Beyond exhausted

Options
Snaffle53
Snaffle53 Member Posts: 140

I’m not so much waiting for test results as I’m waiting on my consult with Dana Farber this Friday. Today I just seemed to have run out of gas. The stress of waiting for this appointment, waiting on my local Oncologist for a treatment plan, waiting for the official diagnosis and a treatment plan, and/or waiting on that treatment plan to start has all just finally worn me out. I know I’m supposed to be resting up for when treatment starts. I have been taking it easy. It just hasn’t been enough to fend off exhaustion.

Could this be a symptom of the cancer too? Well, whatever it is, I’ve hit a real energy low. I guess all this isn’t helping my Fibromyalgia either. I’m probably entering a flare. Just what I don’t need before chemo.

All the tests and waiting for results has taken a toll. I will be hugely relieved to see Dr. Chen at Dana Farber and maybe finally get real answers instead of me assuming things based on tests and online research. I just need to know what I really have and what we are going to do about it. I’m hoping getting a treatment plan will re-energize me for what’s ahead. I could just use a big hug. Or something

Comments

  • Anonymous
    Anonymous Member Posts: 1,376
    edited August 2019

    Big hug coming your way, Snaffle. It's all extremely stressful and feeling exhausted is normal. I'm sure Friday can't come fast enough for you. I hope you get the answers you need and can then focus on the plan, instead having to wonder about the what ifs. Good luck to you. xo

    Kelly

  • Snaffle53
    Snaffle53 Member Posts: 140
    edited August 2019
  • Moderators
    Moderators Member Posts: 25,912
    edited August 2019

    Sending hugs to you as well Snaffle. We know it's tough waiting, but once you know more, and get a plan in place, you'll feel better about taking this all on. You can do it! We're all here to support you the entire way.

    --The Mods

  • Snaffle53
    Snaffle53 Member Posts: 140
    edited August 2019

    Finding BCO has been such a relief in all this. I know I’ll be here a lot when treatment starts. I have so many emotions that half the time I don’t know what I’m feeling. It IS exhausting!

    I am counting the hours till Friday

  • lola12
    lola12 Member Posts: 127
    edited August 2019

    I really believe this waiting part- from cancer confirmation to start of treatment- is really one of the hardest parts of this roller coaster Snaffle.

    It is new, so many tests, terminology, and appointments to deal with along with our own mind games made out of fear of the unknown, BUT, I can tell you that you will get through it, you will get your plan in place and you truck on ahead with your treatment me.

    The way your are feeling is completely normal and it is hard. When I was waiting for my results to trickle in and for my oncologist to formulate my treatment plan, she said NOT to get on the internet for two reasons. One, much of the information is incorrect and outdated and does not apply to me in 2011 ( my diagnosis year) and she said that many of the cases online are unique or extreme. She said that the majority of women and men who were diagnosed with breast cancer over the years are back to work, living their lives and NOT writing on the web. For that moment and time in my treatment plan, she was 100% right. I knew nothing about my cancer and I was assuming the very worst.


    Stay Strong- Trust that once you have a plan in place you will do what you have to do. Try to distract yourself a little bit each day- do some of your favorite things. Lastly, know you you got this.

    Lola


  • Snaffle53
    Snaffle53 Member Posts: 140
    edited August 2019

    Ha! My Oncologist said if I were to research Google, then I’d soon be needing treatment from Doctor Yahoo! So, I know in some ways I shouldn’t be here already. But, tried that, and my need to know is simply too strong. I am smart enough to read my Pathology results. I can put 2 + 2 together.

    The one thing I have promised myself is not to go into Friday’s appointment with pre-conceived ideas. I’m determined to let the doctor see my tests and let her tell me what’s up.

    Only one full day left to wait

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2019

    I’m so sorry Snaffle. In the diagnostic process being “special” makes it that much worse

  • OnTarget
    OnTarget Member Posts: 447
    edited August 2019

    Hi Snaffle,

    I found the endless waiting to be the worst part by far! I felt so much better once I had a plan, and then even better after surgery!

    I only have minor stressors now- waiting for my chemo session, waiting for random doctor's appointments. I can't wait for the active treatment part to be done and the waiting to be over!

    Good luck at your appointment tomorrow! I hope you get the answers you need.

  • Snaffle53
    Snaffle53 Member Posts: 140
    edited August 2019

    Thank you, everyone. I feel better today. The day is going by fairly quickly. It will be Friday morning before I know it. Since I don’t have a “first opinion”, I’m really hoping for a big reveal tomorrow. I just hope I’m not expecting too much. I am seriously ready for a diagnosis and a treatment plan

  • Missmom79
    Missmom79 Member Posts: 202
    edited August 2019

    i feel the same way. Waiting on diagnosis. Abnormal mammo, core biopsy and then an mri today. I am just mentally and physically exhausted and I dunno what I’d do without my mom.

  • Snaffle53
    Snaffle53 Member Posts: 140
    edited August 2019

    it does get better after diagnosis and a treatment plan. I got the whole nine yards today. Diagnosis, treatment plan, port placement date, and first day of chemo. It feels like I have been launched out of a cannon

  • OnTarget
    OnTarget Member Posts: 447
    edited August 2019

    That's great! A way forward is the best thing to relax you!

    Wishing you a quick recovery!

  • AngieB92
    AngieB92 Member Posts: 323
    edited August 2019

    I feel the same way. I was diagnosed three weeks ago and it seems like 3 months ago! Every small step leads to the big picture. I just got an appointment to see my oncologist for the first time (already consulted with surgeon, did MRI) but just knowing that I have an appointment with him next week perked me up.

    I’m a web researcher too and it’s overwhelming the information out there but this site does it in a respectful way where at least I’ll recognize terms and treatment plans (shout out to the triple positive group!)

    Good luck with your port placement and all of treatments!!

  • Eigna
    Eigna Member Posts: 438
    edited August 2019

    Same here. Feel exhausted. Still waiting for appointment with breast surgeon and oncologist. Sorry for my ignorance but why do you need a MRI?

  • 2019whatayear
    2019whatayear Member Posts: 767
    edited August 2019

    Doctors typically order MRI of the breasts to see if there are any other masses in the affected boob or on the other sode

  • Missmom79
    Missmom79 Member Posts: 202
    edited August 2019

    i was diagnosed 3 weeks ago too....kind of. I know that I have a lot of DCIS. And there still more testing and they think it’s IBC. I have to see the surgeon on the 3rd of September. So still don’t fully know what’s going on.

  • Turkeypoult
    Turkeypoult Member Posts: 36
    edited August 2019

    BS explained to me that an MRI more clearly defines the size and shape for him.

  • Turkeypoult
    Turkeypoult Member Posts: 36
    edited August 2019

    I found that all before the oncologist is prologue. Once I met the oncologist I felt I had a handle on the dx and was ready to do something in response -not just hurrying up and waiting for results. I start chemo 9/9.

  • naalehunet
    naalehunet Member Posts: 17
    edited September 2019

    Aloha to all and so many thanks to all who have shared their experiences with breast cancer. The road ahead seems so uncertain and so painful that the fact so many have survived it all - and have written encouraging words to guide others - is inspiring to us newbies.

    After a month of follow-up biopsy, ultrasound, MRI and primary physician appointments, I finally see my oncologist in three days and have my second (Right Breast) biopsy on Friday (having had something spotted in my MRI) and the following Monday, consult with my trusted surgeon.

    My daughter says "slow" is better (because apparently my Dx is not urgent) and things have moved slowly so far. Being older helps bring patience and an appreciation for my remaining pain-free days.

Categories