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hmak
hmak Member Posts: 7
edited September 2019 in Just Diagnosed With a Recurrence or Metastasis

In July a 1cm in h deep nodule beneath my nipple was found, a stereotactic biopsy ordered immediately. When there they were unable to get a good view to biopsy. A MRI guided one was ordered by RO.while waiting for it to be scheduled MO ordered pet/ct which showed cancer and he began chemo plans. When I returned to MO for results RO had decided to send me to surgeon went to appt she literally saw me fir 5 minutes decided to send scans to radiology dept waited on them to schedule MRI guided biopsy fir 3 weeks. Office was rude kept saying they would call back never did till I got RO involved. After all this they redo mammo ultrasound decide they don't see enough to biopsy. Then surgeon says to me I will try to get pet/ct radiologist to agree its scar tissue have no ide what to think my MO says it's definitely cancer and Ro says she will talk to surgeon and let me know that was 3 weeks ago have hard nothing

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  • HopeWins
    HopeWins Member Posts: 181
    edited September 2019

    this sounds really frustrating. Have you considered finding a new BS and maybe doing an excisional biopsy instead of the MRI guided one? I'm not sure how any Dr can definitively diagnose cancer from a scan... I can see him saying its likely to be cancer, but for the MO to want to start chemo without pathology results? I'm no expert, but that's really surprising. How does he even know what kind of chemo to give you without pathology and hormone receptor info?

    I ended up switching teams and I was shocked at how quickly I was able to get appointments with top Drs - like the next day. Might be worth a try and make you feel like you're taking control of the situation. And even if your current team gets their act together, it's an opportunity for a second opinion.

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  • KBeee
    KBeee Member Posts: 5,109
    edited September 2019

    I absolutely would get a second opinion. It seems your team members are not communicating with each other.

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  • hmak
    hmak Member Posts: 7
    edited September 2019

    Appt tomorrow hopefully I will get some answers!

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  • KBeee
    KBeee Member Posts: 5,109
    edited September 2019

    Write down every question and don't leave without answers! Bring someone with you. Hoping you get answers!

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