Lump won't go away, getting nervous. Input?

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emememm
emememm Member Posts: 3
edited August 2019 in Not Diagnosed But Worried

Hi all, first time posting here. I've read the stickied post about guidelines for starting a new thread, and I've also checked out the links provided (like benign causes for breast lumps). With that said, I'm currently going through my second scare over the same lump I had looked at a year ago, and I would really appreciate some input from an actual person at this point.

Last year around July or so, I noticed a small, pea or marble-sized lump on my left armpit while taking a shower (right over the axillary tail). It was admittedly a bit hard to find - I had to run my hand over it more than once just to make sure I was really feeling something there. I didn't freak out initially, and thought I'd wait to see if it disappeared on its own. By the time September rolled around and the lump still had not cleared up, I was noticeably anxious about it and mentioned it to my then-primary. He was unable to feel the lump without me showing him (using my own hand) exactly where it was. He didn't seem at all concerned and determined that it was a swollen lymph node. I was prescribed antibiotics and told that the lump would either shrink or disappear. It turned out that I would not be able to take the antibiotics without vomiting, and the lump did not go away (since this experience, I've been prescribed strong antibiotics for unrelated infections like UTI's, and the lump still has not diminished in size).

I went to Planned Parenthood for a second opinion. The doctor I was seen by there also had some slight difficulty finding the lump at first, but was definitely able to determine that she felt something. She told me that it "didn't feel like anything to be worried about," but that I should still have it evaluated further. I was referred to a cancer center for a mammogram, but plans to make that appointment fell through as I was hospitalized for low hemoglobin (separate issue). After my blood transfusion was over with, I made it a point to bring up the lump to my doctor and nurses at the hospital while I was still there. The daytime doctor couldn't feel it, but one of the nurses and a physician's assistant was able to feel the lump after prodding around a little. A week after I was discharged, I went to a hematologist/oncologist to address primarily the anemia, and then the lump afterward. Of course my hematologist couldn't find the lump, but he did order an ultrasound and a mammogram for my peace of mind. The results of both came back normal, and I was told in a written report of the findings that I did not have dense breast tissue.

Fast forward to now, a year after I first discovered the lump in the shower. It feels a little larger to me - about the size of a gum ball. It isn't difficult to find anymore, and I can see it protruding a little when I pull the skin over it downward (and gently, at that. I don't have to seriously stretch my skin to see it or anything). I had it looked at by my current primary doctor, and she was able to feel it right away without having to digging around. She did comment that it seemed to move, which I took as a positive. I'm supposed to have an additional ultrasound done this next week on Thursday, August 15.

Things that have me relatively concerned at this point are as follows:

- It has been a year and the lump has not gone away.

- I'm not entirely certain that the lump has actually increased in size, but it went from being difficult to find by myself and my doctors to being easily felt on the first try.

- Over the span of the last year at least, I have experienced things like intense itching of my left nipple (it went away after about a week and a half) and occasional aching/shooting/stinging pain in my left breast. Some slight itching of my nipple was felt again on Friday (08/09/2019). While I've always heard that breast cancer is not painful, I've read enough from others here to learn that a fair amount of women do experience pain. These symptoms are felt on the left side, which happens to be the side the lump is on.

- I saw a flyer at my gyno's office a couple years ago that stated having a first degree relative with ovarian or breast cancer puts you at higher risk for both. I've not had any genetic testing done, but my maternal grandmother was diagnosed with ovarian cancer at 65. She did eventually pass away from it. I will be honest and say that I don't know how that relates to the possibility of me having breast cancer now.

For anyone that's stuck around long enough to read this far, I suppose these are my questions: Just under a year ago, my ultrasound and mammogram came back negative. Again, the lump is still there and I feel it may have increased a little in size. Am I right to be a squeaky wheel about this? I've not had it biopsied. Would it be overkill for me to push for a biopsy, or at least removal of the lump to be sure? I've heard of false normal ultrasounds and mammos with dense breast tissue, but what could possibly be the reason for my lump to be missed by both of those things if dense breast tissue is not an issue for me? Has anyone here had a normal ultrasound or mammogram, only to find out later that your lump(s) or symptoms were serious after all? As the title states, I'm really concerned that I'll be looked at as someone digging for problems. That maybe I won't be taken seriously after I've already been given normal test results. I tend to be a bit of worrier anyway, but I can't help but feel like I shouldn't let this go until I know for sure.

To anyone that reads, thank you so much for your time!

Comments

  • MelissaDallas
    MelissaDallas Member Posts: 7,268
    edited August 2019

    You have a palpable lump and so have been referred fo an ultrasound, so they are taking you seriously and don’t think you are digging for problems. As to demanding a biopsy or removal, I think I would just wait and see what the ultrasound shows.

    Do you have a copy of the radiology report from last year’s mammogram and ultrasound? What does they say? “Negative” is not a radiological result

  • gb2115
    gb2115 Member Posts: 1,894
    edited August 2019

    Hi there, welcome to BCO!!

    I don't know what your lump is, but sounds like getting it rechecked is smart. Even if just for peace of mind. Did the primary order the new ultrasound? You could also try to find a breast center or a breast surgeon...someone who deals with breasts literally all day long if there's still a question after the ultrasound. Lymph nodes can swell for different reasons, keep in mind if it's a node just poking at it can make it bigger...I know from experience, lol.


  • Peregrinelady
    Peregrinelady Member Posts: 1,019
    edited August 2019
    I was misdiagnosed for 20 months after a “normal” mammogram and ultrasound. I had shooting pains and a “movable” lump. And yes, your grandmother’s ovarian cancer does mean that you have higher risk. Please push for a biopsy and let us know how it goes.
  • mustlovepoodles
    mustlovepoodles Member Posts: 2,825
    edited August 2019

    I think you would be well advised to have this lump re-examined with ultrasound, since it has grown bigger over the last year.

  • emememm
    emememm Member Posts: 3
    edited August 2019

    I'd like to thank everyone here for taking the time to respond, and sorry for taking a while to reply myself. Decided to take a short sabbatical from my phone/tablet since i couldn't stop googling stuff. I'm certain this goes without saying around here, but I definitely don't recommend that anyone google anything health related before getting solid answers from a doctor first.. Even if you have what you think you might have, it isn't worth the agony.

    Peregrinela - I really appreciate your input. I'm so sorry to hear about your experience in being misdiagnosed for so long. :(
    After reading your comment, I've decided that I absolutely will not be letting this go until I know for sure that the lump is or isn't benign. Especially given that this will be my second time having it evaluated. Sadly, I feel that local health care leaves much to be desired, but I am fortunate enough to already have an additional hematologist/oncologist at the Stanford Cancer Center in CA. I feel pretty confident they'll biopsy the lump if I insist. Thank you again for your response!

    gb2115 - I'm definitely relieved to hear that this could very well be a swollen lymph node I've been poking around at too much, lol. Thank you for your input as well!

    My 2nd ultrasound happens this Thursday (August 15th). At this point, the lump is still very much a concern, but not to the extent that it was when I first posted this thread (once again I admit that Googling health issues of any kind before speaking to a doctor is a terrible idea). I'll update here with the results - hopefully updates will be helpful to anyone else going through something similar.

    Best wishes to everyone here, and thank you again (both for taking the time to read my novel-length thread and for responding to it)!

  • SimoneRC
    SimoneRC Member Posts: 419
    edited August 2019

    Please remember to take all previous reports and images if you are going to a new facility. They will want to compare to the prior report/images. Good luck!

  • emememm
    emememm Member Posts: 3
    edited August 2019

    Updating this not because I think anyone particularly wants to hear about it, but because I'm hoping the information might be useful to whoever might be going through a similar scare. Since discovering that my lump has increased in size, I've come across threads here and on other message boards where the original poster never followed up on whether or not they were diagnosed. It's probably safe for me to assume things worked out for the ladies that never returned to share the outcome of their mammogram/ultrasound/biopsies, but that's not especially conducive to reliving anxiety.


    My ultrasound came back normal. The lump is clearly still there, but it isn't showing on imaging tests. I suppose I could take this as good news, but I'm not feeling 100% confident about the results. I've noticed both (intermittent) breast pain and itching on the same side as the lump today, so I'll continue to push for a biopsy.

    SimoneRC - thank you for the advice! I took a look at your comment last week and decided to put a folder together for my visit at the cancer center.

    Thank you and best wishes to everyone as always

  • godisone
    godisone Member Posts: 100
    edited August 2019

    I wish you good luck for your biopsy report.

  • djmammo
    djmammo Member Posts: 2,939
    edited August 2019

    emememm

    Can you post the most recent US report? Thanks.

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