Was ur dr. There 4 ur tattoos, first radiation?
long story
Super botched up medical care. bad.
So I was to start rads today. I had a botched tattoo job i was not happy with. They also left me naked with the male tech to get dressed in the CT room i wasnt happy with.
I was to get another tattoo today. of course, I assumed my doctor would be there to oversee. I went in and asked for him. gone for the week. asked for his nurse....gone. asked for nurse number 2...gone. no doctor to oversee.
SO I walked out.
MIND you I had to bring my kids because this was the only spot they had ...they made the app time in middle of the afternoon, not me. (I told them early or late because of kids, work, etc.)
Told them to have Dr call me.
My doctor did call. I asked where was he? no answer. Explained my botched tattoo job last week and never wanted these guys touching me...especially with no doctor there. How were they to get my tattoo right with no doctor? no answer.Their other center botched me up really awful. I told him my screw up card was punched in excess and just can't have anymore mess ups. I mean...was your doctor there for your tattoos, first radiation?
NOWHERE else for me to go that's not hours away. I had looked forward to this for months. argh.
LOOKS like just meds for me now. Not even sure rads would help at the point I'm at.
THANKS for letting me vent.
Comments
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Oh my! It sounds like they've taken what should be a fairly routine set up and turned it into a mess that you have to bear. I'm truly sorry. I have only had rads to my femur, bone met, so my experience may be different. It was eight years ago so I might be a bit fuzzy. I met with my RO to discuss, plan, askquestions, concerns options etc. He also hooked me up with a new mo who I love. After the meeting they did all of the planning, positioning and tats which look like a few tiny blue dots across my thighs. My RO was not present for this nor for my first actual rads session. I did, however, meet with him once a week during the course of tax.
How far away exactly is another facility. I've known a few people who stayed near their rads center during the week but came home on weekends. I know that's not always possible. Just a thought. One thing you might want to do so members who have similar diagnoses can respond more personally is to make your signature/diagnosis line public. Let me know if you need help with this. Take care and breathe..
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My doctor was not there when I actually got my tattoos. She did pop in for a few minutes during my simulation, but wasn't there when they did the actual marking or tattoos.
I'm getting the hypofractionated which is the same amount of radiation, but more at a time so less treatments. I had 15 regular treatments plus 5 boosts. My understanding from various comments made by rad techs is that the x-rays done at some or most or many visits are shown to the doctor - or maybe it is something else that comes after the x-rays, but they comment that she saw or approved or something.
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How were the tattoos "botched?" In the wrong position? Too many, too few? My rad center doesn't do tattoos, just Sharpie marks that got renewed as needed. I saw the RO once for a consultation; he popped in during the set-up the next week, and after that I met with him very briefly once a week. I was lucky and had just female techs the whole 33 sessions. One time there was a male but they told me beforehand and asked if I wanted to skip that day and add it on at the end. I had no problem with him being there; I've had so many male doctors and nurses and technicians over the years that one more wouldn't bother me. Even with the female techs, they'd open my robe just long enough to line up the marks, then cover me up again. I never had the front-wrap robe off all the way. I'm sorry your rad center doesn't do that.
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I think my RO was there for the beginning of the simulation - she was in the other room with the person that does all the measurements, etc. Then it was 2 young girls that did my tattoos. When I came in for actual rads I had various techs, male & female; they got me situated on the table - with my chest exposed, to make sure everything was aligned. They never made me feel uncomfortable laying there with my chest exposed.
I have 2 small dots, similar to blackheads - which is why I want them removed. I'm so sorry your simulation w tattoos didn't go as easy as mine. Your RO should reach out to you, don't not get yourself the best treatment you can because of the tattoo. If there is more than one RO, ask for them instead of the one you've lost faith in. Best wishes to you.
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No, my doctor wasn't there when I got my tattoos or during the simulation.
She's the one who created the map for my radiation, all the computer modeling, etc. that was based on the x-rays and stuff during that first session. I saw her every Monday during radiation (I had 20 treatments, five days a week). The Monday visits took longer because they also involved an x-ray to check that everything on me still matched the map. Then I'd get my vitals taken and see her. She examined my breast and side to see how my skin was doing, always asked about how *I* was doing and if I had any questions.
I do think, based on the responses you're seeing here, that your doctor not being in there for the tattoos is absolutely normal. That doesn't mean your tattoos weren't botched, that's not what I'm saying here. Just that it sounds like business as usual re the doctor.
Honestly my rads crew were great, very professional, made everything very easy and pleasant. I'm truly sorry that hasn't been your experience.
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I am sorry that they didn't do your tattoos correctly. Maybe they can give you sharpie marks instead...
My radiation oncologist was not there for my tattoo placement, nor for the first treatment. I don't think they usually are so I wouldn't be too harsh on them for that. They are going to consult with you, plan your treatment (behind the scenes) and then probably see you once a week for a skin check.
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My doctor was there. I had a consultation with her first to explain again how everything would work, and how she had decided that 16 treatments with no boost would be what I needed based on the final pathology, instead of what we'd discussed before. Then I was taken to the simulation. She wasn't present in the room during the tattoos, but she came in to check that everything had been done correctly.
After that, I saw her once a week during radiation. Every Wednesday, and yes there was an x-ray that day as well. She asked to see me again in two months after I finished.
I'm unclear on what you mean by "botched." But if you mean they hurt, yes. They hurt like hell.
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My treatments were 8 years ago too so my recollection is a bit fuzzy but I do recall my RO was not there for the treatments. Frankly I didn’t care because I had a great group of women techs tending to me.
It didn’t start out well though because I sat in the waiting room for 30 minutes and then got a call from one of the techs asking where I was. Imagine her surprise when I told her I was sitting in the waiting room. She immediately came through the door to get me and apologized. My RO asked me why I was late and the tech told him what happened. Not happy but it never happened again.
I scheduled all 33 treatments for first thing in the morning. I wanted to get it over with. The facility wasn’t that far from my home so the drive wasn’t bad at all.
You have some legitimate concerns. I don’t understand why they couldn’t work out a better schedule for you esp since you have children.
Only you can decide enough is enough. At the very least your medical team needs to do a better job of communication.
Good luck!
Diane
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They didn't know what they were doing. It was obvious. My doctor didn't ask their names because he knows. They didn't get a pregnancy test...so I had to walk back over to the other side...thought I was going to pee in a cup. (I have severe neuropathy so walking is hard.) The nurse says at this point just sign the waiver u aren't pregnant.
I go back to the CT room where I brought my clothes from other side and have get dressed...stuff my bra with the male tech in the room.
Again...their other location severely severely hurt me...which I can't get into here.
I had my expander removed in a surgical procedure and suffered...to make radiation easier.
And my doctor isn't in all week my first week of radiation or the planning. Leaves me with 2 idiots...and neither of his nurses are in either.
It's fine. I'm moving on. Chemo hurt me beyond belief and that was super botched...see above.
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I sat 45 minutes waiting for the tattoos CT.
And my bf refuses to watch his own child unless I get in between 7 and 8 am. I have Zippo support from him. When I was puking in the yard from abrsthesia (I held it until him) he was telling from front door...look how pathetic u are ...u can't even make it in the house. And yelled at me for needing gas...which I did put in later to repay him. My wound is now tattooed from the ink fetti g in...as best I can see.
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As far as scheduling the rad appointments, I was asked what time of day I wanted, but the first week I had to take what was the closest available, because of other people who were already scheduled for that time. Occasionally they would ask if I could come in a little early the next day, which were days they had to do the set-up or initial treatment for a new patient, which of course takes longer.
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breast2beast, your bf is wretched and my heart breaks over that meanness he demonstrated toward you.
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thanks all.
Got a call today from the doctors QA saying I denied treatment. well...I denied being treated vadly?
THEY told me this guy us a student...figures why he nearly hit a rib tattooing me and didn't leave the room...which has no door on it.
THE office was to call back with a date to start as there are no opening when I can have another CT scan and radiation together the same day. Said I don't have to have those 2 dudes.
BTw...my doctor is on vacation. yay for everyone who can take a vacation.
Anyhow, never called me back.
I'M looking to go out of the area...my only option...but my child would heed to start a new school at this point. I think they just called to protect their a $$. there's no way a male should be in the room while I stuff my bra adjust my wig. it was demeaning...
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well thanks. It's awful. disrespected by him...then staff...just fed up. I mean, I held my vomit the whole way home in the car. I never want my kids to see. There I am on all fours hollering for the kids to run in the house hurry...so I can puke. and even pulled my drain...it was shooting blood like a whale blow hole...I went to the liver bile. I was so sick. and there he us at the door. and by now I'm coveted in blood...which I don't even know because my neuropathy us so bad. sad.
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Ditch that POS BFF.
Diane
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After 23 years of being married to a self centered jerk, I finally got rid of him. My only regret is not having made the decision sooner. I was divorced by the time of my dx and did quite well without him. Better to be single than be with a selfish jerk.
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I'm in my second marriage, which I wasn't sure I ever wanted to do again. Made him wait three years before I would date him because I was scared. What I learned after getting divorced from my ex is exactly what exbrnxgrl said. I was FAR better off being single than remaining w/ him. Times were tough, absolutely, I came out w/ debt b/c of him blah blah blah all those kinds of details. But alone was SO.MUCH.BETTER.
(PS I chose wisely this go round, he's the love of my life and just an all around amazing guy. I wouldn't have dated him let alone married him otherwise--content single beats miserably married any day of the week.)
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Or miserably boyfriended too. Ditch the SOB, you don't need this.
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exbrnxgrl Just read your post about divorcing selfish jerk, sorry to depart from thread topic, but I am freaking out. Did you split up before or after dx? (Let DH stand for dumbass husband.) DH tells me June 28 we should separate, dx July 23, he claims he will help but I'm skeptical--he doesn't have empathy, can't figure out when someone might need help. Gets mad if pointless help is refused. DH also a terrible driver & I just hope I'm drugged up enough after lumpectomy to not notice. We've been married for 17 years & the juxtaposition of no love/sex/affection with BC is seriously messing w/my head. I'm going to therapist, journaling, meditating, etc. Crying a lot. I guess that's all normal. Any advice etc very welcome. P.S. I love ravelry too, I've been knitting Frigo fingerless mitts non-stop all month.
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prehistoricmom,
After 23 years of marriage, I told him to leave. This was before my dx and I was so glad. Several years before we split, I had major surgery. On the day I came home from the hospital, he ran right past me up the stairs as I struggled to mount those same stairs. When I finally made it, I found him flopped across our bed. He let out a long sigh and said, “ This has been a stressful and exhausting week for me.” What? Wasn’t I the one who just had surgery? So you see, he would have been worse than useless if he’d had to deal with my bc. Did I mention that he was a very functioning alcoholic? But an alcoholic none the less.
You know, I’m an optimist and I believe people can change, but I’m pragmatic about this as well. You have to want to change very badly, be willing to deal honestly with your demons, and work your rear end off because this kind of change is incredibly hard for adults. I wish I had understood that many years ago. We cannot change others. Don’t stay in a bad situation if it can’t be mended. Professional help works for some, but both parties have to be motivated and work hard. My ex would not do that and I finally realized that bending myself into a pretzel to keep from upsetting him was no way to live. Cancer or no cancer, it’s no way to live.
I also wanted to say that my daughters were both adults when I was dx’ed. They live close by and were a tremendous help. I know things would not have been so easy if they were younger.
Crying can be very cleansing. I think most of us go through a whole range of emotions and IMO, that’s healthy! It sounds like you’re doing many positive things to cope and time will be a great healer too. I have only been knitting 🧶 for about 3 years but I’m hooked. Sometimes I just “play”, to enjoy the feel of a new yarn or use a very easy stitch pattern to enjoy the almost meditative feeling of knitting, Take good care.
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Prehistoricmom and xbrnexgrl, I am spinnz on Ravelry. If you like knitting, you should try spinning.
Ok, back to the topic at hand... I am divorced and have gone through two cancer dx and tx by myself. I can't imagine going through this if I was still married to the selfish jerk we will call ex-hole to protect his privacy. It was hard, but at least I didn't have to worry about constantly taking care of him and his needs. You should do whatever you need to take care of you right now. You and your health are the only priority. I got divorced before either of my diagnoses, but if you read through the boards, you'll see that plenty of relationships just were not strong enough to withstand the assault of a cancer diagnosis. My only advice is to dig down deep to find the strength to become truly selfish. He wants something from you? Ignore it, it's not part of the treatment plan. If he wants to be supportive, fine, support is part of the plan. Keep all of your emotional resources for yourself. Pamper yourself, make your favorite meals, take naps and long peaceful walks.
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