Developing assymetry

anniee
anniee Member Posts: 163
edited September 2019 in Not Diagnosed But Worried

Hi, Windows my older sister had breast cancer about 10 years ago and she showed me the picture of her mammogram to her it was once I m i d c, she showed me the speculations and how it look like a starburst.last year after receiving my normal mammogram report I reviewed the pictures myself and felt like I could see a distinct very small area with little feelers coming off of it. I compared to a previous mammogram and it did not look the same.I did what was very out of my comfort zone and walk into the mammogram center and ask them to ask the radiologist to please take a second look and handed them a picture of a blown up picture of my concern area of my left breast.within less than a minute the receptionist came back and said that the radiologist said there were no changes from my last mammogram meaning to me that he did not have enough time to pull up and look at the picture that I had presented to him and compare it to last year or compared to this year.I knew I would now have to wait another whole year to find out if this area is a problem. Sure enough I have received a call back for a spot compression and ultrasound because there is a developing asymmetric density compared to mammogram is dating back to 2010. it does not mention speculation but I can clearly see on the picture myself that there are many feelers starburst appearance coming from the area. the area is much brighter and larger and a speculations are much wider.this was a week ago and they cannot get me until October 11th. I can't help but feel concerned that this has been sitting there for a year, and that I tried my hardest to get this taken care of because I happen to be a nanny for two little girls who lost their mother to breast cancer in 2015 at the age of 5 and 7. I have been their Nanny since birth and saw their mother through diagnosis, stage one and returned to find out that she had progress to stage for 3 years later and live for 18 months after that. So I have become these two girls mother figure, and having a loss of someone so close two breast cancer and feeling the responsibility of these girls as weighing very heavily on me. I don't like anything sugar-coated. 8% I have looked up "developing asymmetric density" as specialist here have mentioned that there are specific terminology and I have found that the fact that it says developing asymmetric density is a lot different than just asymmetric density. also the fact that it is very speculated even though it doesn't mention it in the report seems to me that it is highly suspicious. I am really trying to prepare myself for October 11th I have been called back for spot compression in the past and it was nothing but I have a totally different feeling about this time. Does anyone have any advice and do you feel that my concerns over a developing asymmetric density that is speculated, is there anything that I should really be pushing for when I go for this spot compression? If they say it is no longer seen on a spot compression should I just let that go or is this suspicious enough that I should request a biopsy no matter what? Thank you very much for your caring and assistance!

Comments

  • djmammo
    djmammo Member Posts: 2,939
    edited September 2019

    anniee

    Unsure of the timeline above. When did you go and show them your finding and when were you called back for additional views? Were these both this year? Or two different years?

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    Have your doctor send an order for an ultrasound to be done after the additional mammogram views. This is fairly routine at most breast centers but it would be good to make sure it is done regardless of whether or not they think one is necessary after the additional views.

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    Those rads who read mammograms are looking first and foremost for 2 specific things on every mammogram: suspicious calcifications and spiculated masses. This is drilled into us on day one learning breast imaging. It would be odd for a spiculated mass to be present on a mammogram and not be mentioned in a report, especially if it was returned for a review that questioned the presence of a spiculated mass .

  • anniee
    anniee Member Posts: 163
    edited September 2019

    Thank thank you very much DJmammo, I can see that you have been on this site for years helping people. It was last year right after my routine mammogram that I looked at the views myself, and felt that there was a small area with some feelers coming off of it. I brought it to the imaging Center and ask them to look at it again but the receptionist basically just handed it back to me and said the radiologist said there are no changes in your report from last year, and did not compare it carefully as I requested. Now the same area has come into question this year. I have very fibroglandular and dense breasts(I am 56) . So it says scattered fibroglandular densities and developing asymmetric density needing further evaluation. I am also very surprised that they did not mention this spiculation however after last year's experience I feel like they are not looking very closely at all, or possibly just not reporting properly, ? The starburst appearance is very clearly visible. But I concede I am not a radiologist but I know that they look for fine lines coming off of the area in question and they are very easy to see and many of them, like at least 15...Also when the tech compressed for routine, she did not compress nearly as tight as they usually do. as many other patients, I am just nervous about waiting, I know that October 11th is not going to change whether this spreads or not, since it has already been there for a year if it is something, and I also know that cancer grows over a very long period Of time and that's why a developing asymmetry is more of a concern because it's not just one view that looks different it says it was compared over the last nine years last comparison this particular radiologist used with since 2010. I feel like this particular radiologist in the group has been very much more careful because he says that it was reviewed and compared all the way back to 2010. Others have compared only to one or two years, I feel like the comparisons were lacking, I have my records on radnet so I can compare myself back to 2010 and see the area exactly and how it has evolved. it now looks like a bright starburst but it is good that I believe it is just under 1 cm. I also have a CD of the views I always ask for a CD when I leave so I have my records. I feel like since the area of concern has gradually changed is much less likely that this is just an overlay asymmetry. I was called back in 2008 for an area in the lower part of the same breast which they said sometimes when the breast is compressed it makes it look like a starburst, because tissues overlay, but since you can see gradual changes leading up to this it seems less likely that that is the case, am I right? My twin sister was born with a serious deformity and we have developed a very proactive style of learning about what we are dealing with and along with that receiving sometimes bad news. I guess I just want to be prepared for the October 11th appointment, of course I keep hearing that everyone always has to go back for compression spots and it's no big deal but I guess I feel like I just need validation that this is different.maybe one reason why I feel like I need that validation is because of my experience last year when I asked them to take a second look and they really just brush it off completely. I'm not the type to ever go back and throw it in their face or try to claim a liability, I just want excellent diagnostics from here on out. I don't know whether or not I should even mention the fact that I was concerned last year because I'm sure no one will remember it was a quick step in the door to the receptionist and hand the picture back to me in a matter of 3 minutes. as I mentioned I a nanny and only mother figure for two girls who lost their mother to breast cancer very young, and I just want this cleared up so I know what I'm dealing with. I know you can't clear it up but I just wondered what you think, if in fact I do see speculations even though they were not mentioned on the report and it is developing, do you feel that this would be a highly suspicious situation? If you could not answer that I totally understand. thank you for the good advice I'm going to talk to my primary care today to make sure that I get the ultrasound testing because like I said in 2008 they did not do any ultrasound testing because the compression spot looks fine and that was in a different area so I'm not too concerned I just want to be sure that I do get the ultrasound thank you for the good advice! And thank you for the many many people here you have helped get through a time of anxiety and uncertainty. Incidentally I also have been dealing with abdominal upset beginning with vomiting and diarrhea for the last 3 weeks, I am off center in my head and have poor balance so it's just making me feel sick I know it is probably not at all connected but it is hard feeling so sick and having this uncertainty. since the area of concern is so small, I'm not too concerned that these symptoms are related. When I use the measuring tool on the CD it looks to me to be about 8 mm but the spiculations are very large, spiculation length look to be about 12 mm or more, and they are broader than they were before. I did not measure them but they are larger than the density itself. Sorry if this is long and TMI , I know you are very busy, it is just nice to know that someone really cares so much to take the time to help so many people...Thanks again,

    Annie

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