Ibrance (Palbociclib)

Hi all.

Holly- Woohoo on the NED scan !!!!!!!!!!

mshar- Praying for a good result for you. As Pat said, with it being Friday that may be the reason you didn't see results yet. Gotta love the weekends, right. Hoping your weekend goes good and fast so you can get results Monday.

Busy day for me. Ready for bedtime. Had Xgeva and Lupron injections today. Xgeva hurt--nurse said she didn't let it warm like she normally would, just got it out of frig. But woohoo my Port let us draw blood, sometimes it is stubborn and we cannot get blood. The infusion center was very busy today. Then I went to a funeral--lady from church and was 92 years old. Then errands. Tomorrow resting. Hopefully not too yucky feeling--sometimes after the Xgeva I feel cruddy, but sometimes not.

Hugs to all.

Edited to say-- Sorry Jaycee clicked submit before I said glad the growing is slllooowww. Wish no growth, but good that it is slow and no change in treatment.

happy beautiful Saturday everyone! (At least it is a beautiful day here in Philly!)

I had an “interesting” convo with someone yesterday and would love to hear your thoughts on this:

I was talking with someone about BC, who doesn’t know I have MBC. They shared these ideas:

1. That cancer somehow can be thought of as “can’t sir.” They explained something behind the psychology of this and cancer, but I started spacing out as soon as they started in on this. I think it had something to do with people who have cancer needing to realize that they they need to be able to start saying yes to the things they can do, and not pushing things away and saying no???

2. Then they said that women with BC have issues around over nurturing or being under nurtured - from a psychological perspective.

Thoughts? I felt like no surge of any emotion except slight annoyance and the feeling toward them of, “would you say this if you had cancer yourself?”

Love- typical victim blaming. Especially where women are concerned. We must stop this abuse in its inception. My surgeon kept saying it’s not your fault. I realized that I felt ashamed to have gotten cancer. I had no risk factors - except 5 out of 6 women in my family have had breast cancer. The only one who hasn’t is the non nurturing one. Have your “friend” read “illness as a metaphor “

On another note- are you still listening to the breast cancer podcast with Dr Neil Love

Philly,

That was total BS.

it's disgusting when people blame the person who got cancer.

Philly, I totally agree also. And I was someone who got regular conventional checkups and was dxd with MBC de novo with no lumps in breast. The technician saw a shadow under my arm. I guess what I am saying is there is no standard anything with MBC. People ask me what my pre-diagnosis symptoms were and how it was discovered usually because they are scared for themselves. I have no room in my brain for ignorant people who have no empathy. I don't mean to sound harsh or uncaring and know that someday they may need support too. I know I have had to grow in my knowledge of what this dx includes. In the meantime I choose to spend my energy on friends and acquaintances who are sincere, and pray for those of us who are fighting this disease with our every ounce of energy. I also send up extra prayers for those who are struggling through the latest storms and also fighting MBC. I hope you all are safe.

Candy, Jaycee, Philly... good news ladies, if I've picked everyone up properly.

Divine, Pat and Bev Jen and anyone else I've missed ....we so far have saying things are screwy, shrugs and blowing cheeks out when MOs give us news, usually unexpected or bad. Must be hard for them.....but would be interesting to read what every one picks up from their MO body language or just language wise?

Biggest one for me is sitting alone in a waiting room and consultant appears and immediately asked if I had anyone with me...,this has happened twice.... might as well have said the cancer is back right then and there and I did say so at the time... poor guys were just trying to do the right thing but sometimes I think they think we are daft!

Nicole, I love answered prayers! I'm so happy about your mouth sores and will pray the new MO is compassionate and really smart!

Love from PatGMc

interesting question, Karen.

When the PA walked into the room on Friday she looked like she was upset or very sad. Feelings left from previous patient. She pulled herself together quick enough.

When my bone met was first discovered with an mri to shoulder I went to see 2 oncologists. They didnt know any thing about the extent of the mets. So far just found the one in arm at 7 cm. They each had a look on their face that I interpreted as ' how do I tell this woman to go home and plan her funeral?' Yikes. After tests, at the next visit I chewed them both out for that. They each said I have another 20 years.

Gailmary

Thanks Pat!!! I am so happy and grateful to you and to everyone for all their input on what to do to help with them and also for all the prayers!!!

NKB - I had forgotten about Neil Loves BC podcasts there for a while! Thanks for the reminder about them. I fell asleep listening to the latest last night :-)

I had a funny thought about all the can’t sir and over/under-nurturing last night and of course I completely forget it now 😂

But I will sign off as:

Love from your over/under can’t sir anti-not-anti conventional medicine Chinese medicine practitioner,

Philly

(Oh yes! That was the funny thought! My sign-off!)

simone -my pleasure 😃

Take your honors where you can get 'em, Nicole!

Put that on a t-shirt, Love from Philly!

HI EVERYONE...Does anyone here have side effects from XGEVA?...Had a shot 2 days ago,and today for awhile pain in jaw..

Ruthie, XGeva causes pain along my rib cage. I know it's the X because I took a month off and the pain went away. Came back after next injection. I used to blame all side effects on Ibrance but I believe the itchy rash is an XGeva thing and lots of the fatigue is from the AI.

Such an adventure, isn't it?

Love from PatGMc

THANKS PAT...I AM A 10 YEAR SURVIVOR .with mbc...