Support for our sister ABeautifulSunset!

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  • BevJen
    BevJen Member Posts: 2,523
    edited August 2019

    Sunset,

    Thinking of you and hoping that the new plan provides you with a pain free existence and also much improved outlook. It all sounds very coordinated and good.

    Bev

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  • Jaylea
    Jaylea Member Posts: 478
    edited August 2019

    Sunset, lifting you up in prayer today for a successful surgery that results in pain relief. Then cyberknife, and on to Navelbine. I love your treatment team and your plan. Sending you big hugs ~ JL

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2019

    Vinocap, actually. Navelbine (vinorelbine) along with capecitabine (Xeloda). But ”vinocap” sounds like it should be a glass of wine at bedtime, doesn't it?

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  • jensgotthis
    jensgotthis Member Posts: 937
    edited August 2019

    ugh, what a roller coaster friend! Hoping for good results from your procedures. Gamma knife has been such a great advance. Happy to hear about more QOL time

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  • Andi67
    Andi67 Member Posts: 423
    edited August 2019

    Hi Sunset! Thinking of you and hoping the kyphoplasty goes well and does the trick with that pain. I had one 6 years ago... compression that just wouldn't heal, and once the fog of the procedure wore off, I had immediate pain relief and have had no issues down there since. I am sure you will get the same results, and you get the extra ablation! (is that what you called it?) So sorry to hear about the brain mets but glad you already have a plan in place to zap them. Those procedures work wonders! I think you will be back in the world of feeling "normal" and enjoying quality of life SOON! In the meantime, hope you are resting comfortably! You have an online army of people that love you and are praying for you!

    Big hugs!

    XO

    Andi

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  • Cure-ious
    Cure-ious Member Posts: 2,626
    edited August 2019

    Radiation is also a good thing for another reason- blasting open some cancer cells can help your immune system to go after the cancer, works synergistic with chemo; this is coming together well

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  • Heidihill
    Heidihill Member Posts: 5,476
    edited August 2019

    Sorry you are in this spot but it does sound like a great plan. I would have plenty of hope for a solid response. Radiation can get you an abscopal effect, which could go very far in killing cancer cells. We are all in your pocket.

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  • SandiBeach57
    SandiBeach57 Member Posts: 1,617
    edited August 2019

    Hi BEAUTIFUL.. (Sunset). You are loved in digital land and soon this recent progression and pain will be just a memory.

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited August 2019

    Here's to zapping brain mets, a toast to Sunset with our AM coffee. Here here!

    I was wondering if IR did Kyroplasty. I have my personal IR who calls me his VIP patient and works me at the last minute. Yay for IRs.💞

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited August 2019

    Omg you won't believe this! Last night a transit orderly ran me full speed into a wall !! I seized up from groin to neck! She didn't even report it. Well... I told EVERYONE. Especially since I had the worst night I've had in weeks with pain. Definitely being reported.

    Good news tho. Had the ablation and kypho today. Doc says technically it went very well . Already feeling a bit better. Although I think I'm still feeling nerve repercussions from the accident. We will know the full extent of it working in a couple of days.

    But I'm smiling! 🙂

    Sunset

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  • JFL
    JFL Member Posts: 1,947
    edited August 2019

    WTF?? That is nuts about the orderly. Sounds painful. Glad the procedure went well!

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  • Anotherone
    Anotherone Member Posts: 633
    edited August 2019

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited August 2019

    Sunset, WOOHOO that the ablation and kypho went well. I am glad that it is behind you and you can rest and recover. What can I say about that orderly????? I do hope you don’t suffer any more pain as a result of her incompetence. I am sending good vibes your way.

    Hugs and prayers from, Lynne


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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited August 2019

    good Morning friends. I am HOME!!

    I am in a wheelchair, using a walker and other hospital what nots. But I'm home. It's SO nice to be here. I think I'll heal a lot faster here too.

    So, the breaks and thinning vertebrae have been sealed up, I can't believe it took so long to be found. Next week, I start Cyberknife (another brand) to the brain. After that I can resume my chemo, which I haven't really even able to get since I keep having to deal with the local issues.

    Hopefully the brain rads will do its thing and nothing else will grow during the chemo pause.

    So, I'm still here. Still hopeful. (Realistic , but more hopeful). Thanks for the support. I hope you are all doing as well as you can.

    Sunset

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited August 2019

    Wonderful update! Yes, home feels so much better. Rest well, and good luck with the brain treatment! Wishing you restorative sleep and healing.

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  • Micmel
    Micmel Member Posts: 9,450
    edited August 2019

    sooooo happy you’re home Darling. Nothing like your own place. Rest up and be as comfortable as you can. Humid day here . Yuck. Sweet dreams. I’m thinking of you resting up after that hospital stay. That can be stressful. Wish you the best!

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  • pajim
    pajim Member Posts: 2,785
    edited August 2019

    Wheee! Do some wheelies.

    Seriously, I'm pleased for you. I hope the pain is going away. . .

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  • Tina2
    Tina2 Member Posts: 2,943
    edited August 2019

    Ah, home. Enjoy! Hope your healing is swift.

    Tina

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  • LoveFromPhilly
    LoveFromPhilly Member Posts: 1,308
    edited August 2019

    lots n lots of love ABS!!! Nothing beats coming home to one’s own bed and comforts.

    If you are in need of a good series to watch, my absolute favorite is called Offspring on Netflix. It is incredibly delicious and funny and tender and I couldn’t take my eyes off the screen for one second while watching.

    I hope you are feeling as pain free as possible and let’s zap those little brain boogers outta there!!

    Love and hugs being sent to you!!!!

    Brenda

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  • santabarbarian
    santabarbarian Member Posts: 3,085
    edited August 2019

    The Great British Baking Show -- this was a highly ironic binge I did while on my low carb food averse chemo regime.... but what a lovely charming funny human show, cool challenges, and you learn a lot about baking! Fun and light and yet suspenseful!!

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  • Jaylea
    Jaylea Member Posts: 478
    edited August 2019

    Sunset, it's great to hear your lovely upbeat voice. Being free of pain does such wonders for the spirit. Now you can focus on recovery and building your strength. Sending you hugs ~ JL

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  • JFL
    JFL Member Posts: 1,947
    edited August 2019

    Glad you are home and doing a bit better!

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2019

    Oh, so glad you are home! No midnight and 4:00 AM vitals. Revel in your favorite things and sleep well.

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  • Andi67
    Andi67 Member Posts: 423
    edited August 2019

    So glad you are home! Nothing like your own bed!

    Another good binge worthy show is "Dead to Me"... .although I realize the title isn't great, especially here. It's a dark comedy, but super funny. I will have to check out Offspring...I need another series.

    Anyway - back to Sunset - happy for you!

    XO

    Andi

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  • Grannax2
    Grannax2 Member Posts: 2,551
    edited August 2019

    Yay Sunset. Hopefully, you will be out of pain soon. Home Sweet home. What was that orderly thinking? What was the ablation like? I may have one someday.💞

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  • ABeautifulSunset
    ABeautifulSunset Member Posts: 990
    edited August 2019

    Grannax, the ablation was just part of the kyphoplasty so I didn't notice anything different. The pain from the spine ceased ina day or two. Pretty f ing amazing. But I DO have a lot of rehab pain. And I'm not walking yet. Happily at home in a hospital bed In a living room filled with my needs. PT three times a week, full time care giver, etc. PT say a month Or More before i see true changes in mobility. I just have to be to patient.

    I start SBRT TO BRAIN METS on Tuesday. 🤞🏻

    Lots going on.

    Sunset

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  • ShetlandPony
    ShetlandPony Member Posts: 4,924
    edited August 2019

    ABeautifulSunset has given me permission to post an update. It is not a happy one. Things are quite difficult for our dear Sunset, and she is on 24-hour home care. Leptomeningeal disease — cancer in the membranes surrounding the brain and spinal cord — was discovered. Even with treatment this carries a poor prognosis. She has very qualified people to help with the medical decisions. Quality of life is of course important to her. What she could really use from us is the emotional support that we BCO sisters can provide. I am very sad, and also very honored to stand with her now. I admire her courage and grace in facing this, her honesty, her love for her friends and family, and her devotion to her kids and their well-being.❤️😢.

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  • 50sgirl
    50sgirl Member Posts: 2,527
    edited August 2019

    Shetland, Thank you for posting this latest update. I wish the news had been better, but we all want to keep informed.

    Sunset, I hope that you are resting comfortably. My thoughts are with you, and I hope that things will turn around. You have many supporters here who care about you and who will keep you in our hearts. I hope that you can find strength in our support.

    Hugs and prayers from, Lynne


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  • DivineMrsM
    DivineMrsM Member Posts: 9,620
    edited August 2019

    Shetland Pony, I appreciate you’re letting us know about A Beautiful Sunset. It is tough news to hear. Your post is so heartfelt, detailing all the many reasons you admire Sunset and that you are honored to stand by her at this time. I am here to express my support, too.

    Thinking of you, Sunset.

    image

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  • candy-678
    candy-678 Member Posts: 3,950
    edited August 2019

    Sunset- My thoughts and prayers are with you now. I am holding your hand from across the miles. May your Heavenly Father give you calm and peace during this time. We are all here for you. Love.

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