I need the results sent to me immediately, and then she can call me at her earliest convenience. No more waiting days for results, no more special office visits just for results. I've got better things to do with my time. If I have questions, I'll ask when she calls or call for an appointment. 

    3) I'm highly independent. - I don't need anyone to sit with me and hold my hand (yet). I can handle the results whatever they may be. I know what Stage IV means, I know where I'm headed, and I'm going to be a part of the treatment that keeps me from that point for as long as possible. Take care of the patients who need the hand holding and extra support - for now, I'm fine with learning on my own. 

    4) I'm educating myself, so get used to a lot of questions. - Not that I don't trust her, but I need to be a part of my treatment, so I will be doing research on my own to make sure I understand what is happening. No blind following of doctor's orders for me. If that's a problem, I need to find another doctor. 

    5) If you say you're praying for me, that's my sign to exit. (I won't say that but I'll be thinking it.)

    I will be slightly more tactful that that, but I need to get my point across, because this waiting fuckery is way, way too stressful and a waste of my numbered days. 

  • wanderweg
    wanderweg Member Posts: 549
    edited October 2019

    I'd definitely call early, too. Sometimes things fall through the cracks. I just assumed my oncotype had been sent off and waited and waited.. turns out it somehow hadn't. No one seemed to know why, but a second request finally got sent when my oncologist expressed surprise that I wasn't getting that done. Good thing it was finally sent, since my score was 38.

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