Asymmentric/focal density .... Questin

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Lady000
Lady000 Member Posts: 4
edited August 2019 in Waiting for Test Results

I recently went for a screening mammogram. I go every two years. I get the dreaded call back for further diagnostic imaging. This letter said I have a BREAST DENSITY: BIRADS D.

Now I always knew I had cystic breasts, I have had many biopsied and turned out to be nothing. I also went in for a lump under my breast once, doc thought it to be a sebaceous cyst but sent me to ultrasound where they found 3 masses. Surgically I had these removed. B9.

But this is the first time I was informed of my breast density. The most bothersome thing I researched was that mammography in dense breasts like mine...does NOT pick up 50% of the cancers. So lets toss a coin! I'm very disturbed I was never informed of this as I will be 53 this month. So to me this was not good.

I await my diagnostic testing appointment. I'm thinking I'm going back because I have dense breast tissue and really was not worried about it. So I get in and they start with my left breast. Once finished she said that I could get dressed. I replied...well aren't you doing the other breast as I do have two dense breasts. She replied NO. There was only a concern for my left breast. I was then sent for an ultra sound. Suddenly they got my full attention.

Went to Doc to get results. He starts with 1 in 8 women will get breast cancer. Said I had a "thickening". Said I am not out of the woods yet and they will watch closely and re-evaluate in 6 months.

I asked about a biopsy and he said I would have to convince a surgeon to do it. I then asked about my private options. Subsequently we have arranged a private MRI, not cheap, but totally going to be worth it I think. My anxiety right now is through the roof. So we are now waiting for my period and then will schedule it optimally for hormones. Tentatively August 24, 2019. I tell you this is the first time I can hardly wait for my period to come.

So my report says: (my question follows)

COMPARISON: 21 MARCH 2011 AND 22 JUNE 2017 (This is a good thing I found out that there is a comparison)

TECHNIQUE: MLO and CC views, of the left breast...Cone mag compression views in CC and MLO projects.

BREAST COMPOSITION: C- The breast(s) is/are heterogeneously dense, which may obscure small masses. (on the Screening mammogram it said BI-RADS D)

FINDINGS: The workup images confirm the presence of a focal area of increased density in the posterior inferior left breast showing mixed unit and fat density with poor margination. This shows slight increased conspicuity when compared to 2017 and is not identified on the fil screen image 6 of thousand 11.

The patient shows characteristic of small island of breast parenchyma.

IMPRESSION: Asymmetric density confirmed without a discrete focal mass lesion. The appearance is not strongly suspicious for malignancy or significant breast pathology and has characteristics compatible with an island of breast parenchyma.

This has however shown interval increase in conspicuity since 2017. Although this could relate to menstrual cycle effect, short interval follow-up is recommended with repeat examination of the left breast diagnostic facility in 6 months time to assess stability.

BI-RADS 3 - Probably Benign. Short interval follow-up recommended. (my research tells me this is less that a 2% chance of being Malignant).

So this is my question: A developing Asymmetry - Is a focal asymmetry that is new, larger, or more conspicuous when compared to prior studies. Of these, approximately 15% - 27% are found to be malignant. So mine has increased in conspicuity, this is new to me...this also is greater than a 2% chance of a BI-RADS 3 and should be a BI-RADS 4, which MUST be biopsied. Is this an error as I suspect and I should be getting this biopsied?

I have read so much and I am fully aware that it could be b9 however in research, invasive lobular carcinoma and ductal carcinoma can also a small appear as a island of breast parenchyma. What frightens me is all the things over my screening history that the mammogram has missed. If I had known this I would have been screening with MRI a long time ago.

Regardless of my MRI results I will convince a surgeon to take this tissue out for this reason alone. Looking for other peoples thoughts on this. Thank you.

Comments

  • Moderators
    Moderators Member Posts: 25,912
    edited August 2019

    Hi Lady000 and welcome to Breastcancer.org,

    We're sorry you find yourself here and worrying, but we're glad you've found our safe place to ask your questions. We know you'll find support here and hopefully get some answers soon.

    While you wait for some responses, we wanted to point out this article from the main Breastcancer.org site, which helps explain why you were likely not made aware of your dense breasts; earlier this year the FDA proposed changes to how breast density is disclosed to women during their mammogram results.

    We hope this helps and that you get some more answers soon!

    --The Mods

  • Gussy
    Gussy Member Posts: 115
    edited August 2019

    Hi Lady - for probably 20 years or more of screening mammograms the report was negative but mentioned dense breasts. No suggestion of any follow up. Two years ago I went for the annual mammo and two nodes were seen in the L armpit. The rest of the report said negative!! My PCP sent me immediately for an MRI - 6 cm tumor in L breast. Probably malignant.

    I decided to go Tampa and the Moffit Cancer Center for another opinion. They could not see it on mammo OR ultrasound. The only way to see it was MRI and that is the way I had to have the biopsy done. Which confirmed stage 3a grade 1 tumor. I went back to my home town for treatment and the BS said it may have been there for 10 years even though I had done everything right, it still turned out wrong. So poison, slash and burn later I'm praying that it will not raise it's ugly head again. I had neo adjuvent chemo which didn't do a whole lot, partial mastectomy and a month of radiation. I have been left with finger and foot neuropathy and Atrial fibrillation. Makes me really angry to think that if the standard of care for women with dense breasts was a follow up MRI every 2 or 3 years could make a big difference. I am due for follow up tests including MRI and PET scans and doc appts. in Oct. and of course, hoping for negative results which I had in the spring.

    I hope my story can make a difference for those out there with dense breasts to get better care.

    Gussy

  • Lady000
    Lady000 Member Posts: 4
    edited August 2019

    By MRI is booked for next Thursday. I’m so glad that this will be over soon! I pray it will be over anyways. Crossing my fingers.

  • Lady000
    Lady000 Member Posts: 4
    edited August 2019

    had my mri. Got the cd. Radiologist can’t read it till sept 3. I’m freaking, one thing for sure mammograms in dense tissue picks up nothing. These mri photos light up! I know enough it’s not normal! I’ll be back after I see dr on Sept 4, 2019. It will be what it will be

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2019

    What do you know is not normal? It is pretty normal for breast MRIs to light up with all kinds of benign things

  • SUPer52
    SUPer52 Member Posts: 122
    edited August 2019

    Hi Lady,

    I understand how nerve wracking waiting for test results can be. I know it is easier said than done, but try to keep yourself occupied with distractions while you await the radiologist's report. Just yesterday, I had my follow up appointment with my surgeon and I am being referred for an MRI. He stated directly that I should not get worried if I get a callback because while an advantage of the MRI is that they are more sensitive than the ultrasound, there is also a drawback because they also commonly pick up false positives also. Don't give up hope yet. Like MelissaDallas, said what you saw light up may just be benign conditions. Hoping for good results for you!

  • Lady000
    Lady000 Member Posts: 4
    edited August 2019

    Thank you both! I do know that most wiil be benign. I've been explaining this to friends and family myself, to try to keep everyone relaxed. I said don't worry if I need to get biopsies because MRI has Lot of false positives. Right now, I don't have cancer until they prove I do. And for the first time in 53 years I think with this mri they will finally get a clear picture...and I will have my peace. Thank you both. It's nice to talk to others who understand the anxiety of waiting. In my MRI one mass that enhanced was a heart ❤️. It’s actually amazing.

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