Chemo For Early TNBC

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so_chickadee
so_chickadee Member Posts: 17

I have a question to those with early stage TNBC: did you get/recommended any chemotherapy at all? And what was your chemo regimen/protocol? Getting my cancer clinic appointment soon and hoping they won't recommend any chemo on top of bmx. 😓

Comments

  • Gamb
    Gamb Member Posts: 599
    edited September 2019

    Hi Chickadee

    I have triple negative bc , mine is stage 2b and I'm doing chemo now, my regime is AC+T

  • MountainMia
    MountainMia Member Posts: 1,307
    edited September 2019

    Hi chickadee. So sorry you are dealing with this.

    My understanding is that for tnbc, it is typical to recommend chemo with tumors of .5cm or greater. That said, my tumor was 1.5cm and my MO was pretty wishy-washy on the issue. I was BRCA negative. Also node negative. After discussion he and I agreed to a regimen of AC x 4, dose dense, along with my lumpectomy and radiation.

    Because of your tumor size with tnbc, and the BRCA1+, you might expect a chemo recommendation. Good luck.


  • Hope2828
    Hope2828 Member Posts: 3
    edited September 2019

    Very interesting your question, I did firts surgery 2 months ago and now my chemo is capecitabine, I am currently seeking a second opinion because I understand that with tnbc intravenous chemo is always needed,

  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited September 2019

    My chemo was taxotere + carboplatin x 6, every 21 days.

    No picnic but doable. There are a lot of TNBC people on this site and a few active threads in the TNBC forum.

    TNBC is one of the few breast cancers that it seems some people CAN get rid of permanently-- so it's good to hit it hard in round one.

  • JudiJo
    JudiJo Member Posts: 17
    edited September 2019

    I had 6 cycles of Taxotere and Cytoxan @ 3 week intervals prior to Lumpectomy. I did not acheive pCR, so 35 rounds of radiation and 8 cycles of Xeloda after surgery.

    IV Chemo, Surgery, and Radiation were totally do-able. I worked full time all the way through them. I didn't have as much energy during treatment, but aside from hair loss and some mild food aversions, no really horrible side effects.

    Xeloda was more difficult, but overall, glad I did it in my situation.

    I hit it hard hoping it will never come back.


  • NinjaMeow
    NinjaMeow Member Posts: 41
    edited September 2019

    I know it stinks but you have one chance to throw everything at TNBC the first time.Chemo is manageable.

  • Lucyred
    Lucyred Member Posts: 64
    edited September 2019

    I had the standard ACT treatment, radiation and xeloda chemo. I would definitely consider it with TN

  • HappyAnyway
    HappyAnyway Member Posts: 446
    edited September 2019

    Hi so_chickadee. I had my final Taxol and Carboplatin today. I completed Adriamycin and Cytoxan prior to that. Chemo wasn't as bad as I anticipated. The oncologists have plenty of tricks to help with side effects. Five months of chemo was not fun, for sure. I have no regrets.

    Next for me is BMX likely followed by radiation. DIEP reconstruction will be next year. I take it one treatment at a time.

    Best to you.

  • VL22
    VL22 Member Posts: 851
    edited September 2019

    Seeing that you’re BRCA + and the tumor size, I can’t see them not recommending chemo. My treatment was 4 AC and then 12 weeks of taxol. I was just so devastated when I found out I needed chemo, but then the gears shifted and I couldn’t wait to get started. I just wanted to do everything in my power to fight.

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