37 years old- just diagnosed with IDC
got the results today that I have IDC... my appointment with my dr to go over staging etc is Tuesday morning and my mind can’t stop racing...
I’m sorry if there is another thread already about this but I want to be prepared for my appointment with questions etc... she said she has referrals for surgeons as well..
What is the normal time period from diagnosis to surgery? I feel overwhelmed with making so many big decisions... as I’m young I want to think about future damage from treatments etc...
How many surgeons am I supposed to meet with?
I’m so lost... any advise is so much appreciated... thank yoi
Comments
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Hi MelissaAshley,
Sorry about your diagnosis. I was 38 at diagnosis and it is super hard. It's normal that your mind is racing. It will get better, I promise.
You can meet with as many surgeons as you want, there is no right or wrong. I stuck with all the doctors I saw first, but I trusted the first referral (GYN who I trust recommended her good friend the breast surgeon, who personally called her favorite oncologist to get them to squeeze me in). I adore all my doctors so it really worked out. But if you feel at all like you need to hear multiple opinions, you definitely can.
It will probably move slowly. I think I was a month diagnosis to surgery, but I have heard of longer spans. My surgeon told me once she's comfortable with a 6 week gap for an aggressive cancer, more if it's a less aggressive. In any event you do have time to figure it out. They are probably going to throw decisions at you, get ready for that. They will also probably want you to do genetic testing because of your age.
My biggest recommendation...what helped me the most...see if you have access to a nurse navigator for advice and support. They are trained to support you. I called mine numerous times and she even helped set up some appointments and helped me sort difficult decisions out.
It'll be ok.
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Hi Melissa! I'm so sorry that you find yourself here, but so glad that you found us here at BCO.
My hospital has a dedicated breast center with a social worker who helps navigate all of this craziness, so if you have a choice of hospitals, I highly recommend a situation like that. I also recommend reading as much information as you can on this site before your appointments. Things about diagnoses, potential surgeries, chemo, radiation, etc. There is usually not a big rush to get started, my surgeon asked if I had any upcoming events or vacations before I had surgery. Some women have fertility treatments to preserve eggs prior to treatment.
This part is truly the worst, when you have no idea what treatments you'll be in for. I cried a lot, and didn't get much sleep. One the surgery is over and your treatment plan is in place, I felt much better. I'm 5 years out from diagnosis, and feeling better than I did before the cancer diagnosis. It was a wake up call to me to eat better, exercise, and reduce my exposure to harmful chemicals.
Sending hugs your way!
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Re: choosing a treatment team, where I live, there are two options—one large public hospital and a smaller private one. The conventional wisdom is for normal, regular events, the smaller one is a little better on privacy, bedside manner, . . . I’ve done all my breast care through the private hospital and have been very happy with my care. I think that can also accelerate the timeline. It was about a week and a half for me from biopsy to surgery. I do simple lumpectomies with no plastic surgery involved. I had an initial meeting with a MO several weeks later—not a big rush for that because you need to heal from surgery before any further treatment (probably—unless the tumor is so large you need neoadjuvant chemo). And if you’re Stage 1 and HER2-, there’s a good chance you won’t need chemo at all. If your tumor is fed by estrogen (ER+), hormone therapy will be recommended to help prevent recurrence.
Take this one step at a time. The first decision most women face is mastectomy or lumpectomy + radiation. Try to push everything else out of your brain space for now.
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